fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I am having a hard time getting through this week. The dizziness and strange feelings are affecting me at work. I am at 6 weeks 1 tsp. I cannot tolerate this. Should I stop for a few days or just back down. Or stop for a few days and start back up at 1/2 doses?
My head and back are killing me, I am hot and my vision is worsening. I am really scared...Please help
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
What does your doctor say? I am on mepron full dose now. I have some symptoms but not as bad as yours. I hope you get answers soon.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
How long have you been on, I handled it ok in the beginning weeks but this week is rough. My doctor told me two weeks ago to cut my dose in half because I thought it was tolerable.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
Babesia is a nasty herx, I feel for ya.I hope you feel better soon.
Posts: 342 | From northern california | Registered: Dec 2010
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
OH great ,just told Babesia is worst infection.. and to start mepron, zith or Biaxim and omnifect , samento,burbur and 2 virus meds...Anything I can do Ahead of time to help?? I only have 3 days before starting....was just on Avelox, Omniceft and at first doxy , got itchy, changed to Amoxy. Bad Herx??// What;s worked to help through this or do you just do it and pray to get healed????? Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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gmb
Unregistered
posted
Try to tough it out. I felt the worse betweeen weeks 4 thru 9. Head pressure, shoulders locked up, and deep bone pain in arms and legs. Felt like I got run over by a truck.
Around weeks 10 and 11 I started to feel a lot better.
I got your PM but your mailbox was too full and I could not reply.
Some LLMDs will actually pulse Mepron three weeks on and one week off, with Zith used continuous. So a short break should not hurt. Check out this link.
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Thanks I cleaned out a bit
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
flutterby, Babs herxes can be tough for some. I have had some doozies. Some people herx every three weeks or so. Since you have been taking the meds for six weeks, you could be herxing.
I think it is good to let your doctor know how you are feeling and to see if you should take a break.
Posts: 4681 | Registered: Oct 2000
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I had asked my Dr if it was ok to take a break if I needed to, he said Yes. He also wanted me to cut my dose in 1/2. Shoulda listened to him. I am feeling a little better today.
gmb, Yess !!! My back and shoulders felt like I was beat up. I really wanted to push through but I chickened out Hopefully wont be so bad when I restart.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Not much relief. Heart pounding, head pressure dizziness. Never went away. I wonder if Mepron can stay in your system that long ???! 6 days ? Scared to start back up Maybe this isnt even babs doing this ?
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
It sounds like Babs to me. It is tough disease to treat.
Posts: 4681 | Registered: Oct 2000
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