posted
I feel like I've finally pieced the puzzle together (new to this and recently discovered the symptoms in a young child are very likely due to Lyme). I think we're still in the early stages but I'm not sure (no history/recollection of bite). I now have a sense of urgency in that I don't want to wait for test results, but not sure of my options. I'm not sure what to say when I call the Pediatric LLD and explain the situation and communicate urgency. In short, HOW DO I GET HELP FAST SO I CAN STOP THIS FROM PROGRESSING FURTHER?
Posts: 5 | From Tallahassee, FL | Registered: Oct 2011
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posted
Nothing about this process happens fast, I'm sorry to say. I am new to this whole Lyme thing myself so I can't give you any advice other than you need have some patience. I know this is hard when it comes to kids and their health.
I hope you get some answers soon.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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posted
How long has the child had the symptoms? This tells you how urgent it is to get treatment. Just a short time with symptoms means it is urgent. Long time with symptoms means the treatment will take a long time and is not as urgent.
And sorry to bring more bad news, but ticks frequently give people more than one type of germ, and this may require different meds.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
I totally understand...We are in the early stages as well and I just want to skip to the "treatment stage". It's very frustrating to have to keep waiting when she see your child sick. Have you found an LLMD yet? We are in that stage our self.
-------------------- Mom to sick 12 yr old Diagnosed with Bart and Lyme.
Started Zithromax and Bactrim 11/2011 Posts: 16 | From Maryland | Registered: Oct 2011
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posted
Thanks all for your replies! It is so hard, and it's a shame that more is not done to raise awareness and education about Lyme. I totally understand the political reasons for why this is, but it doesn't make it any easier to accept. This speaks volumes about our national orgs so-called missions to "control and prevent disease" (e.g., CDC, NIH, etc.) Meanwhile, people are suffering!
So back to our situation - we're waiting for test results now.
@lou: Symptoms been persistent for 6-8 weeks
@grtpyrlvr: Yes, we lucked up and got in with Dr. J in CT; appt. this week. So we'll see how that goes. Also went to a local LLMD, so we will see.
Posts: 5 | From Tallahassee, FL | Registered: Oct 2011
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
OMG, you really lucked out on getting in to see Dr. J so soon!!! That's gold. Thank God that you did. Keep coming back here for more info and help as you need it.
Posts: 3771 | From around | Registered: Mar 2008
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posted
Yay - thought I'd post an update post-appointment. Dr. J is AWESOME!! He is a great man; passionate about what he does. Thank goodness for him. He put DD on treatment schedule based on symptomology so hopefully things will be looking up from here. The only issue now is overcoming my paranoia about letting DD outside for play for fear of future bites...
Posts: 5 | From Tallahassee, FL | Registered: Oct 2011
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posted
Wow, you're in Tally. I'm so glad for you that you got in with Dr. J so quickly and dealing with the travel. I would super appreciate a PM with the name of the "local LLMD" you mention.
We're still struggling with the outside thing so I completely understand. I was reinfected while camping in central FL (rash and all, definitely lyme around here) and two of my children possibly are infected as well.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
Hi everyone...have been on the search for an LLMD in CT and see you all mentioning Dr. J. Can someone PM with Dr. J's info?? Greatly appreciated!!
Posts: 183 | From ... | Registered: Oct 2011
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posted
Oops nevermind...figured out who it was...thanks anways! reading through old threads...
Posts: 183 | From ... | Registered: Oct 2011
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I was reinfected while camping in central FL (rash and all, definitely lyme around here) and two of my children possibly are infected as well.
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