tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Suppose to start Taking Tini.
Scared to take it.
I am on rifampin and zith right now herxing my butt off.
I was told to take 500mgs 3 times a day.
Should I start out slow.
Im suppose to pulse it 3 days a week.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
The three of us herxed at varying degress on tindamax at first. Each month we had less herxing and now no problems at all. It is over a year on the stuff.
I was told to take it Saturday and Sunday but the days can be flexible. I work and found the herx came after the last pill so I moved my days to mid-week and then if I feel bad I have the weekend to recover.
Your post and others makes me think we need to take more. We are twice a day for 2 days a week.
I herxed at the start of rifampin too.
I think we can always start slow. Our doctor would want my son fairly comfortable and would say back off or back down if needed.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
The three of us herxed at varying degress on tindamax at first. Each month we had less herxing and now no problems at all. It is over a year on the stuff.
I was told to take it Saturday and Sunday but the days can be flexible. I work and found the herx came after the last pill so I moved my days to mid-week and then if I feel bad I have the weekend to recover.
Your post and others makes me think we need to take more. We are twice a day for 2 days a week.
I herxed at the start of rifampin too.
I think we can always start slow. Our doctor would want my son fairly comfortable and would say back off or back down if needed.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
posted
If you are herxing still from rifampin and zith, would definitely start out slow. Tindamax is hard to take. My first herx after pulsing for 2 days and taking NO other medications was 10 days.
If I were in your shoes would wait until the herxing from the others slows down, and then start Tindimax.
Posts: 366 | From Louisville KY. | Registered: Nov 2003
| IP: Logged |
No way would I begin with 500mg at once .. or more than ONE 500mg pill per day. Call me a wimp.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
So maybe I will cut the 500mg pill in half maybe pulse 250 the first week then 250 first day then 500 and 500.. etc?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
If my daughter had started out at that dose, she would have been deathly sick!
Even taking just one 500mg pill per day was too much for her.
I am going to pm you.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
well i took one 250 today. and I am going to take another one tomorrow. then wait again till next week
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Did better on tindamax than flagyl. 500. Handled tindamax on the way to remission, from Iv zithro and Iv rocephin. Did great.Good luck.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
posted
I agree with lymetoo. Follow the doctors orders. I am on Tindamax now. Alkazeltzer gold helps with the herxhiemers.
Posts: 488 | From NY | Registered: Oct 2004
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I did 500 three times a day with no serious issues.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I mean I am going to take another 250 today and another 250 tomorrow. I am only suppose to pulse it 3 days a week.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi Tricia:
Our daugher took tindamax from Sept - April and in January started to have an alergic reaction.
My wife called the company and if you have a skin condition (massing of cells) pedicaratosus (sp) then you will have an alergic reaction. This created the spots to highlight and create severe itching.
We keep our daugher on the drug as it was amazing how her neuro symptoms improved while on it.
We did have to stop by mid April as another side effect, anexoria was in full force.
I know she hated taking it.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic