I posted here a while ago about a relapse and how I was feeling. CD4a isn't too elevated (in the 4000s I think now) but CD57 is still around 60.
Saw the doc Nov 1 (the day my insurance kicked in ) and she had just returned from the Lyme conference with some new techniques. My program is now rifampin, zith and bactrim, taking it 4 days a week, then a break for 3. Repeat this dosing for two weeks, then take a week completely off. Then resume with the 4 on 3 off.
I felt better after the first two weeks, but felt terrible the week (this week) I was supposed to have a break. I took the meds a day late and feel significantly better.
Anyone have any advice or suggestions? I'm also supposed to add cryptolepsis, but the source I found online is out.
Thanks in advance.
Posts: 28 | From Seattle, WA | Registered: Jan 2010
| IP: Logged |
Hmm, did the doctor say to expect to feel bad on the off weeks?
Is that a protocol to cover Lyme and some of the co-infections?
If so, which co-infections are covered by that protocol?
Thanks. Mary
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/