lyme in Putnam
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posted
Heard iif u get hrough week one it would be hardest. Im on week 4 and real bad mental, emotional. physical worse after adding doxy 2 weeks ago. I want to be human again. How long before any mind clarity if its gonna work?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Catgirl
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posted
Mine was fine until week six (got much worse), but two weeks later better (over the hump). It's worse because it's killing the bart. If you can, stick with it. Detox is so important here. Have you tried alkaline water yet? It helped me. Got some at the supermarket. Someone just posted about alkaline water about a week ago.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lyme in Putnam
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posted
Been doing lemon water. R u doing anything besides rif. Had to bak down on the doxy. Going off doxy for a About a week to go away on a trip that we booked before this stuff got into full gear. Bad time to go, only on 300 rif, 100 doxy. Thanks so much. Have 2 strains Bart. Help.
posted
My daughter had worsening arthritis on rifabutin... which is similar to rifampin. We really wonder if she should have continued on it.
What symptoms of yours were worse on rifampin? Neurological? Joint pains? Fatigue?
Mary
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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lyme in Putnam
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posted
Stiff neck, confusion,depersonalization, headache, pain in hips, head, oddly no joint pain, sleep seeing lightning strikes, I'm a mess.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Catgirl
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posted
Yes, doxy and zyth. I was okay on the doxy and rifampin until my doc added the zyth, then I had a bad bart flare.
I read or heard somewhere that you shouldn't only do rifampin because you can become immune to it, permanantly (supposed to be used with other drugs for bart). Sorry, Putnam, I just can't remember where, and I don't know how accurate that is (I'm no doc).
Maybe you could call your doc tomorrow and double check if it's okay to only do rifampin.
I would think that lowering the doses of both would be better than only doing the rifampin.
Hang in there (you can do it)!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
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posted
I forgot, buy some "Essentia" water. It really helps me.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lyme in Putnam
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posted
Did you ever had feelings of hate when waking up and almost through sleep. This is so unusual for me, never had this in all the years of treatment. I'm scared, it's like personality change, thoughts, want to come out the same I went in. just doing rifampin only for a week, then back on doxy cause were going away. I don't want to go away like this.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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gmb
Unregistered
posted
Lyme in Putnam,
I'm on week nine of Rif with Zith, kicked in Doxy to replace Augmentin a month later.
Last five weeks have been the worse I've felt since beginning treatment about two years ago. Burning feet, worse than usual head pressure, and bad mental state top the list. Joint pain and fatigue on par with past peak symptoms so that don't bother me so much.
I too been waiting for a "peak" to get over this hump. I'm very discouraged with these slips. Seems worse than the Babs symptom flares during first 10 weeks on Mempron I went thru last spring.
I see my LLMD for 1st regular check-up next week since starting this Bart protocol. I know there will be no answers.
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
How long to hang in? Sorry gmb, I wish I could help. I'm so tired too. Maybe you'll get some answers soon, or reprieve.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Catgirl
Frequent Contributor (5K+ posts)
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posted
Putnam, yes I did (hate). That is not like me at all (total optimist). Nightmare after nightmare. It's totally bart (maybe it's the rifampin too). Hang in there everyone, we will all get past this.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I have to do rifampin alone for a week. Minus the doxy. It makes sense rifampin iis a cyst buster. The last time I had lightning strikes in my head and i heard a pop i was on flagyl and I was more zoned for 3 mos. had lightning strikes in my head Friday night in my sleep, no pop, I was sleeping, and the last two days are the sickest thsy I've been. If its that bad going down to 150 till I see her. I hate slowing, but I gotta live too.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lyme in Putnam
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posted
Thanks catgirl.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
I too have had "the rage" or hate as yu have called it. Everything that you are describing, emotion wise I went through while on a Tetra?diflucan combo. It was MISERABLE. I was really borderline psychotic if not fully at one point. The rage would peak and then it turned to total Anxiety. It is targeting the Neuro infection. I am starting my Doxy Rifampin combo after Thanksgiving and I am dreading it. I have a month old baby and my LLMD saaid outright to nt be left alone. So my Mother, whom is also on treatment but with B.W. Formulas and is doing great, will have to be with me duing the day and my Fiance with me at night because the Neuropsych HERX is downright awul and get to the point of making one suicidal, worst case scenario. I am trying to brave going ino this but am not so happy about it. I am on a combo of Ceftin/Zithro/acyclovir right now. And I dont feel great but its totally doable. All I can say is to hang in there. once it passes there will be relief. The Hate will go away its part of the Herx. Keeping you in my thoughts.
-J
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