posted
I would love to know the answer to this question too! I have it and drives me nuts
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
What does your off balance feeling feel like? Mine feels like I am slightly walking or leaning to the left when I walk. I have never been tested for babesia, but it is assumed I have it. The off balance feeling has gotten much better over the past few weeks. I have been on anti-babesia meds for over a year now. It does still come and go.
Posts: 618 | From NC | Registered: Oct 2009
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Keebler
Honored Contributor (25K+ posts)
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Vestibular symptoms (inner & middle ear system) can be caused by any number of infections and toxicities.
Also, the brain balance areas can be tossed off the tracks with any of the tick-borne infections.
Low blood pressure and also the dysfunction of any of the various nervous systems - and the endocrine / adrenal systems can also cause various degrees of dizziness &/or vertigo / balance issues.
All of these things often go along with lyme, babesia, bartonella, etc.
LIVER SUPPORT can help reduce toxins that affect the ears. Many medicines can be toxic to the ears, so when such Rx is required to treat serious infection, liver support is also required to help protect the ears as best possible.
When on Mepron and some other Rx, liver support has to be carefully thought out so that any increased liver function does not cause Rx to also be pushed out of the liver. A therapeutic dose of Rx is important - but so is liver support.
It may just need some adjustment in the method or timing.
Sometimes, though, certain meds may not be able to be tolerated by the ears. When so, communication with one's LLMD is vital to consider alternative approaches or additional support.
When the liver & kidneys are less stressed, so are the ears.
INFLAMMATION is also a huge part of all this. Any inflammation of the inner/middle ear area and all bets are off as to how straight anyone can walk - or even think. We need our ears to think, too. Really. Or to be able to make decisions in a timely manner.
Same thing with the brain. Lyme & co. often cause swelling of the brain or swelling of the area around the spinal cord at the neck, especially. (Meningitis, encephalitis or a chronic encephalomyelitis are common.)
Any swelling of nerve / brain tissue can cause various balance upset.
Be sure to take a look at that link above. It helps explain a lot.
Now, there can be various independent vestibular disorders but lyme & coinfections can cause all those symptoms, too.
The ears are also MUCH more prone to damage when on antibiotics and for months afterward, too. PROTECT ears from noise damage, even around the home. Hair dryers, vacuums, blenders, juicers, etc. all require ear plugs or professional muffs.
Avoid ear "buds" as the sound impulse can damage ears even if on reasonable volume.
Going SCENT-FREE & chemical-free in our home and car can often help reduce vestibular symptoms.
The inner/middle ear region is the first warning system for toxins. By reducing all the toxins we can, our ears - then our liver & our brain - our whole body does better.
That's also why Liver Support and heavy metal detox is so vital.
Parasites can also really clobber the ears, so to speak. Again, it's about the toxic load that we carry. Many toxins can destroy tender brain and nerve tissue. Some can also destroy inner ear tissue.
Again, so much points to creating as much of a toxin-free environment as possible during treatment and beyond. Just supporting the liver can really help.
Now, all this can still be only PART of the picture with vertigo &/or dizziness. It's very complex.
In addition to liver support:
GINGER CAPSULES, vitamin B-6, MAGNESIUM GLYCINATE are the best helpers to lessen vertigo/dizziness and nausea.
Qi Gong (similar to Tai Chi but with less moving of the head) can also help retrain our brain and ears. If moving the head is possible, Tai Chi is also excellent.
AVOID FLUORESCENT LIGHTS (or any kind of the "low energy" bulbs) - Instead, use the old fashioned kind of incandescent bulbs but they are being phased out so stock up.
If you can't avoid fluorescents, say in canister lights, try for a 3,000 K rather than lower numbers. But, even in my kitchen, I have a table lamp and a 3-way torchiere, both with regular light bulbs. I never turn on the other kitchen lights. -
[ 11-19-2011, 11:22 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Both Hyperacusis & Tinnitus are very common with any of the tick-borne or other chronic stealth infections. Adrenal fatigue is also connected to both.
For anyone who is sensitive to even normal sounds:
Ototoxic Drugs -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
This is one of the thing's, beside pain , fatigue, that keep me in bed...Just want to curl up, dim room and wish it away... What do you do to get past it... Maybe I could get out more... Temp changes are also a big bummer for me.
Take care, Nonna Posts: 2563 | From Denver,CO | Registered: Aug 2011
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posted
I had to take my son to a doctors appointment and it was all I could do to appear like I wasn't drunk.
My right side of my head is what seems to be the most effected. I believe my lyme doctor is beginning to suspect it is related to Babesia.
I was just wondering if this qualifies for the "tipsy" symptom..sigh.
Posts: 131 | From Maryland/USA | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Q: Does is qualify for the "tipsy" symptom?
Absolutely. It can be like a pull or more pressure on one side, too.
You might want to be very, very careful to NEVER use the term "tipsy" for any doctor OTHER than your LLMD. It could cause undue judgment and a scar on your file that could be misinterpreted for years to come.
Some doctors seem to assume we are in a drunken state by their lack of knowledge of how lyme and other tick-borne infections affect balance (and not just with the ears).
I had one doctor tell me he would never treat me were I to come to an appointment drunk. I had no idea why he would say that. I never even liked drinking way back in college, it just made me so sick and I always feel sickening drunk without a drop.
But, I used to joke that (when I was driving) if pulled over for a sobriety test, I would surely fail. Couldn't even walk through a door way without a collision of my shoulder with the door jam.
The same "misunderstanding" has occurred when I used the term "hang-over with the flu" just to describe how I felt (not even considering alcohol as it is just not on my radar).
As for if the head can feel it more on one side than the other -
Looking back a photos of myself from years ago, my head was always bent far over to one side. I never realized that. I knew I had no idea where I was in space, so to speak but I did not realize that I had been trying to correct the view (signal) that my eyes got mixed up from my ears' navigation system.
The terms "vertigo", "dizziness", "Balance issues" cover a lot. From the VEDA link above:
--------------------
Vertigo and dizziness
* Spinning or whirling sensation; an illusion of movement of self or the world (vertigo)
* Lightheaded, floating, or rocking sensation (dizziness)
* Sensation of being heavily weighted or pulled in one direction
Balance and spatial orientation (also see free publication)
* Imbalance, stumbling, difficulty walking straight or turning a corner
* Clumsiness or difficulty with coordination
* Difficulty maintaining straight posture; tendency to look downward to confirm the location of the ground
* Head may be held in a tilted position
* Tendency to touch or hold onto something when standing, or to touch or hold the head while seated
* Sensitivity to changes in walking surfaces or footwear
* Muscle and joint pain (due to difficulty balancing) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
I was just reading Schaller's PDF ebook last
night and one of his statements was that
Babesia is a protozoa not a bacteria.
It is therefore "larger" in our blood cells causing more vascular problems as well as dizziness..
When it dies the larger "pieces" can clog up our
vascular system. He indicated how important is is to take certain supplements to clean up
these free radicals, when killing Babesia, so
these dead pieces don't cause clots or strokes
(sorry don't mean to get scary.)
I am confused because, in reading, Shaller doesn't seem to believe the standard Mepron dosage will even work..
In Dr. H's presentation in Toronto he indicated that he is finding Cryptolepsis to be working
better on patients who don't respond to Mepron and Azith...
My Babesia symptoms are more breathing and
extreme fatigue, but I have had several bouts of
dizziness where I could not stand up straight or walk so I know it's not a pleasant feeling.
Posts: 396 | From EAPennsylvania | Registered: Dec 2007
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Jamers
Frequent Contributor (1K+ posts)
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posted
I always wonder why tipsy/dizzy is noted as a symptoms typical of Babesia. If it's due to inflammation then it could be due to Lyme or Bartonella also. I do not believe my dizzy/tipsy is due to Babesia.
So many of these symptoms are interchangeable with the other infections. If I had continued to treat dizziness as a Babesia symptom then I would never get off Babesia treatment! But while treating Lyme and Bartonella I have dizziness herxes.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Keebler
Honored Contributor (25K+ posts)
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posted
- Jamers,
Exactly. I've seen balance issues listed as symptoms for lyme and bartonella, too.
The balance issues are not confined to any specific infection, nor to even just a few other causes. So much affects balance.
For those with any tick-borne infection, it's best to have an educated, bright LLMD with lots of experience and a keen eye and mind for diagnostics - and treatment variables.
--------------------
Fourwinds mentions free radical quenchers (antioxidants) to swoop up damaging debris. Antioxidants can also help lessen inflammation from cytokine storms that cause such a herx.
Some of these antioxidants are also liver support supplements - but some stand out on their own.
Links to many articles and books by holistic-minded LL doctors of various degrees where you can compare and contrast many approaches.
BASIC HERBAL & NUTRITIONAL SUPPORT links, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nonna05
Frequent Contributor (1K+ posts)
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posted
So it's Mepron, zith/biaxin and artemisinin??
How much I take 5 ml of olive oil ,cause coconut oil is hard w/ 5ml mepron .. Is that enough oil? I take 2 Art in am and 2 in pm. but from an article referred to here it says the Artemisinin should be more like plus 900mg..
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
My dizziness is babesia. It begins with me feeling spacey. Then it progresses into "walking off the mountain top into the clouds". Before long I am balancing myself on the walls.
I do not have it now but the spacey feeling is there so I am starting to treat it again. I have always wondered what exactly caused it. It is affecting my middle ear - no doubt, but why?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
mr al, Mine is gone. . . . for the time being. It comes and goes. I was very dizzy when I was first diagnosed. Then again last winter when I was treating babesia.
I got inner ear damage 27 years ago from a virus and had vertigo for three years. I did not have lyme. I could not sleep on my left side because everything would spin and make me sick. It finally went away but would come back when I got any other virus, although only for a few days. Lyme brought it back full force.
I hope you get over yours.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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