posted
hi everyone..i have been told by the neuro that is see that i have dysautonomia from lyme and coinfections. if i treat long enough, can this imrpove to where i can live semi normally? thanks
Posts: 651 | From ct | Registered: Sep 2011
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Do you have POTS? Where you stand and your heart races because your blood pressure drops? I have had some form of dysautonomia and it has gotten much better from treating. So, yes, I believe it will improve if not go fully away. In fact, I expect it to go completely away. The key is to treat and be as active as possible.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Yes-I had severe POTs and it went away completely.
Unfortunately, my babesia was undertreated, I relpased and it's back-butmuch more mild this time
Meanwhile..remember to drink a lot,increase your salt and try gentle strengthening to your legs.
It will get better
Posts: 1276 | From maryland | Registered: Jan 2009
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posted
I am sure glad someone posted on this subject. Many years ago I had a tilt table test and failed. I was told I had Neurally meduated hypertenstion.
To bad I didn't know it was lyme/co-infections. I'm relieved to know this will improve with treatment.
Posts: 131 | From Maryland/USA | Registered: May 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My son has POTS and it is expected that some day he will be off of those meds and regulating things normally again. The cardiologist in my opinion should have done more bacteria testing as a cause of POTS. They just treat and treat. On one website called dinet.org, there is a small blurb about Lyme disease causing POTS. I missed that 4 years ago. It would have saved a lot of grief!! Of course, it never would have been tested correctly anyway.
I hope more post in with good news.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
so to know if you have Pots without diagnoses.. You basically are walkind a bit and get real dizzy and winded?
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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