posted
My Doc has finally agreed to treat me for lyme. He is very busy and is depending on me (with his approval) to advise him on treatment including drugs, schedule, reactions etc. I have Burrescano's 2008 guidelines... Is there anything more comprehensive? A book?
Thanks for helping
Posts: 14 | From Utah | Registered: Jul 2011
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posted
There is " The Lyme Disease Solution" by Ken Singleton, I think that is his name. It is pretty good, it has all of Dr. Bs guidelines plus additional info on antibiotics. That's good your Doc will treat you. Best to you. R
Posts: 845 | From Northeast | Registered: May 2011
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It's very admirable that your doctor is willing to learn about Lyme disease in order to treat you. However, it's a very complex disease which may include diagnosis and treatment of other tick-borne illnesses, and other associated conditions. There is no cookie-cutter treatment, as we are all individuals.
For both of your information, I would start with ILADS (International Lyme and Associated Diseases Society) at www.ilads.org. There is a wealth of information for doctors and patients there. There is info on treatment guidelines. If you contact them, they may be able to refer you to a LLMD in your area.
Also, ILADS has a Physician Training Program available that your doctor may want to consider. We certainly need more doctors who are willing and able to treat Lyme disease.
On the other hand, after being in treatment for 6 years now, personally, I would not have wanted to be treated by a doctor who was just beginning to learn about Lyme and coinfections and their treatment. I would want to find the most highly knowledgeable doctor that I could realistically work with.
Just like when I had breast cancer, I was not satisfied being treated in my small town. I chose to go to a larger city with a breast cancer treatment center, where I could get the most current and comprehensive care.
I'm not familiar with what's available in Utah, but here are a few resources for you. Maybe they can help you find a LLMD (Lyme Literate Doctor).
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It's a very good book, but may give the perception everyone can be easily cured. The author makes chronic Lyme seem relatively simple to treat drug wise IMO. I've read the book many times. Nearly all his patients 'in the book' are symptom-free within less than a year and in many times a few months. If only the world was so easy. Still a GREAT starting point.
quote:Originally posted by RC1: There is " The Lyme Disease Solution" by Ken Singleton, I think that is his name. It is pretty good, it has all of Dr. Bs guidelines plus additional info on antibiotics. That's good your Doc will treat you. Best to you. R
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
stillhope, how long did it take you to bring your doc over to the "dark side"? 6 or 7 months ago I was worried my PCP would not even be willing to refer me to a LLMD, but he did. When I brought up "herxing" he said he wasn't comfortable talking about it.
About a month ago I was at an appointment with him and he handed me an Igenex order form he had printed off the computer and told me if I wanted he would order the tests for me. He also told me if my LLMD wanted him to run bloodwork, liver panels, etc...that he would be willingto do that too.
I was at his office the other day and I offered him "Cure Unknown" to read which he took and told me he would read it over the holidays.
I may turn him yet...
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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posted
Seek, I know what you are saying about the book, I totally agree. While I was reading it I was thinking I wish I had it that easy!
Posts: 845 | From Northeast | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures;
Knowing that support supplements are important, but NEVER enough alone. And knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL links, and
BODY WORK links with safety tailored to lyme patients,
RIFE links,
BIONIC 880 links, and
LOW HEAT INFRARED SAUNA detail. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
My PCP also borrowed my copy of, Cure Unknown....I've flipped through it several times and she Pam, is supposed to be cured....
HOW ?WHAT? WHEN ? Lenghth????????
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Still a GREAT starting point.
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