Lymedin2010
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posted
Just curious, does anyone know how long Dr. Burascanno was sick for? Was it for years and did he go through the yo-yo effect that many of us go through?
Did he cure himself quickly?
Does anyone Know what his symptoms were and EXACT treatment protocol? Probably very similar to his publication?
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nonna05
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what about the antibiotic from Europe. Didn't he And Pam who wrote Cure Unknown Use it?
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Lymedin2010
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posted
I did not hear about Burascanno using those Rulide. I read that Pamela did and it did not cure her, but did clear some of her symptom. One of them being throat constriction/chocking.
Tom Grier is the one who got cured from a combo of Rulide and Bactrim DS used for two months, after standard ABX treatment.
I have spoken to Tom and he actually says that Pam is mistaken in her book, Rulide was actually obtained from Mexico. Who knows, maybe it can be obtained from many non US countries.
I am about to get mine from Canada, or at least the original order stems from there.
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nefferdun
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That is interesting. Roxithromycin is a macrolide that crosses the blood brain barrier. I ordered it from India a couple of years ago and used it a couple of months instead of Biaxin. Now that I am allergic to Zithro I might be allergic to that too. But my Bb seems to be under control.
Dr. B allowed himself to completely relapse and then he did one drug. Pam did the same thing. Can't remember but I think it was Ceftin.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Lymedin2010
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Yes, it was Ceftin and it was what cured the both of them. Burascanno reports that you have to be off of all antibiotics and get really sick and then hit them with Ceftin.
You may need to do this a few times until it finally clears up to a point where you are symptom free or close to it.
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nonna05
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posted
Anybody else use Ceftin ..How,alone or other ABX's,are you well, went totally off and then this........
Is this worth asking about???Did it work for any of you?
Thanks, Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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canefan17
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posted
They also didn't slowly work up the dosages. They whacked em! (rumor is 3g)
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jackie51
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posted
I'm on 2g. Seems to work but some symptoms slip through now and then, so it's either not enough or I need to switch up soon.
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Razzle
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posted
I was on 2g IV Ceftin (1g every 12 hours) for a while and really did not feel like I made any progress on it. Yes, the joint pains subsided while I was on it, but a few days after stopping, the pains all came back. Maybe this would have worked if I had been on a cyst buster at the same time, I don't know...but my system couldn't handle much at the time I was on this...
I feel like I'm making better headway on a combo of Flagyl and Andrographis.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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bcb1200
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posted
There is an old thread on this where Pam Weintraub comments.
She advises to be careful in that what worked for her and Dr. B (i.e. allowing oneself to relapse completely and then hitting it with high dose Ceftin for at least 3 rounds), was a proper protocol for them but may not be for you.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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nefferdun
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Since his first came up I have relapsed with Bb. Makes me think of pursuing ceftin.
I thought Dr B and Pam both went into remission and then relapsed. They waited until they completely totally crashed and then they went after it. But I believe, from the way it is written, that they were not dealing with active co-infections.
I don't think it would work the same for those with active infections that have never experienced remission.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I read somewhere that it was really high dose, not just like 2 grams. I think it was like 4 or something like that. I think you would need to do some serious probiotics to do that much Ceftin!
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bcb1200
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posted
Here is the link where Pam Weintraub comments about how she and Dr. B cured got well.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Catgirl
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posted
I couldn't do ceftin. The side effect I got was left off of what I got from the pharmacy. Had to go to drugs.com.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Lymedin2010
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WOW! That was a great read bcb1200, thanks.
Happily surprised that Pamela Weintraub chimed in and tried to help us out. Great to know we have her watchful eye from time to time.
I bet Dr. B frequents this site as well?
I have also confirmed that Dr. H had Lyme, but he treated fairly quickly and was able to get through it.
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posted
To reinforce what nefferdun said above: they were each dealing with just lyme, they'd already gotten rid of any coinfections.
I think most of us here are here because we haven't been quickly cured, and having multiple infections is a big reason for not being quickly cured.
It seems like multiple infections has become the norm now instead of the exception.
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Lymedin2010
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posted
We need to buy a few more vowels. �How in the world did they know they were done with coinfections?
What were just their Lyme symptoms? �Migrating pain, joint pain and stiffness, overall feeling of unwellness? �Fogginess, head and neck pressures?
I wish we had more detail of their experiences. �It would help us out tremendously. �Feels like we are simply rolling the dice. �I've already begun documenting my ordeal and will eventually make it public. �Hopefully others can learn what not to do and make better decisions quicker. �You need a cooperating LLMD or LLNP to work with you though, otherwise you will be stuck in the Lyme Lands.
I also wonder if both Pam and Dr. B followed the 1hr exercise routine. �I have exchanged words with TF and she gave me the push to fight for exercise. �Before that I was going to, but was apprehensive that my ABX would flush out quicker with workouts and that I would be wasting my time and efforts. �I even tried on a few occasions and felt as if the devil was inside of me and punishing me. �As if Borrelia was the devil and has gotten angry at me for doing something it did not like.
Never in my life did I ever imagine that this was even possible. �You could not write a better sci-fi script for such a smart and invasive bacteria. �The first time getting back into the workout routine I herxed so badly within 2-3hrs. �I had waves of tingling in my hands and feet and a feeling as if something toxic has coursed my blood. �Breathlessness and a fast onset of stiff head and neck. �Felt as I have experienced many times, as if I am about to die. �
Well, I kept at it and feel that it is helping. �I feel stronger and see it as a necessity to getting better, just as TF has proclaimed. �I think i have built a good amount of biofilm and the exercise herxes were proof. �All the pushing and pulling and heating up internally breaks up biofilm. �Seems like exercise is probably the best biofilm buster as well as immunity regulator.
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bcb1200
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Lymed...read the tread I posted.
Pam (don't know about Dr. B) know her Babesia was gone as her symptoms were gone and she didn't have any more flares when taking Babs meds.
I believe she describes her remaining sx in the book and there are excerpts on that thread.
But the conclusion is clear...that approach was correct for THEM since they were only dealing with relapsing borrelia and zero co-infections. The co-infections were already gone due to treatment.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Lymedin2010
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I guess it is tougher for me to understand since I never herxed on what is considered Bart or Babs meds. �So it is hard for me to discern heads from tails.
I took Zithro with Mepron and Biaxin with Mepron. �Never had a herx on them and took them as if I was taking sugar pills. �Never a reaction and never felt as if I was killing or destroying anything. �I was actually happy, thinking my bacteria loads were not as high as I thought they were. �No herxing at all on those three antibiotics. �However, my symptoms had grown from 3-4 to two pages worth within the forthcoming weeks.
If most of my symptoms are Bart and or Babs, how is this possible? �How is it possible that an LLMD, with years of experience, can overlook what should have been such glaring indications. �Your getting worst by the week, changes need to be made.
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nonna05
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Any new input on this...???I haven't seen Ceftin mentioned here or from doc. I tried to see WC Mystery spot put couldn't get it to pull up..
Trying,praying,and want a fix it shot nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Lymedin2010
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Nonna, bottom line is that both Dr. B and Pam had Borrelia as the last infection, after they treated the others.
They then waited to fall back and get sick and blast them with 3-4G of Ceftin spread over 8 hr periods. They did this for 3 rounds and it worked for them.
Do not go gung ho and maybe even test gradually before letting go and blasting. They professed what worked for them may not for everyone. It's hit or miss and you will have to take your chances.
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nonna05
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I hate reading my question's ,they make no sense so often...........The WC , was Wild Condor spot on TV..Anybody know how to find it ?U-tube? There was some kind of link ,but the brain stuff and the rest I couldn't find it.
2nd was IS ANYBODY using CEFTIN in any way /combo etc.
Thank you, Nonna
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Lymedin2010
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