lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
ive been thinking about this for awhile cuz we have this neighborhood where ppl seem to getbrain tumors and then die real fast. it just happened again. a 50 yo neighbor was given 4 months to live. he had headaches but they werent that bad so he didnt go to doc about them
ive been having mild headaches for about 6 monhts...ive been here alot for the last 7-8 months
i had severe headaches early on with lyme and also had silent migrains. havent had eiter in yrs.
my headaches now are so minor compared to my other pains...but ive been wondering and with new news i'm a little concerned
i also have know many with lyme who were dx and tx for brain tumors when it probably was lyme
but anyone know sx...can headaches not be severe? will they do an mri if headache isnt severe? will it show up any other way?
thanks-kinda wish this wasnt on my mind being christmas an all
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
My MRI came up always clean.I always wondered if my migranes were tumors as they were horrible.It was lyme all along with bartonella and babesia on top of it.Yes the headaches was what I complained in ER and paralized.
Mri and scanner was very clean all the time within 5 years of SEVERE NEURO ISSUES.I was diagnosed with migranes 18 years ago.I always told people I would not be surprised that the pain was a TUMOR.
Posts: 1379 | From disable | Registered: Aug 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thanks
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Yes,Iam a brain tumor survivor. 1994,Benign hemangioblastoma.Successfull removal followed by major physical therapy. I always thought all of my continuing symptoms were from the tumor and removal. NOT SO! Now that I am returning to good health I am realizing that alot of these things have been lyme and co's all along. I now think I contracted lyme around the time I was diagnosed with the brain tumor. All that being said, the lyme jouney was SO much harder for me. Get a good MRI ,please dont worry too much.
Posts: 342 | From northern california | Registered: Dec 2010
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
My Dad died from glioblastoma. It wasn't as much headaches as a fairly sudden onset of confusion and forgetfulness. He suddenly was losing track of things and it was extremely uncharacteristic of him, so off to the doctor he went and he was diagnosed. Glioblastoma is fatal, and he died nine months later.
Just ask for an MRI and put the worry out of your mind.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
my hubby has had very bad head and eye pain now for ten yrs...he had every test known to man ...5 yrs later we found out it was Lyme...this is his 5th yr in treatment...his meds changed along the way
around his 3rd yr his eye pain got a little better.. in his 4th yr his head pain got a little better...
now in his 5th yr eye are 90% better and head is 75%...he was in a dark room on his back all these yrs...he got so week some times he would fall.
now i can tell you all that he is so much better.. but i felt he needed some help because he was so week...he is now getting help and this is the first Christmas he has enjoyed in over 6 yrs...
so i want to thank Lyme Net and all you good people here...i do not post often but i have gotten so much help and learned just how bad this sickness is....
we have had such a hard time in so many ways but hank God we hung in and now can say there is a light at the end of this ugly sickness called Lyme Disease...
to all of you here just know i would daily come on line and read and learn...so keep up the good work...this has saved my life and i have my Husband of 46 yr back...
take care dear Lyme Net Friends...thank you for being here...Madge
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
madge-so glad things are going better-that was a long haul!(im back in nh now)
tracy was it an mri that they used to dx? sorry you lost him like that. it was not lyme related at all? do they know what causes that kind of cancer?
norcal-yrs ago i was a teacher and another young teacher and mom was dx with a brain tumopr and had surgery
she couldnt work again but was able to help raise her kids from a wheelchair. there was so much undx lyme at the time-she was one of many i know that say they thought it was brain cancer but then it wasnt. but i think they told her it would probably turn into brain cancer if it wasnt taken out. who knows. her life was dramatically changed.
the most recent guy i know that was dx here is the 3rd. but in the town they say there are a lot. and it is a small hospital and the ppl are tuff old birds who dont complain or go to docs so by the time they go there isnt much to be done i guess. it is an old mill town. the mill left a year after i got here but these ppl lived for yrs in the discharge from the plant.
not sure-but after cooking more than usual(gas oven) i felt so bad with headache and nausea that i began to think it might be from a gas leak or a small gas stove i keep in the cellar that is unvented-i just keeep it on low in the winter to keep the pipes from freezing
i didnt sllep one bit all last night cuz of how i felt and worried there was a gas leak. there was a very subtle smell...not that much...
this morning at dawn i aired out the whole house -1/2 at a time cuz it got down to 46...and i felt better. i'm having all appliances checked tomorrow
ive had 2 mris (long time ago)-lyme or ms never showed up-nothing showed up-but my spect scan was just barely pos
i dont know what it is...i am verry cog impaired but i wouldnt say it came on fast...it also waxes and wanes
thank you all for your input...around here you cant just ask for an mri and get it...you have to beg. and travel-about 3 hrs to bettter hosp...so we'll see. i could get a ct scan easier...thanks again
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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