bcb1200
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Member # 25745
posted
Ever since I had my drama 2 weeks ago with Rifabutin, I've noticed my hands / feeting get a mild tingling sensation from time to time.
Anyone else get this and any idea which bug it is?
I'm thinking Bart.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Lymedin2010
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I too have the tingling on both hands and feet. Never had it before, not even one of my first symptoms. I developed it while on IV Rocephin, Mepron, and Biaxin.
It went away with Doxy and Biaxin, but I still had circulation issues. Where if I put too much pressure on the hands or feet they would get numb quicker. It has came back since being off of Doxy and Biaxin.
When I look at my blood smear I see a bunch of critters swarming around and I have seen Borrelia coming out of my RBC's. I think the tingling is due to the lack of proper oxygen supply, to the areas that are least likely to get a good supply. They are at your bodies extreme and contain the most deoxygenated blood. Any impedance will cause tingling.
I think the Bart has lowered your immunity and as a result your white blood cells are not able to attack common bacteria as they once did. That is why the most sick individuals have countless squirming bacteria in their blood.
Do you have low body temp? Have you ever done a live blood smear?
Posts: 2087 | From NY | Registered: Oct 2011
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posted
According to our lyme doc, and also pharmacist where we are getting Rocephin, tingling is bacteria die off
Posts: 305 | From United States | Registered: Nov 2011
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Lymed...yes had a Fry smear 2 months ago. Completely negative.
I do have low body temp though. 97ish.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Lymedin2010
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Yea, I have experienced waves of tingling with die off too, only with Amoxicillin though & only with 500MG pill (WOW!). The next pill did not do as much and with the third, nadda. But normally it is a costant dull numbness/tingling, ABX aside.
Did not last too long & my explanation is that it either killed one of Lyme's bacteria, only the ones that were freely swimming in the blood stream, since this happened within 15-20min of taking it. It might have killed off any of the opportunistic bacteria floating in the blood too and released toxins, hence the waves.
You should jump in a hot bath or use a sauna for the low temp. I find that my symptoms are much worst when my body temp is lowest. I do that hot bath & then straight to bed for a while. It helps regulate my body temp for the remainder of the day & sometimes lasts a 2nd day. Makes me feel a bit better and more human.
I don't beleive in their tests and smears, and even professionalism anymore. I bought a $100 microscope & have been able to see many different bacteria in my blood. How can anyone tell me that my bloodwork is normal after seeing the things I saw. No wonder I am sick!
Cheaper to buy your own microscope than waste your money on their tests I think. You can cam or rec it on your pc & take it right to your LLMD. I was able to find out that I have a big BB infestation, with BB swimming out of my RBC's inspite of Doxy & Biaxin in the plasma.
This tells me that the levels of ABX in the body is NOT HIGH enough, or we are dealing with a different strain. Perhaps a resistant strain from all the years humanity has been trying to attack it.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
Kramberry--when I am on flagyl, I take B6 to help with neuropathy. It may help you.
Posts: 447 | From Vermont | Registered: Jan 2011
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Lymedin2010
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posted
Flagyl & Tindamax causing nerve damage & tingling I can believe.
BB causing mirror image burning/tingling, hmmmmm. I have a tough time believing that. Is it more likely that the bacteria are attacking your left & right side at the same time (nerve anywhere from spinal column branching outward or both halves of your brain?
I think the better explanation is something in the blood. Blood is pretty good at being diffused and causing double sided sensations.
Had it been one sided and more or less consistent, then I would more likely believe BB as the culprit for nerve sensation.
I still think it is the total load of bacteria in your bloodstream. Could be in your plasma fluid or your RBC's. This causes your extremeties to be depleted of oxygen quicker, since they typically receive less oxygenated blood on a regular functional level.
Have you had circulation issues develop since your bite/lyme? Did you have circulation issues develop throughout the years. Ex. tough time taking a hat too tight to your head, your arms or legs falling asleep a lot quicker with even slight pressure, you cannot stay bent on your knees for longer periods of time.
I had noticed this develop with me over four years and I found it odd that it was getting worst along the way. Not gradually, but I would have bursts every few months & it took some time. It got to the point where I could no longer even take a fairly loose hat on my head.
I have heard the same thing happen to my next door neighbor. She was deathly sick, then got better. Her joint pain, muscle twitching, low body temp still remain with her, but she is very functional. She even graduated from school, post Lyme experience & incidentally eats sugar and carbs all the time.
Posts: 2087 | From NY | Registered: Oct 2011
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gigimac
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posted
Lymed in 2010, what kind of microscope would I get to check out my own blood? I would really like to do that. Sorry, I know it's off topic.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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Lymedin2010
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I had planned to spend $500-600 on a microscope and was looking for over two months. I happen to fall on a deal on ebay, where the offer was 2x microscopes & the bid went for $200.
I have heard from two other people that you don't need a very expensive microscope or a powerful one to see some of these bugs. Mine is a phase contrast, but I see the bacteria with or without the phase. So a regular compound microscope should do.
At first I did not see much at 40x & 100x. One month later I finally decided to get the oil for the oil immersion & finally a whole new world opened up. You need the oil for the 100x.
Make sure you get the following in a microscope: -40x & 100x (oil immersion for 100x) -That the scope has a halogen lamp & can deliver enough light, otherwise you will struggle to see.
You will also need the following: -Glass slides & cover slips -Oil immersion (I got type B) -You may want to get a diabetic kit to draw your blood. I got the Onetouch Minitouch with the Delica lancet mechanism. Set it to #5 & you have a relatively pain free way of drawing blood. -As you get better at this, then you may want to get Wright stain & Geimsa stain (for Bart viewing).
I have only done two Wright stain thus far & did not come out as well as I would like, but I will try another technique soon. I just ordered the Geimsa stain & hopefully can see Bart with this one.
I have checked my wife's blood & hers looks worst than mine. I am the sick one here. She has gotten some odd symptoms lately & I think I have a clearer picture of what is going on.
My son who had some headaches & some sharp elbow pain has clear and beautiful blood. Hopefully that means he is clear or in the early stages if we are unlucky. Still trying to get my six year old to give daddy some blood.
Posts: 2087 | From NY | Registered: Oct 2011
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bcb1200
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I'm sorry...I'm a pretty smart and educated guy..but I know that I'm not experienced enough to look at my blood and determine what is and isn't supposed to be there.
I'd be very careful with self diagnosis of your own blood under a scope...unless of course you are an experienced pathologist, microbiologist, or other doctor / phd.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Lymedin2010
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posted
I understand the hesitation, but I am sure you were not Lyme literate at one point either. You read and continued to gather information and became enlightened. Same is true with hematology & pathology, you only need to have the desire.
Self diagnosis is not really the word. It is more of trying to understand and buy clues as to what is going on, since this is so complex. Through my blood analysis I clearly confirmed my suspicions. My body temp is lowered and I felt my immunity and defenses were down. My blood and the bacteria load reflected this.
I felt that BB was a major problem for me and that it was spreading and getting worst with ABX. Again confirmed with all the free floating spirochetes and the many that were crawling out of my RBC's. Despite being on Antibiotics at the time and for months.
I have deduced that my excretion of ABX greatly increases over time, based on my personal experience and confirmed by finding free floating BB in my blood. I have consulted with my LLMD about my findings and we modified my treatment based on this. At this point I attribute lack of recovery to physiology.
If more Lymies would use a microscope, we could build a real world database of the quantitative measure of bacteria load with administration of various ABX and herbs. A tool that would be more valuable to us than any IN VITRO test or test on animals.
No one out there is willing to spend the time you can on your own blood analysis and your personal health recovery (bottom line)!
Sorry to run off the topic course, but at the same time I believe it does pertain to bacteria load in your blood.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
I had a lot of numbness and tingling and it went away when I started clindamycin. I don't feel it's a toxin thing but more of a symptom of nerve damage. With the proper treatment it should get better.
-------------------- Shelly Posts: 73 | From New Jersey | Registered: Apr 2009
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gigimac
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Thanks for the info. Lymedin2010. I am going to look into getting one!
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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janice victorov
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posted
For me , the tingling was definitely Bart. Will go away with treatment. Hang in there brad. Janice
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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The problem with alot of lab testing, especially hematologies, it all goes through an autoanalyzer, microscopy is rarely done anymore unless the autoanalyzer picks up an abnormally low or elevated WBC, abnormal RBC indices.
Years ago we used to do LE preps for Lupus, which involved manual traumatization of whole blood in a green top tube with glass beads for 30 minutes on a rocker to stimulate the autoimmine process of eating your own cells, many times I would see pathogens on the thick stained smears, cocci, spirochetes, parasitic like forms, worms, etc. Labs do not use this method anymore only the ANA and other serological methods that are deceptive. Like House (the TV show) I always say , Crush the blood, stain and LOOK under the MICROSCOPE. Wish I had one myself.
For this reason and others I do NOT believe in Lupus, only there is an infective process that causes the autoimmune reactions!
Posts: 532 | From Texas | Registered: Oct 2004
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Lymedin2010
Frequent Contributor (1K+ posts)
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posted
Incidentally, now that I am on only Amoxicillin and Probenecid, I am getting more and more hand and feet tingling and numbness. �Even started to develop a slight calf burning too as well as finger stiffness. �Something that I read others had, but not experienced until now.
I wonder if this can be Bart calling? �Amoxi should be a good drug for BB, but while treating another infection can supplant firmer ground and take over. �My LLMD was not willing to prescribe anything additional for now, so I have moved on to another LLMD.
Dal, Yes, I am aware of the auto analyzers, the result of the "time is money" driven world we now live in. �Which makes perfect economical sense, unfortunately that is why so many of us stay sick. �
I find that the more time I spend on smears, the more discoveries I make. �There is no way any one paid person or lab can spend this much time, it would not be cost effective. �I am also finding that many "healthy" people share some of the same bacteria.�
I was shocked to find parasitic worms inside my Red Blood Cells, but I have also seen them in others. �This is only the organisms that I can see, can't imagine the load with the ones we can't see due to lack of proper staining or with ones that hide in tissues. �No wonder many of us stay sick.
I see the human body in a different light now. �It's sort of a breeding ground for microbial life and our bodies are truly in a CONSTANT tug of war with these invaders. �At times it tips in their favor and we get sick.
Glad to see there is someone else who has looked and would love to exchange information with you at times.
Posts: 2087 | From NY | Registered: Oct 2011
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manybites
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posted
It is bart from my exsperince .It went away when I was in remission and came back fully force after the car accident.The IV vancomycin reduced it in hospital but did not stoped it to reproduce and in 4 months my bone shin pain and tingling are consistent.
Posts: 1379 | From disable | Registered: Aug 2011
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posted
could also be insulin. Most lyme/co have probs with it. Make sure you're taking your alph lipoic acid.
Posts: 105 | From east | Registered: Nov 2008
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