posted
Hi everyone, I'm new to this site. I have not been officially diagnosed with Lyme. I've had false negative tests come back through ELISA tests. I've spoken with many other people that have me really concerned I have Lyme. I've been to over a dozen Dr.'s in the past 7 months trying to figure out what's wrong with me. I've been dianosed with Migraine Associated Vertigo but I've never been certain that was the real problem. I have a laundry list of problems: Headaches, vertigo, neck pain, ringing of the ears, lower back pain, achy joints, insomnia, brain fog, hormonal issues. I'm 32, live in NC and have yet to find a LLMD. Any suggestions would greatly be appreciated. I truly feel like I'm dying!
Posts: 2 | From North Carolins | Registered: Dec 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Lord, you poor thing. I've been fighting this and I guess other stuff for over five years..
All to say you're getting to help quicker than a lot have...were you bitten? Lots of us don't know if and when., and now i guess it could be other than tick. Within the last few days there was a post about NC and Ins. Be careful with your words and docs... You'll see more from others
Please hang in there, it's not make believe..Hope it's a simple infection that needs extra kick.
Have you tried a 2 0r 3 week course of Doxy..
Did you feel better?
Many here know how you feel.. I hope you have family around.
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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posted
Welcome to the boards but sorry you had to find us. Iam 30 and when my symptoms started I had all the same ones and was also told I might have migraine associated vertigo.
You need to get tested through Igenex for lyme and the co-infections. I did get a positive elisa and igm western blot but was still told that its probably a false positive.
If you have any questions or if you want to connect feel free to message me
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I sent you a private message.
Posts: 4681 | Registered: Oct 2000
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I too had vertigo for some unknown reason last year. It's very scary.
I have realized that Lyme seems to be a whole lot of weird, seemingly unrelated, symptoms with no obvious cause.
In November, I had, what I call "a whole lot of weirdness" going on and felt like I must be dying because, how could a human feel so horrifically and still come out of it alive.
After seeing many, many "specialists", I saw an LLMD, just as a shot in the dark. Come to find out, I have Lyme and Brucella among other co-infections.
Make sure you watch "Under our Skin" you will find that you are not alone. Hopefully the NC members can help you find an LLMD in Seeking.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Welcome to the board. You sure are not alone as far as being misdiagnosed for years. We have all been there. It would be great if you could see an LLMD. Diagnosis is clinical because tests are not very reliable.
Often a LLMD will give you a round of antibiotics to see how you respond. With lyme, your symptoms worsen because the die off produces so many toxins it overwhelms your system. This is called a herx and usually confirms the disease.
There are many infections you can get from a tick bite and they need different medications. Babesia causes extreme fatigue, headaches and dizziness like you describe. It is a protozoa similar to malaria and requires antimalarial drugs.
I hope you can get help. I know how hard it can be when you live in a state that is not officially in the "lyme zone". Keep coming back here for support and help.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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