posted
1 more!
Posts: 147 | From youngstown | Registered: Oct 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
One more here too and I became a member.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
TC, I forwarded this to a large flock of chickens two days ago...any news on the responder count now?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
HAPPY NEW YEAR!!!!
Yes! I got an email saying they got 5,000 responses!
Amazing! I actually didn't think it could be done, but you all did it!!!
THANK YOU!!!
This compiled data will help others know what WE need to make the Lyme situation better. And after all, it is suppose to be about US, isn't it?
Thanks for making this project- a very important one- a success!
posted
Did it! Thanks for the notification. Great survey. Hopefully some changes will result! Happy New Year everyone.
Posts: 136 | From North Carolina | Registered: Apr 2007
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posted
Completed!
Posts: 84 | From New Jersey | Registered: Aug 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Great! You all made this survey a success in many ways. Thank you!
Here is the official update.
``````````````````````````````````````````
LYMEPOLICYWONK: And, the Number Is?
5,200 Responses!
IDSA Guidelines and Patient Preference Survey
Let me thank everyone who responded to the Patient Preferences Survey!
We have drawn over 5,200 responses, which is just simply fabulous. We will now start the process of reviewing the responses with an eye toward publication of the results.
Our last survey was published in Health Policy, a widely respected peer reviewed journal. Those results now help inform the base of knowledge of the access to care problems that Lyme patients face.
Our goal with these surveys is to open the space for conversations in the public health arena about what is really going on with Lyme patients from their perspective.
We are trying to give voice to the patient community, which is all to often completely ignored in conversations about Lyme disease.
Your willingness to participate in these surveys allows us to do that. So hats off to you for being so vocal and letting us know your views.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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