Topic: New Chairs at work smell and my chest is heavy/wheezy
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
What can I do/take to help not react every time I come to work until these darn things off-gas. Ugh. We just got the new chairs today and I am not happy. Can't say anything more to my boss and co-workers.... they already try hard to not use chemicals or any perfumes, etc. etc. I'm sure they think I'm nuts, but they have been as understanding as is reasonable. We needed new chairs. The old chairs were falling apart and everyone is happy with these. So they will be staying.
I wish I wasn't so sensitive.
Suggestions?
Thanks.
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Keebler
Honored Contributor (25K+ posts)
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posted
- Tammy,
I'm sorry for the intensity and the sensitivity around the communication as much as the chemical exposure.
First, speaking just in facts and from my own experience with a desk chair I bought.
For someone with MCS who is reacting, you simply have to avoid being in the same room - or keep a distance if in open office.
I know that is not the answer you want but it is a fact. Someone with MCS simply cannot have continued exposure to chemicals that trigger their symptoms.
I've had an eco-friendly carpet steamer company steam the fabric of the chair I got. I washed and washed the wood parts . . . put out in the dry summer sun on my deck to bake, to air out . . . for days and weeks.
NOTHING WORKED. Oh, it helped some, but the foam in the chair off-gases, the kind of wood stain, the fabric itself is coated with chemical flame retardants, also keep on giving, so to speak.
To steam the chairs (if there is fabric/foam) can also bring out more chemicals so if that is done, you'd not want to be around.
I know it's hard but please just don't even allow into your mind thoughts like others think you are deficient, etc. But I know it sure feels terrible when everyone else is just fine with them, even like or appreciate them, and you
want and need to play this cool with coworkers and your bosses.
It's a terrible position to be in. However, if you go to HR and declare a disability, MCS, you might be able to find some way to manage this.
Can your work station be moved and you have a MCS-safe chair?
Can you consult with an attorney who specializes in ADA -- uh, all the words just left my brain.
back later. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- People as several of these sites can help. I hope you can call them: ----------------------------------
Identifying Environmental Illness and Mold Exposure in Patients with Persistent Lyme Disease.
Lisa L. Nagy, MD Video $15.
(She is NOT A LLMD, however, she understands the kind of toxicity issues faced by many with lyme. She did not have lyme but overcame very serious MCS. She spoke at the recent ILADS conference.
It's a great presentation to see. The DVD can be ordered. Great detail about toxicity issues also here:
Her Web Site -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What I suggest for your first line of defense:
Drink 1/2 cup of CARROT JUICE every hour or other shot of beta carotene. A few nuts with this will help give you some good fats and protein, to balance blood glucose.
Spirulina - this green powder, with its high beta carotene contents, can help keep porphryin levels lower. But, it's not magic and can't negate all effects of continual toxic exposure.
I thought that link was in the Porphyria thread but I can't find it just now - and I can't find it my jumbled files on my computer. Organization is not my forte.
Still, I KNOW this. I will try to find that/those links to explain. If you get some, just ease up as it can be a little excitatory if too much is taken.
Also be sure to keep your carbohydrate level stable. You may need more. See the detail in the "Secondary Porphyria" article.
Now, we don't have to eat exactly as they may suggest. Still, carbs are required (sometimes, even glucose directly) but be sure to NOT go low carb as that can increase porphyrins to danger levels for someone with MCS. All this is explained over there.
If you can, lemon essential oil, just sniffing the aroma, can help the brain deal with a sudden rush of chemicals.
Perhaps, a special VOC air filter for your work station?
NEURONTIN? I've tried several times to tolerate even a low dose of this and just can't on so many levels.
However, there have been some successful reversals of MCS with high dose Neurontin (Gabapentin). It's really more complex than that, however, it's just something to consider while you do all the other things you can.
In theory, since Gabapentin is metabolized mostly by the kidneys, it is considered "safe" in porphyria (and all MCS patients need to follow that list, even if not officially dx porphyria).
As it's an anti-seizure drug, in it's role to calm down the brain, it can go overboard.
It can cause drowsiness, muscle weakness, vertigo, depression, and (sigh) even bladder weakness, BUT apparently not for everyone. If you do consider it, start on a weekend when you don't have to work or drive. Start slow and low.
Somewhere, in medical abstracts, you should be able to find the details of how MCS was literally reversed for some. That would have been over 12 years ago and I've not studied it since.
SWEAT as best you safely can (away from work, he-he!). Lots of "detox" detail in at the NAGY site.
I know how sickening it can be to be around toxic furniture. I hope you can find a way to keep your area safe and also be at peace with yourself about all this. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- I just remembered that set of links is the same as posted the other day regarding your house re-do.
I do hope someone can help you with the ADA thing.
You may have to formally declare a disability - not lyme - but MCS. If formally declared with the Human Resource office, your job is protected to a degree as long the work still gets done.
But you'd have the support of reasonable accommodation. You would not be the first to do this, believe me. Contact some people at those links for details.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- I found it. Seems I�ve messed up my files so on my computer that I�ve taken to sending myself emails of certain articles for safe-keeping.
While Spirulina here is used for Porphyria cutanea tarda, that may not be the same kind of porphyria that affects those with MCS but the theory is the same: It helps lower porphyrin levels. ---------------------------------
Porphyria cutanea tarda responding to spirulina - 1992
A male patient of porphyria cutanea tarda responded to oral spirulina - an alga rich in beta - carotene.
The beta - carotene in the spirulina quenches the singlet oxygen which is responsible for the tissue damage in porphyria-associated photosensitivity.
=======================================
STINGING NETTLE may also help your lung reactions. It can lessen the cytokine storm.
But, it's the neuro-cognitive effects that are also so disabling with MCS, not just the outward apparent physical reactions. So, be kind to yourself about all this.
Now, here's what I hope can happen if you declare MCS disability with HR.
They will realize that you may be the first but you will not be the last person to be somewhere on the MCS spectrum - either there at work or in their families.
You could help them become more aware and that, in turn, can help others be in the most healthful environment possible. This WILL save the company money in the long run. It will help employees at all levels.
You could become the liason of sorts, connecting them with experts. THAT, I would hope, would put you in good standing if they are smart. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Chlorella vs. Spirulina -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Tammy,
I assumed that the chairs clobber because of foam, fabric treatments, wood, varnishes, etc.
However, if the chairs are from various kinds of plastic, that might off-gas faster but still rough for a couple weeks.
Maybe one that is petroleum based would work if it's a floor model and not right out of the box and a mesh style would eliminate the need for cushions.
A METAL chair can be the perfect solution. Usually they are "powder coated" but the color/paint has been factory dipped and dried at very hot temperatures, so there should be no smell, at least not after airing out a bit. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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mojo
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Will a little air purifier by your desk work? I feel for you! That would make me crazy!
Posts: 1761 | From USA | Registered: May 2006
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Thank you for such thoughtful replies. Really. Very much appreciated.
Keebler, your knowledge on these topics is so incredibly helpful. And the time you have taken to share this info is gratefully received. I know next to nothing about Porphyria, except it has been on "my list" of things to learn about. Thanks for the great suggestions above.
Unfortunately, I cannot tolerate chlorella because I am reactive the the sulphur. I use to tolerate it just fine, but my threshold has recently lowered. I can try the spirulina again, but I think that also has sulphur. I did take betonite clay when I got home tonight.
Unfortunately, I do not sweat (or very rarely) because of my ongoing issue with dehydration. Anti-diuretic hormone has not done much at all to help with this. I will discuss with my doc next week during a phone consult.
I am very interested in reading up on the info supplied above..... porphyria.... and neurontin - the thought of possibly reversing MCS would be amazingly wonderful. It gave me a much-appreciated glimpse of a possible hope to get over this.
I've been very busy with not enough time lately to devote on reading and researching.
Regarding my job -- it's a small business. I work at a high-end tile showroom 3 days a week. I love my job, work with wonderful people, love my clients and really enjoy creating beautiful spaces with beautiful tile. It's really ideal for me on so many levels. On a really good note, I have to tell you I sent a text message to my boss about the chairs, asking if I could research less toxic options and that I would even return these and contribute money if replacements would be more costly..... I was worried she wouldn't "get it" or that she would be tired to hear something like this. Not at all. She was wonderful... said not to worry and we will find new chairs. Couldn't have been nicer. As far-fetched as my situation seems, she never has drawn a line or gone out of her way to make me feel like I'm weird. But still, I always worry about how things may be perceived with my oddities, but so far everything has been met with kindness. (It's terrible to always feel like the oddball isn't it... always worried what others may think....)
I think I am going to also buy an air purifier for work, as suggested. The air is not ideal (yucky basement, etc.) and it could only help. Great, another expense. But it will be worth it. (Suggestions on brands/models?? For my home, I plan to purchase the Austin Air Healthmate. Maybe I can get something less costly for my desk area at work.)
Thanks again, friends, for the suggestions and support.
Have a good night:)
Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
Hello Tammy, it appears that Vitamin C also has an antihistamine effect. (Nandi et al., 1974; Johnston et al., 1992) So taking at least 6 grams per day might help you to have less symptoms.
-------------------- "They that are whole have no need for the physician, but they that are sick: I came not to call the righteous but sinners to repentance"(Mark 2.17) Posts: 149 | From Amsterdam | Registered: Jul 2011
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Started upping the Vit. C today. Thanks.
Posts: 2238 | From East Coast | Registered: Jul 2010
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tick battler
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Member # 21113
posted
Tammy or Keebler - have you found any companies that sell reasonably priced organic furniture? We need a new couch and I want to go organic this time around.
Thanks, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
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Hi tick battler -- I've been thinking of you! Hope you are doing okay. You are in my prayers.
No, haven't found furniture companies yet.... but I've been poking around and want to verify things more before moving forward. First, I plan to get a good, chem-free, organic mattress. I'm going to take a trip out to White Lotus in Whitehouse Station, NJ (hopefully soon, but who knows when... have been sooo busy). I've heard good things about them. When there, I'm going to pick their brains about furniture companies. I'll let you know what I find out. And if I forget to get back to you, please reach out again.
Best, Tammy
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linky123
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posted
Do you have a fir sauna?
They are quite helpful in pulling the toxins out of us and improve MCS sensitivity.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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linky123
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Do you have a fir sauna?
They are quite helpful in pulling the toxins out of us and improve MCS.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
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posted
- reasonably priced organic furniture? -
Most furniture is pretty much out of my price range, but I have one "cast aluminum" patio table that works very well. No reaction at all.
Metal framed chairs, etc. can work very well for dining, desk, and even for living room, with the right cushions.
You might try IKEA for some things but I've noticed more used of pressed wood products as I've been looking for a desk or coffee table.
Their lacquers are supposed to be better but I'd check with their policy first in case of changes.
Also, if possible buy in Springtime, so you can have fresh air all through the house for a few months.
I got a couch from a friend's parents who were moving. It was hand built in '68 before they used all the chemicals on fabrics. A bright cotton quilt looks great on it, like cabin furniture.
VERY careful shopping through Craig's list helped me find two well aired Ekornes Stressless for a much reduced price. I've had them 3 years now and they were the best purchase I've ever made.
I also got one new Ekornes chair that had been a floor model, so half price. I had not trouble with any odors - partly as it'd been a floor model but also Ekornes (from one of the Scandinavian countries) just does not use the same kind of chemicals that the U.S. or China do.
It being leather also may have decreased the need for the usual other chemicals that literally glue and fireproof most other upholstery fabrics.
I also have various items transferred from friends or neighbors.
Bookcases: I got from a "natural furniture" store - real solid wood, no treatment at all. Not pine. I think it's "rubber wood" but it's totally non-reactive for me.
With used furniture now, you have to be careful of bedbugs as well as for chemicals and smoke. But you may get lucky. At least give Craigs list a look for solid stuff.
A used solid wood framed couch could then get all new pillows that you'd make yourself, with some ergonomic guidance. If you make your own wood framed couch or chairs be sure to get wood that will not react and be sure it will be of proper proportions for the spine.
I tried this long ago and the angle was all wrong.
You'd have to get foam that had been aired out for a long time but that is possible, as are finding fabrics with no chemical treatments. Cotton quilt fabric is the most likely to work but you'd want no telfon-like stuff on it.
Contact the CIIN group and other similar sites for other ideas. -
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Keebler
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- Glass coffee table or end tables, with metal base. But, be aware that when others set down a glass or mug, it can be a loud startle.
And, consider the glare if there is a nearby window or lamp.
Many with lyme can't handle glare - or sudden sharp sounds. But a nice piece of fabric or other textile can solve both of those problems. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
That's great that your boss has agreed to get new chairs.
I am successfully detoxing from MCS with FIR sauna sweats - every 5 days for me. Took 6 months for smells to stop bothering me so much.
It was a sudden change, and my doctor explained I had just gotten the toxin level down below a certain threshold.
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tick battler
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thanks for the info Keebler! tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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