2005 or before is when I found a tick attached leaving a target mark small welted when removed.
2009 I began having light sensory issues. Later in the year I was diagnosed with Lyme Disease.
2010 diagnosed with Vertigo
2011 diagnosed with Vertigo and Petit Mal Seizures
2012 still have sensory issues and unable to work.
Sensory Issues include visual, hearing and motion. Light, contrast of light, bright colors, contrast of colors, certain sound tones, motion within a certain range, objects of balance or dividing cause dizziness and confusion and/or a headache.
Sometimes I feel drunk without drinking, off balance, I tend to fall to the right side, forget my personal information like my name and/or have a hard time signing my name.
E.N.T says it is not vertigo, Neurologist says it is not petit mal seizures for seizures are not triggered. I do not know what to do or where to turn for answers.
Being an unemployed single parent who has to stop driving is making life very complicated.
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Posts: 5 | From Sevierville, TN | Registered: Jan 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry you are having difficulties.
All that you describe is common with lyme, but also with certain deficiencies. This thread covers a lot of territory that you may find helpful:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I started having sensory issues this past spring.
I even began Sensory Integration OT and Vision Therapy because the "Drs" who were treating me for, what they thought was, Anxiety, thought I had Sensory Processing Disorder.
I even needed tinted glasses indoors. Like you I developed vertigo and balance issues.
Come to find out, it was all due to infection (Lyme, Brucella and friends) that was in my nervous system.
I hope your are seeing an LLMD.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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posted
Are you still in treatment for the Lyme? No, every doctor I have seen until now does believe it could be from the Lyme.
Have you ever been tested or treated for coinfections -- especially babesia? No, this is why I am researching so I can fight for myself and find a LLMD in my area.
Thank You
Posts: 5 | From Sevierville, TN | Registered: Jan 2012
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Do your ears ring by any chance?
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Yes my ears ring, hear crickets, a swishing sound like a strong wind blowing back and forth, a fluttering sensation and ear pain.
Posts: 5 | From Sevierville, TN | Registered: Jan 2012
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
So why hasn't your Neuro treated you for Meniere's?
The standard treatment is 2mg Valium twice a day.
Disabling dizziness was the symptom that brought me to a crash in 2003. One of the several Neuro's I saw put me on this treatment (god bless that man) and it was a lifesaver.
While not everything works for everyone, this might be worth a shot. You could also try meclizine (which is dramamine) and you can get it over the counter.
They both work by turning off the middle ear, which is either inflamed or irritated from the ringing, and allows you to balance yourself. Meclizine's effects are short lived, so it requires more frequent dosing.
But the best treatment of all is treating the Lyme and any of the other 'co-infections' you could be harboring. Such as Bartonella (I had this), or Babesia, or Erlichiosis, or Mycoplasma... Lots to read about here. Hope this helps!
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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I take 5mg Valium once at bedtime and have tried meclizine yet is has not helped. I could break the Valium in half try it twice a day to see if it helps. I will also follow the link for more info as able.
The VEDA link really described what I experience.
Thank You to all and Bless you
Posts: 5 | From Sevierville, TN | Registered: Jan 2012
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