Topic: IDSA- Trying to pass off old guidelines as "new"
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
The toads are hopping all around AGAIN in their murky water, trying to prevent you from having a decent set of treatment guidelines to follow.
How would you like 5 more years of their garbage?
``````````````````````````````````````````
LYMEPOLICYWONK: Congressmen Call For Removal of Outdated IDSA Guidelines from National Guideline Clearinghouse
21 Jan
On January 17, 2012, Congressmen Smith, Wolf, and Gibson called on the National Guidelines Clearinghouse (NGC) to remove the IDSA�s outdated Lyme guidelines.
We applaud them! But, this, of course, is the middle of the story not the beginning, so let�s go back.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Oh, and thanks, especially to Lymedisease.org (formerly CALDA), LDA and the other groups for continuing their work behind the scenes to try to help all of us!
posted
Hey, just wanted to let you know there's a huge response on facebook - people are tearing up the keys there about what they want from the IDSA, the IDSA is erasing posts, posts are being saved at another site - ha -
Go Niners!
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Thanks for the info Tincup!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Tincup,
This was posted just last night. Bet many have not even seen it yet.
Just because there are no replies does not mean your post is not well appreciated and read.
It's a lot of work to even form a sentence.
So often, I just don't have the energy to reply - or my hands won't work. My guess is that many read but are unable to post a "thanks" for the detail. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
I am so glad to hear some folks are paying attention. Thank you!
This is another attack on all of us and a disgrace to boot. People should be outraged!
I can't imagine anyone with Lyme not being blown away by the fact the IDSA wants to keep HORRIBLE, OUTDATED, LEGALLY CHALLENGED treatment guidelines out there to continue to be used against patients and for the benefit of insurers and themselves.
I can't believe the toads are that stupid that they would think they could get away with kicking us in the head again, and so all-fired full of themselves they think they are above the rules.
I still can't believe they can sleep at night watching so many lives being destroyed, but then I guess I just expect for people to automatically have good hearts and good work ethics and do things to help others, not harm them.
I've had time to get over the initial shock cause this problem has been worked on for months now. But I would think others would be seething over the news and posting up a storm.
I guess, to be honest, I still am seething! Can't help it when the toads are so stinking crur-A-zy!
posted
Check out the new Burton Waisbren Lyme book - by one of the Founders of the IDSA, and he says chronic Lyme is real! A great weapon against the IDSA in general, I think.
Posts: 641 | From Nevada | Registered: May 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[lol]](graemlins/lol.gif)
Printer-friendly view of this topic