posted
Since i have a lot of cns symptoms regarding my arms and legs i want my doc to check if my spinal cord has been damaged by lyme.
Whats the best way? Mri, ct, spect or something else?
Generally i' d prefer if no contrast agent needs to ne injected cos im so sensitive to all meds.
Posts: 214 | From Home | Registered: Apr 2011
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Keebler
Honored Contributor (25K+ posts)
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posted
- Ask your LLMD. It's ALWAYS best to have your LLMDs thoughts, wisdom, guidance on any imaging that may or may not be needed.
By REALLY TALKING TO YOU - and examining you - your LLMD should be able to find out a great deal. Patients' experiences and symptoms often tell a good doctor more than tests.
A lot may be able to be explained without expensive, exhausting tests that probably will not show anything to the eye untrained about the complexities of lyme.
This is where the eyes, ears, mind and experience of your LLMD can shine light.
Also keep in mind that MRIs can really damage hearing, even if the MRI-safe protective ear muffs are worn, a lot of very intense vibration goes through the bones and the nasal passages and can damage ears -
- but it may not show up for quite some time (or it may be immediate with increased tinnitus and hyperacusis).
The intense vibration of an MRI can also really clobber adrenal function and send the caustic stress hormone, cortisol, sky high.
In addition, spirochetes HATE vibration. The will burrow deeper and go into their protective cyst form so, IMO, I think an MRI just has too many detrimental aspects unless absolutely necessary.
If so, be sure the facility has the special MRI-safe ear muffs with a strong decibel rating AND also wear ear plugs. Take adrenal support and also liver support so that any herx from the stress of the event can be mitigated.
CT scan, PET or SPECTs, are not generally loud, as long as the generator for the machine is NOT in the same room. This should be confirmed prior to scheduling for anyone with hyperacusis. [I got a terrible surprise that way, "Who would've thought?" - well, not me.]
If you use any contrasting agent, be sure to do kidney support prior during and afterward (but you'd need expert opinion on that so that it would not affect the proper dosing of the IV contrasting agent during the test).
[since I edited in that last bit this jumps but, oh, well]
And, even to those eyes that have been trained, there is a lot that just does not show on any test.
However, if your LLMD thinks some kind of image test is warranted, he/she will know the best way to order that (sometimes there are very specific instructions) -
- and, hopefully, your LLMD can send you to a facility that knows what they are doing both regarding the administration of test and the interpretation of it. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- A good assessment by someone trained in CRANIAL-SACRAL THERAPY would be good thing before any imaging is ordered. But ONLY if they do a gentle technique as any sudden twisting of the neck can be very bad for those with neurolyme.
----------------------- FOR BODY WORK - assessment &/or therapy -----------------------
. . . Visceral Manipulation (VM) is a gentle hands-on therapy that works through the body�s visceral system (the heart, liver, intestines and other internal organs) to locate and alleviate these abnormal points of tension throughout the body.
JOHN F. BARNES, P.T. is one of the top experts on myofascial release. After a surgery, this can help reduce � or soften - adhesions that typically occur.
. . . Sarah is a woman in mid-life with two grown children. After a disabling bout with Lyme disease, she felt that her feet �refused to follow orders.�
Her gait was disturbed and simple tasks became hazardous. One evening she broke her ankle as she walked across her bedroom! Now her determination to stay mobile was burdened by more pain and weakness.
At this point, Sarah�s massage therapist sent her to me for Functional Integration lessons. She made immediate and rapid progress; her feet found their way; and her gait became stable and fluid.
**** �In the aftermath of Lyme disease, ****
Feldenkrais� lessons contributed to my entire sense of well-being. The movements improved my fine motor skills. Also, because I was walking all wrong, it tired me out.
I knew I was walking incorrectly, but I didn�t know how to correct the problem�now that I�m walking better, I have more stamina,� she explains. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Complementary support - if you choose to have any contrast agent used - your LLMD may be versed in support methods but, if not: --------------
N.D. (Naturopathic Doctor) and those of similar education regarding nutritional and herbal supplements. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Thanks to HALEY for bringing this to our attention.
MYELIN SHEATH & MITOCHONDRIA SUPPORT discussed here:
Repair Damaged Mitochondria and Reduce Fatigue Up to 45%
- by Karen Lee Richards, August 6, 2010 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Promise I'm done now but, before you tear into all those links,
Have you been assessed for heavy metals?
are you taking Magnesium, B-Vitamins, Fish Oil and other cellular support?
That is detailed in the ND thread and especially in Dr. Wahls book.
I recently got the book and the support methods she highlights are also excellent and jive with lyme support treatment. Lyme is not discussed in the book.
There are a couple things she did that may not be so good for many lyme patients (or would first need a LLMD's guidance) but, still, this is an extremely valuable book for anyone with any kind of neurological condition. -
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