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» LymeNet Flash » Questions and Discussion » Medical Questions » How many have actually gotten better by doing KPU, chelation, methylation?

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Author Topic: How many have actually gotten better by doing KPU, chelation, methylation?
sparkle7
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I was reading some stuff on the internet about these topics...

Some people go into all the details about their complicated treatments - methylation, chelation, HPU/KPU, various forms of "testing"...

There treatments are complicated & expensive. Not many doctors really know how to to them or even have ever heard of them. You have to seek out specialized doctors who know what they are doing in order to try them.

I'm just wondering - how many people have actually improved by doing these things?

I have seen people who said they had fillings removed & did various treatments that were time consuming & complicated & they were still ill.

It's great that some doctors are trying out new things & trying to help people but I'm just wondering if it really does work.

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jackie51
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I have a friend who had all the mercury removed and did chelation. He received no benefits that he could determine.

Then, there are those who get one tooth removed and exhibit a renewed awakening.

I thought the biological dentist that I saw was a freak, to put it lightly. I did not have him do any work. Not to say there aren't some good ones out there.

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GiGi
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There is no such thing as chelation. That is
Reminder #1. Toxic metals cannot be chelated. Chelation is a misnomer, per Dr. K. It takes several agents to mobilize and finally to remove it totally out of the body.

People who suffer from the Lyme-induced or inherited KPU/HPU do not have the necessary zinc plus others on board to do that job. We cannot engage minerals and move them out of the body without Zinc. Zinc and a few other agents have to be replaced before you can be successful in removing the metals from the system.

Metals are deposited in different compartments of the body, each possibly causing a different symptom or all symptoms. If the hormone producing glands are hampered by heavy metals, nothing in the body will work well. And adding hormones is not correcting the error and often making things worse. If you want to detox, you have got to have minerals, etc. Some of the good minerals attract some of the bad (toxic) minerals, but only if they are available to do the job. The whole mineral balance gets out of whack, when the body is trying hard to help itself. It doesn't work. It needs the mineral replacement until the underlying problems can be fixed.

Not many physicians are familiar or have never heard of KPU, or have never learned to diagnose/lab test it. My husband had the test done about ten years ago done by Pfeifer in Chicago with neg results. Wrong. He had it all along and not until Dr. K. dug into the whole situation deeper and developed a treatment for it was my husband able to start detoxing metals.
By that time enough damage had been done and we know that infections are difficult to eradicate if the body is full of toxic metals. They definitely affect every single function of the body.

If you test for KPU and have a chronic disease, it is impossible to get well without correcting the lacking mineral/enzyme balance created by the KPU condition. You will have to find out if you have the problem or if you don't. We cannot detox without these missing minerals. Look up CORE and see what the ingredients are.

KPU has been treated in Europe a lot longer than here. There are labs and practitioners that are easy to find who do the testing and support the treatment. When I ordered my first test kit in Europe, the FDA confiscated it! I could never get the test done in Europe.

We have a terribly strong pharma influence and they will certainly never tell you that you are peeing out your zinc. This is what you do when KPU is one of your problems.

If you cannot get rid of the contaminated terrain in your body by getting rid of the metals (which has to begin with treating parasites because they are hanging on to the metals in their coat), getting rid of and avoiding new infections is not possible. The more toxic you are, the easier it is for pathogens to hang out.

We have been talking about this on this board for several years. People choose to ignore it and are then surprised when they still have problems, and often get worse.

I did not have KPU and needed no treatment for it.
I am alive and well feeling better than ever.

My beloved husband had KPU, it was treated, but very late, and he is dead now.

Look up how many cents it costs to take the supplements to help yourself if you fall into the KPU category as 80% (per Dr.K. ) of all Lymies do.

Only then - once you have taken care of the KPU problem and keep it going - will you be able to detox metals without horrible crashes and failure to detox at all. I know that many of what people on LN call "herxes" are caused by recirculated toxic metals that can't find their way out of the body because of lacking zinc/KPU. Remember zinc alone will not take care of KPU - it takes the other factors as contained in CORE. You can put the daily intake together yourself, and you will spend a nickel more. But you will be way ahead if you spend the nickel rather than ignoring the fact that KPU is a huge holdup.

KPU is not a lifelong problem, but if you have a chronic disease it is a big handicap.

http://www.klinghardtacademy.com/images/stories/powerpoints/hpu%202009.pdf

Take care.

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surprise
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Well, I have some online friends that have treated for KPU, and their child had a turnaround, and other parents are in the process of doing it, too, after positive testing.

When daughter and I started to treat, I wanted straightforward, standard treatment.

Didn't turn out that way. Were tested for HLA genes, have the 'dreaded', we had to deal with mold, NOT what I wanted to do.

Also, the methalaytion cycle, if impaired, can cause a rife of issues, again with not detoxing.
We have that issue, too.

So, much to my dismay, because I am impatient and worn out, I do have to believe if we don't fix these impairments, the body cannot take over properly.

I personally don't think we have KPU, we do not fit the profile, and have been supplementing the KPU vitamins and minerals for years, anyway, trying to heal a leaky gut and improve nutritional status.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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sparkle7
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Thank you for your heartfelt answers. It's a big decision about all of this & it has to be done in steps.

I have read about mixed results on the net regarding all of these protocols. Some do well & other don't. So, it's a big decision. It's not a bad thing to do them but doing it without alot of guidance can make one ill. This is why I'm hesitant. I don't have alot of money to spend & I don't want to make myself ill by doing it on my own.

I think the first step is to have the silver fillings out. I read it can take 9 months for it to heal before you can start mobilizing the mercury. Does anyone know if this is true?

The other thing some people have mentioned is that why can't you move the metals before you get the fillings replaced? It's already there... Some have replied that the mercury is close to the brain if it's in the teeth & you don't want to pull it out from the fillings if they are still in your head.

Any thoughts about this would be appreciated.

Anyway- I realize that these are very different things - KPU, chelation, & methylation. It's just that they are all very complex & they don't have alot of scientific proof that they actually work.

I guess I feel better with herbs since there's 2000+ years of evidence that they can work or be effective & not harmful. The illnesses that we face these days are very different from what people were dealing with 100s of years ago, though.

I came across a simplified protocol for methalyation here:

(if anyone is interested)

http://forums.phoenixrising.me/showthread.php?10817-Simplified-Methylation-Protocol-Revised-as-of-Today

I guess every journey starts with the first step.

Thanks, GiGi, for all your wisdom. I appreciate what you said on another thread about feeling better now at 80 than when you were 40 (I think it was). I'm 50 so I guess I don't have to be in a mad dash to try to get well.

Please keep posting your experiences everyone.

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Razzle
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IMHO, the simplified methylation protocol is dangerous to use if one does not know their specific mix of genomic variants.

Treating someone with high dose strong methylation support if they are an over-methylator to begin with, may result in some significant problems.

It's all about balance, and finding out what specific issues and things each individual needs for their own successful journey back to wellness. No one-size-fits-all will ever work for everyone.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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sparkle7
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Yes, it's complicated. Not many doctors even deal with this sort of treatment, as far as I know. If they do, I'm sure it's expensive. This is why some people try to do it on their own. The simple methylation protocol says to go slow & gradully ramp up the dosages.

Razzle, did this help you?

I'm trying to get a concensus of which things are helpful. When I look into these things via what people who try them post on the net, I see alot of mixed results.

Over the course of my illness - I have tried alot of things. It's difficult because I have gotten my hopes up that something will work & it doesn't in many cases. It's hard to waste the time, energy, money, faith & hope on these things & get negligable results.

At this point, I do small things to see if these things will work before going all out. There must be small indications that something is the right direction on a personal basis.

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nonna05
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WHAT is Methylation???????????
Can a willing Regular Internist do test for this KPU?????

What are good sources of Zinc, or does it have to be med. grade???????

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Razzle
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Methylation testing opened my eyes to why I could not tolerate sulfur. Compensating for that via the protocol is challenging because the very supplements recommended by Dr. Yasko contain sulfur, and I am unable to take her specific recommended products.

Things she recommends that I have been able to find alternative products and bulk herbs do help - molybdenum, B12, nettles, GABA, and a low dose daily multi-vitamin.

I could not even take the multivitamin (not even 1/4 tablet) before I got on the molybdenum and B12. So yes, very helpful...though it is tough when my stomach revolts against food (Lyme/Bart flares or herxes) and then I can't take my pills...

Nonna:

Methylation is one of the major detox enzyme pathways in the liver.

Yes, any willing physician can order tests for KPU - make sure they are using Dr. K's preferred lab and interpretation though, otherwise you may not get accurate results.

"Food sources [of zinc]

Shellfish, beef, and other red meats are rich sources of zinc. Nuts and legumes are relatively good plant sources of zinc.

Zinc bioavailability (the fraction of zinc retained and used by the body) is relatively high in meat, eggs, and seafood because of the relative absence of compounds that inhibit zinc absorption and the presence of certain amino acids (cysteine and methionine) that improve zinc absorption.

The zinc in whole grain products and plant proteins is less bioavailable due to their relatively high content of phytic acid, a compound that inhibits zinc absorption (5).

The enzymatic action of yeast reduces the level of phytic acid in foods. Therefore, leavened whole grain breads have more bioavailable zinc than unleavened whole grain breads.

Recently, national dietary surveys in the U.S. estimated that the average dietary zinc intake was 9 mg/day for adult women and 13 mg/day for adult men (4). The zinc content of some relatively zinc-rich foods is listed in milligrams (mg) in the table below.

For more information on the nutrient content of specific foods, search the USDA food composition database [ http://www.nal.usda.gov/fnic/foodcomp/search/ ]."

--from http://lpi.oregonstate.edu/infocenter/minerals/zinc/

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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annxyzz
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So what nutrients do you supplement for KPU?
Is it niacin and zinc ? Exactly how much?

--------------------
annxyzz

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sparkle7
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KPU info- fyi

http://andreannarainville.com/klinghardt_docs/KPUHPUStatement.pdf

Statement Concerning KPU/HPU

Dr. K believes that the KPU/HPU issue is a significant one, hence he has explored and used various treatments for the condition. He believes that a combination of zinc, manganese, vitamin B6 and certain other constituents is for many patients an effective combination based on his own clinical experience and also based on what he has gathered from its use in Europe.

Dr. K also believes that if someone is proceeding without a practitioner to undertake a KPU/HPU protocol of any kind, caution must be exercised. Generally it is better to start slowly and at low doses in order to determine what is tolerable. It may be that large doses, particularly of zinc, may be required to remedy deep mineral deficiencies.

In the presence of large doses, however, one must be aware of possible toxicity, for example in context of the zinc/copper balance. And there may be specific conditions, such as Parkinson's disease and its possible relationship to manganese, that deserve cautious application of KPU/HPU protocols.

Dr. K believes in the basic chemistry underlying mineral supplementation to treat KPU/HPU but the key point is caution should be the rule.

---

http://andreannarainville.com/pdf/KPU.pdf

KPU (krypto-pyrole-uria) protocol

Zinc Picolinate- 150-200 mg per day
Manganese - 10-25 mg per day
P-5-P/ or B6 (depending on how they test) - 50 mg per day Biotin - 10 mg per day
Evening Primrose Oil - 3 caps per day

Detox support: test to determine which is best (Detoxamin/ DMSA/ DMPS/ OSR/ Micro silica/ etc); often a combination of these is used simultaneously.

The above list is the core of the program, but the following things are tested to determine additional support necessary for each individual:

Chromium 454 - 1 cap with each meal Copper - 2 mg per day Vitamin E - at least 400iu/day mixed tocopherols

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sparkle7
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Razzle- did you do the Detoxigenomics test? Did you find out about sulfur through the test?

What were your symptoms of the sulfur issue - if you don't mind sharing...?

How do you feel now? Has this information helped you health?

Thanks.

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canefan17
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The Core has only 40mg of Zinc per serving
I wonder why so low when I've seen people say you need 100-200mg to treat KPU

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GiGi
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There is a difference between Elemental Zinc and Zinc Picolinate. Google to understand the difference or go back to some older threads here where people argued for days about the differences. CORE has been tried and tested and the other ingredients already in it are very necessary.

The average dose is 4 CORE a day; some take less, some take more. Energetic testing determines.

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BackinStOlaf
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This thread makes me so dizzy. I do not understand it at all *sigh*

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

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sparkle7
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Sorry, Olaf... It takes time to study these things & wrap one's brain around it. I'll try to post consise "Cliff notes" definations when I get a chance. It's pretty complicated stuff. Don't feel bad.
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sparkle7
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Here's some info about KPU, mercury toxicity & chelation -

http://betterhealthguy.com/joomla/images/stories/PDF/kpu_klinghardt_explore_18-6.pdf

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BackinStOlaf
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I am about to start chelation with Andy Cuttler's protocol. Are we saying that I will make no progress bc "there is no such thing as chelation"?

For some reason I can't see that link- I will try to check again on another computer.

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

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sparkle7
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Here's something about chelation on wikipedia -

http://en.wikipedia.org/wiki/Chelation_therapy

It's pretty biased towards the regular medical view of chelation.

This website has a huge amount of info - so, it might be more confusing. It's quite informative, though -

http://www.medicalinsider.com/toxicity3.html

----

I guess what I would like to know is if people find going through these protocols to be helpful in th long run.

On Better Health Guy's website - blog, he says it was useful but not a cure all to do the KPU protocol (paraphrasing). So, why bother with such extreme measurs if they are not hugely helpful?

These things seem rather difficult to go through with a slim chance that they will make one feel significantly better. I usually read that - "oh, my friend's kids got better" or someone got better but then I read of alot of people who go through misery doing these things & don't get all that much better, too.

I haven't been getting alot of response on this thread that people have gotten significantly better by doing these protocols... It just makes me wonder as to why bother...

I'm kind of playing "devil's advocate" here. I sure wish I never had exposure to metals but I can't go back in time & change it. We all are living through some toxic times now.

We have to do something... There are milder chelation programs. I don't know about KPU or methylation - if there are easier ways to accomplish the same results. I could add in the Shoemaker mold protocol, as well, to this list of complicated protocols...

Please keep posting if you have had good or bad results with these things.

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GiGi
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KPU correction alone does not cure Lyme Disease/co-infections.

It reduces the toxic body burden which is necessary for any chance to eradicate the infections. Cleanup has to be done before and during everything else. Babuschka Principle - see my post under that name.

As long as you hold on to the environmental toxins, the mercury, the lead, the cadmium, the arsenic, etc., you will have to deal with fungi and the constant irritation and neurotoxin producer of fungi.

See my recent post talking about the Four Steps to heal Lyme.

First you have to remove the fillings from the body. One amalgam filling alone can wipe one person out while the next person can live happily with the average 8. But if you are sick already, chances are the mercury is a big contributor to ongoing problems, and the longer you wait, the harder it is to repair the system.

KPU is inherited and/or Lyme induced. The longer you walk around with Lyme, the more chance that KPU is a major problem. Dr. K. doesn't publish the 80% figure if that were not his experience.
Of all his Lyme patients, 80% have KPU.

I do not understand why most people still do not understand that Lyme is a multi-faceted disease, and is becoming more so every day, because the exposures are greater and the eradication more complicated, and our DNA and the critters DNA is getting longer and longer.

It is not a harmless situation, but we have learned a lot. You should have been around when I started in 1996 - in 1998 with Dr. K. - Most of what is done today with success - though it may take average five years - was not known in 1998. Dr. B. back then wrote Dr. K. in 1998 that Lyme is not transmittable, except by blood. I wrote to Dr. B. on order from Dr. K. and we both laughed when the answer came back from Dr. B., , because my husband displayed serious Lyme symptoms within a year of my bite. He started to suffer dental problems, was tested for KPU (the incorrect way), and only when Dr. K. developed his own Test requirements as is done in Europe did KPU show up as a problem. Years lost - proliferation of infections due to toxic body burden much acquired during active service in WWII.

There comes a time when time gets scarce and life energy diminishes ----

What miracle are you waiting for? How much more proof do you need to realize that toxins eventually kill? INFECTIONS THRIVE IN TOXIC TERRAIN. Toxic metals cause fungi. Parasites thrive in toxic terrain.

KPU intervention is not a "chelation" program. KPU intervention is merely a method to replenish the missing minerals without which no detoxing can take place, CAUSING deficiencies in other minerals and ruining this once perfect detox machine. Remember: 1 lethal dose of mercury killed one mouse of the 100; 1 lethal dose of mercury plus one lethal dose of Lead killed all 100. We have the science -- and the sick people to prove it.

Eat freeze dried garlic and grow cilantro in a window planter! (if you chew the cilantro after you eat the garlic, you will keep your friends).

Take care.

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GiGi
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Quoting Sparkle: "On Better Health Guy's website - blog, he says it was useful but not a cure all to do the KPU protocol (paraphrasing). So, why bother with such extreme measurs if they are not hugely helpful?"

KPU intervention is not expected to be a cure-all.

Please tell me what is "extreme" about adding some missing zinc and P5Pplus? When I first met Scott and introduced him to Dr. K., he was one sick puppy. I would call him a roaring success; well on his way now = partially due to correcting this major deficiency caused by KPU.

Take care.

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BackinStOlaf
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but WHAT IS KPU? is it a disease? I dont get it!!

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

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GiGi
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BackinStOlaf, http://planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/

http://www.klinghardtacademy.com/images/stories/powerpoints/hpu%202009.pdf

www.hputest.de (click on English)

Scroll down on Planetdrive (after reading text), the video explains all.

Hputest lets you take a some form of test, not the real thing. But it gives you an indication.

Take care.

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sparkle7
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These forms of healing are interesting but I don't see a huge amout of people saying - Wow, I'm really glad I did methylation, KPU or chelation - it saved my life.

The big issue with me is that some people have reported getting quite ill with or without a doctor while doing these things.

I would do these things in a minute if I had the money & time to go through it. I am not getting disability & I have to be able to function somewhat.

It's just that I have tried many things - some work, most don't. I agree that no one should have mercury present in the body. Methylation is about the detox pathways in the liver (I believe without spending all night looking up things on-line).

KPU should actually be done after mercury detox from what I could see. The test is not expensive - so, that's do-able. There is an order to these things. If I eat cilantro - it's may mobilize mercury in my mouth - so, I have to wait.

I scheduled some dental work for next week. So, I'm working on it. There is controvercy about which route is most effective with chelation. The main bottleneck for me is to get the fillings out. I would have done it years ago but I had some personal stuff going on that made it problematic... Mainly, money.

Small steps are what has to be done if the illness is from chemical sensitivities. I don't know if I ever really had or have Lyme. I ended up here because I had a diagnosis but I don't think it was accurate.

All the same - there's alot of great info on this message board & people explain alot about things I'm interested in.

The only thing I can do at this point is try... If I do get much better from any of these things, i will come back & report it. It might take some time.

----

Here's some info on HPU- from http://betterhealthguy.com/joomla/images/stories/PDF/kpu_klinghardt_explore_18-6.pdf

HPU and Lyme Disease

3 possible origins of HPU are discussed in the literature: genetics, early childhood trauma, and chronic infections. The connection between HPU and many of the illnesses previously discussed has been known for quite some time.

However, never before has a connection been observed or published between HPU and Lyme disease. This discovery has been a key for Dr. Klinghardt to return his patients to a better state of health and wellness. The changes he has observed have been profound.

Dr. Klinghardt has found that 4 of 5 patients with chronic Lyme disease test highly positive for this condi- tion. That suggests that 80% of patients with symptoms of chronic Lyme disease might benefit from a treatment protocol that addresses HPU.

Dr. Klinghardt believes that it is not possible to have chronic symptomatic Lyme disease as an adult without a preceding mold illness or the patient having developed HPU. He postulates that the biotoxins from microbes block one or more of the eight enzymes of heme synthesis. This leads to a significant loss of key minerals in white blood cells which effectively disarms cellular immunity.

One young adult female struggling with Lyme for sev- eral years had severe multiple chemical sensitivities (MCS) that were not improved by any previous treatment. After starting the HPU protocol, she noticed improvements in her MCS for the first time since she became ill.

Other patients with intractable chronic infections have experi- enced significant improvements in immune function and a resulting lowering of total microbial body burden.

Dr. Klinghardt has observed numerous patients that have struggled to rid the body of parasitic infestations. In these patients, regardless of the interventions used, the patient continues to expel these parasites on an ongoing basis.

Therapy-resistant infections are a hallmark sign of HPU. Dr. Klinghardt has found that once the HPU protocol is put in place, there is often swift resolution of long-standing infections and infestations. This includes patients who have failed years of antibiotic therapy for chronic or late stage Lyme disease.

Chronic Lyme disease patients often suffer from severe jawbone infections that may require cavitation surgery, which often tends to fail in these patients. When the clients are pre-treated for HPU, the outcome of the surgical procedure is generally much better. In some cases, ozone treatment of the jaw is sufficient to turn things around.

Dr. Klinghardt has followed the interest in HLA genetic typing in regards to biotoxin illnesses such as Lyme disease and mold. Until now, patients with certain halotypes were considered more difficult to treat as the body could not properly and effectively respond to and remove biotoxins from Lyme disease, molds, or in the worst cases, both.

In his experience, once the HPU issue is addressed, these HLA types become far less of a concern in most patients.
Once all of the bodily systems are back online and func- tioning properly, a few months after introducing the HPU protocol, patients are essentially made invulnerable to Lyme disease, to molds, and even to heavy metals.

Their bodies are now much better equipped to deal with these conditions when they have appropriate levels of zinc, biotin, manga- nese, vitamin B6, and arachidonic acid to support optimal functioning of numerous bodily processes.

----

So, it's interrelated - the connection between mold, MCS, heavy metals, detox, parasites, Lyme, EMFs...

Which of these things do we attend to & in what order? I can see it goes back to the Babushka principle & that's probably easiest to digest... but there are differing theories about things.

Are all of the concepts sound & do we do them in any specific order...? regarding methylation, HPU, chelation, mold illness... ?

According to Dr. K is mercury before or after parasites? HPU seems to trump methylation. Is chelation accomplished via more natural means like cilantro & chlorella rather than the drugs?

That would be fairly simple but the HPU protocol can be difficult from what I heard. So, more emphasis is on HPU rather than the other protocols...?

I'm sorry f I'm just rambling here. I'm kind of thinking out loud... I hope it somehow helps & doesn't make people more confused.

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Healing in Santa Cruz
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I have found KPU protocol to be very helpful.What Gigi wrote is pretty right on.

Its no instant miracle cure but a biggie. As is other methalation problems.

I am very grateful to be on it as I was high positive on the urine test. I take 4 Core a day.

It was extremely hard for me as my body started dumping metals and toxins that had built up for many yrs.

I would not do this protocol without a doc.

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GiGi
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Not having time to read all of Sparkle's, just one comment here:

Quoting Sparkle: "KPU should actually be done after mercury detox from what I could see."

KPU has to be started before and continued in order to make mercury detox possible. That's the whole point.

I myself was not successful detoxing certain levels of metals until I did Allergie Immun. Then, and only then, did the metals and the deep lead out of bones finally move out.

Rectifying the KPU may not solve other methylation problems. Some are structural, some are of emotional origin. Read the "Five Levels of Healing". If your bite is off, for instance, detoxing the brain is affected. If you are exposed to EMF, detoxing is strongly affected.
The list goes on and on. Emotions play a major role. People who are able to release some bad emotional stuff, often start detoxing.

Everything is related. That is what makes treating Lyme or a chronic disease so difficult.

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GiGi
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Please remember that if you finally start dumping some metals, whichever way it comes about, because of treating parasites or anything else, you have to pay attention immediately to the die-off of fungi.

Reason: Fungi die-off feels worse than almost anything I can think of -- . When you take Flagyl, you will have a horrible die-off --- I don't call it a herxheimer. It is dead fungi cruising in the body and it is not a pleasant experience. Ask your doctor how to mediate that - I don't want to get into that here.

Again, if you start to release metals, the fungi will start to die-off - and again- I don't know of anything feeling worse than dead and dieing fungi. You have got to get onto a potent antifungal program. Babuschka Principle.

Again, one problem causes the next until you have finally taken care of all. It is a long process.

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nomoremuscles
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quote:
Originally posted by GiGi:
Please tell me what is "extreme" about adding some missing zinc and P5Pplus?

What is extreme is some people's negative reactions.

I would like to see all the successes brought by these methods too.

I agree with Sparkle: If the response does not HEAVILY favor recovery, these protocols do not seem worth the risk -- especially for the very sick patients. A small tilt to a delicately balanced system can throw a chronic patient so far off that it takes a year or more to regain baseline. Some never do.

All it takes is a half hour reading a CFS board to find dozens of patients who have been greatly harmed by one or more of these methods. Unfortunately, in my experience, the same amount of reading does not unearth an equal number of successes.

Yes, of course there are successful outcomes -- but I have not seen too many.

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sparkle7
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Yes, this is what I'm concerned with. Even if you have a doctor, they won't be with you holding your hand when you are sick & going through heck. We really have to go through these things on our own.

This is what I ask... Is it really worth it or are there less extreme measures to correct a hemoglobin problem (with HPU) or liver methylation or chelation? Has anyone had a before & after test with KPU proving that it did do something to correct the problem?

Not that tests are actually accurate in any case... Much of this stuff is theoretical. If the concept of "the mind" & emotional issues are brought into it... These could be fancy placebos... Just a thought.

I'm not knocking anyone's beliefs but the placebo effect is real. I believe in trying to get the toxins out of the body & get the body to function better but there are many ways to go about it that may be less "inconvenient".

It's good to read about all these interesting theories but I haven't seen alot of evidence that the end justifies the means.

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jackie51
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I don't know the answer to your question, but I know the first time I started to take a multi-vitamin with minerals, that after a few days it gave me headaches. It took a long time to find one that didn't.

Sometimes I wonder if I was correcting imbalances that I was unaware of and I was simply blaming the multi-vitamin.

If one wanted to correct the imbalances on their own, I would suggest (and this is what I would do) that they start slow. If you are having mercury taken out, then your dentist should have a protocol, unless this is a typical ADA dentist.

Good luck whatever you decide.

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sparkle7
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Thanks Jackie. I'm just going to a regular dentist. I have been to some really out there "holistic" dentists. I know what you mean...

These ideas are interesting but it's hard for me to tell just how much to invest in them - on the level of belief, monitarily, & time-wise.

I've been through it before with other "therapies" or concepts that didn't pan out. Some of these, I could do on my own...

When people say you may get really ill or you may need a doctor - if makes me kind of wary.

I thought the Hipocratic oath was "Do no Harm" or something like that? Might as well get out the leeches...

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jackie51
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I don't discount KPU treatment at all, but it requires so much time & money with doctor supervision. I'm lucky just to get to an LLMD.

I had my mercury fillings drilled out by regular dentists, years ago, and I don't have a problem with mercury. At least it didn't come up in testing (asyra and some other energetic type).

I think there is a big correlation between bad teeth and immune system. It's not all mercury's fault, but it's getting the blame.

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sparkle7
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In my case, I don't know if it's actually mercury. It may be some other metal. I used to do sculpture in a foundry when I was in college. I had many jobs working with chemicals during my life.

I had 3 tests for mercury & they were all low. I heard that the tests aren't accurate but it's hard to say. I just want to get the 2 silver fillings out so I can try to go forward on some of the protocols.

The next step will be to do the KPU test to see if that's an issue according to the test results. The test isn't that expensive & I believe I can order it on my own. I'll cross that bridge when it comes to that - if the test is positive. I'm going to continue to study all of this in the mean time.

I would like to do the cilantro & garlic - chlorella, etc. as GiGi suggested but I can't do that until I get the mercury out of my mouth.

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