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»	LymeNet Flash » Questions and Discussion » Medical Questions » Mayo Clinic for Chronic Lyme - Yes or No?

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Author

Topic: Mayo Clinic for Chronic Lyme - Yes or No?

InNeedOfSeriousHope
Junior Member
Member # 35924

posted

I am wondering what the Mayo Clinic's reputation for Chronic Lyme Disease is. From what I have read it doesn't seem to be that good. But I have seen some things suggesting that might be changing. Has anyone had any success there?

Posts: 8 | From Central Minnesota | Registered: Jan 2012 | IP: Logged |

Razzle
Frequent Contributor (1K+ posts)
Member # 30398

posted

Personal experience at Mayo Rochester was horrible (2004)...and this was before I knew I had Lyme...

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4166 | From WA | Registered: Feb 2011 | IP: Logged |

kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691

posted

I don't think that you will get even ONE person on this forum that would recommend going there.

They do not recognize lyme and co.

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1470 | From Tennessee | Registered: Dec 2009 | IP: Logged |

kimmie
LymeNet Contributor
Member # 25547

posted

They run their own lab test at Mayo, and surprisingly....I was 100% negative and clear of lyme....only to return home with positive lyme test from quest, lab corp and spectrum at the same time. Scary huh?

They do not believe in chronic lyme anyways. I was told I had post viral syndrome and they see it "ALL THE TIME"....

Posts: 747 | From Utah | Registered: Apr 2010 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
No. No. No. No. No.

Just to be clear: Absolutely NOT.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
Mayo has sent lyme patients home to suffering and, at times, their deaths. Some of those terrible encounters are in past threads.
------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

LymeNet Archives, to search "Mayo" in past threads in all forums.

----------------

http://www.mnlyme.com/

MINNESOTA LYME ASSOCIATION

You would sure want to hear what THEY have to say about Mayo.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

randibear
Honored Contributor (10K+ posts)
Member # 11290

posted

oh geez, no. might as well go to an infec doc and just ruin your life.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
http://www.canlyme.com/gazette_martz_2006.html

Chronic Lyme disease debate: Common ailment or false hope?

- by Bill Radford � The Gazette - February 19, 2006

Excerpts:

Like the flu, it hit hard and fast.

But Dr. David Martz knew whatever he had was worse than the flu.

. . .

Lyme disease was considered, but blood samples sent to the Mayo Clinic were negative for Borrelia burgdorferi, . . .

- full article at link above.
------------------

Mayo was wrong. Very wrong.

Good think this doctor knew enough to find a real lyme expert elsewhere where he was determined to, indeed, have lyme (and babesia).

He is one of the patients with a success story featured in the documentary �Under Our Skin� � a must see DVD. Check their own site, NetFlix and Hulu.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

posted

Absolutely NO.

Find a Lyme literate physician by placing a post in "Seeking a Doctor" or go to one of the referral sites.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13239

Posts: 5191 | From Lyme Zone | Registered: Jan 2009 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease

Includes a symptom check-list; articles; consideration of differential diagnoses.

---------------------

http://www.canlyme.com/seronegreasons.html

27 REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

---------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation.

===================================

Detail about a new Borrelia Culture Test here:

http://betterhealthguy.com/joomla/lyme-disease/testing

Testing options - See #15

=======================================

Specifics on the new test:

http://betterhealthguy.com/joomla/blog/248-new-borrelia-culture-test-available

and

http://www.researchednutritionals.com/information.cfm?ID=255
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

lightfoot
Frequent Contributor (5K+ posts)
Member # 2536

posted

Oh, No!!!!

--------------------
Healing Smiles.....lightfoot [Smile]

Posts: 7228 | From CO | Registered: May 2002 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!!

Run, don't walk to the nearest exit!

Run, run, save yourself! Don't look back! HOLD THE MAYO!!!!

[lol]

I've seen hundreds of thousands of posts over the years and only one patient that went to Hold the Mayo Clinic had a positive Lyme test. ONE!

Still didn't get treated even with a positive test, but that one person actually did manage to break the Hold the Mayo record of NONE, and get that ONE positive test!

Run run run run... far far far... go go go!

Save yourself!!!! HOLD THE MAYO!!!!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

And the worst thing is...

They know better! The MN clinic has messed with the ducks in that near-by town and it is SHAMEFUL what they've done.

You'd think if they are so terribly wrong they would just crawl in a hole and let it be... but no! They are pro-active against Lyme.

What BIG toads! *@*&#@#&*((*^$@@

HOLD THE MAYO!!!!

HOLD THE MAYO!!!!

HOLD THE MAYO!!!!

HOLD THE MAYO!!!!

Need I say more?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

It looks like Ms TC MUSTARD up everything she had in her to KETCHUP with the urgent need of this post not to find itself in a PICKLE,

and her answer along with everyone else's is worth their SALT - you gotta RELISH strong responses like this one...

Posts: 13116 | From San Francisco | Registered: May 2006 | IP: Logged |

InNeedOfSeriousHope
Junior Member
Member # 35924

posted

I guess that answers that then.

Posts: 8 | From Central Minnesota | Registered: Jan 2012 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
http://www.mnlyme.com/

MINNESOTA LYME ASSOCIATION

Meetings are held the 2nd Tues of each month

First Lutheran Church of White Bear Lake
4000 Linden Street
White Bear Lake, MN

To find the closest groups to you, and LLMDs, Email them at:

[email protected]

---------------------------------

www.lymedisease.org

Lyme Disease.org

A GREAT site to learn more. Their online support for your state:

http://health.groups.yahoo.com/group/MINNESOTALyme
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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