posted
My son has chronic HPV-6 and CMV his LLMD has him on Valtrex and is considering Valcyte.
So yes, some do.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
My old MO LLMD sure wasn't. He said all viral issues would just disappear once you beat Lyme/TBIs. Not sure if I believe that at all, but I never beat it so who knows. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Seekhelp posted while I was writing. I have heard of some LLMDs who think that if you treat lyme, all else will fall into place.
Others think you need to address other infections so that lyme can be more easily managed.
From what I've read, I'd say most certainly are open to anti-virals, when warranted. If you have a diagnosis of such, it just makes sense.
These can be hard on the liver, though. And that is to be considered. There may be certain herbals that can help but it's best to have that be addressed by someone expert in the virus that concerns you.
It's always best to read from the top experts for all the different infections that are one's plate.
Scroll down to see TIMACA's thread on other tests those with lyme should consider. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Our LLMD is not much for dealing with it, so that is why we are adding in an immunologist.
Posts: 55 | From Missouri | Registered: Sep 2011
| IP: Logged |
posted
I'm impressed that my LLMD just told me that viruses play an important role in chronic Lyme disease.
I don't know if I will need antivirals or not, due to high HHV6 and Coxsackie B 3 levels, but I'm glad he/she recognizes that they do play a role.
I am hopeful. A little bit of hope goes a long way when dealing with the misery caused by these pathogens.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
| IP: Logged |
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Dr. K. always addresses viral problems with the idea that unless one addresses all, total healing is questionable. If viruses are not a problem from the start, usually, as some of the bacterial pathogens are lowered, toxic metals treated, viral infections show up and are definitely treated.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
| IP: Logged |
manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
My ND created some type of mix of herbals to lower the viruses in me .They exsploded while I was in parasite cleansing and killed some large parasites.Yes they need to be addressed as well.
Posts: 1379 | From disable | Registered: Aug 2011
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- showmemom,
You say: "Our LLMD is not much for dealing with it, so that is why we are adding in an immunologist." (end quote)
Unless that immunologist is ILADS educated and totally lyme literate, you could find yourself tossed against a brick wall.
Even if assessing other things, any doctor any of us sees cannot be the best doctor even in their disciple (dealing with another matter) if they are ignorant about how the body is affected by lyme & other tick-borne infections.
One appointment and some basic tests might be of help but, for any other treatment to work, it has to be from someone who understands the big picture.
At the very least, be sure that immunologist is fully aware of all of Garth Nicholson's work on mycoplasmas; knowledgeable about HHV-6 and Cpn.
Not even LLMDs can be expert in all the other stealth infections, still, any doctor who works with anyone in this population should be able to at least have a good idea of the big picture.
I've been to a couple of immunologists and each created a disaster. One told me (as I kept falling) that I just needed to get out and walk more. Another told me to "cheer up" -
another discounted my questions about celiac because the skin test for wheat was just marginal. Turns out, I did test positive years later with a different doctor who did a DNA celiac test.
Beware of specialists. Just find out as much as you can about their scope before committing to an appointment. Most simply do not believe in ANY kind of chronic stealth infection, whatsoever.
Most don't consider the high likelihood of parasites, especially in those with lyme (as ticks carry parasites).
Most also simply don't have education in nutrition so as to know about some of the deficiencies that often affect those with lyme.
Most don't acknowledge heavy metals or even MCS (multiple chemical sensitivities). Now, you might think they would understand that but it's way off their radar, even for immunologists or allergy specialists. I found this out, over and over and it took a huge toll on me.
Diagnosing Lyme Disease (and/or whatever else it might be)
Scroll down to see Timaca's Thread there. It is very important and has links for mycoplasma, HHV-6, Cpn, Parvovirus, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My son who needs it is on Valtrex. Viruses were tested as part of routine initial Lyme labs.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic