posted
Had any of you been previously diagnosed with either of these prior to your lyme diagnosis? I have been diagnosed with both and am wondering, if it is lyme that I have, if these are also symptoms. My teeth don't even line up the way they used to. The trigeminal neuralgia (if I even truly had that) caused shooting pain and pressure in my right ear, jaw and teeth.
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
Yes, yes yes.It started with Tmj and than I was offered crown to line my jaw and it did cause all my low mollars to be infected in the process of creating crowns on both sides.
Than the ear infections started and I started beeing assymtomaptic in lyme and coinfections and needed antibiotics as I would get tonsillitis and ear infections.
Later continued on eye pain and migranes that followed by full blown lyme and coinfections in a couple of years .Within a few years I found myself very sick.
Treat treat asap please .The doctors failed to diagnose me since than .I found about lyme when I was fighting for my life and Er and passing out.
Posts: 1379 | From disable | Registered: Aug 2011
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posted
Wife had bi=lateral jaw surgery before lyme dx and treatment and Dr said he never really saw a young woman whose jaw was basically deteriorated.
And I have TMJ on and off. So yes.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had trigeminal neuralgia. I got it while I was getting lousy lyme treatment. It is definitely a symptom of lyme. However, people without lyme can also get it.
Burrascano confirmed to me that it was a lyme symptom. I got to ask him about it at a lyme conference once. I asked him this question: What do you think of a lyme patient on high dose antibiotic therapy who develops trigeminal neuralgia?
He said, "If the treatment is inadequate, the disease will continue to progress."
So, Burrascano called the trigeminal neuralgia a sign that my lyme disease was continuing to progress.
Read about this condition on the net and you will know if you actually have it or not. It was likely the most horrible of all of the symptoms I experienced with this horrendous disease.
I then changed lyme doctors and got rid of my trigeminal neuralgia, lyme, babs, and bart. That was nearly 7 years ago now, praise God!!
I have never had a recurrence of it. People without lyme who get trigeminal neuralgia generally cannot get rid of it. They end up eating only a soft food diet to help to prevent attacks. Some, in desperation, have their facial nerve cut to give them relief.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I unfortunately know a lot about trigeminal neuralgia. I was diagnosed with it two years ago and had MVD surgery (brain surgery)to relieve what the doctor said was a compression of the nerves. Well, guess what? After drilling a hole in my skull he found no compression. I've never been the same since. Just wondering now since I'm looking at the true possibility of lyme if that could have been my true diagnosis two years ago. If so, would've saved a lot of pain, time, money, illness, etc. And, yes, it was the worst pain of my life aside from the pain of anxiety and depression over chronic, undiagnosed illnesses.
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, in your case, it sounds like the cause was lyme.
Lyme can attack any nerve in the body. And, when it attacks, that part of the body will not work properly, or the nerve will cause pain of various kinds (burning, shooting, stabbing, itching, crawling, etc.)
"It is clear that in the great majority of patients, chronic Lyme is a disease affecting predominantly the nervous system." (page 4)
And, if a person with lyme has surgery, they often end up in a worse state. That goes for any kind of surgery. The lyme loves our weak areas. So, when you have surgery of any kind, the lyme takes advantage of our weakened state and makes great advances in our bodies.
That may be what happened to you.
Most people with lyme put off surgeries of all kinds as long as they are able, because they know about this.
I had a lot of facial pain from lyme. Some was nerve pain in the jaw bone that led my dentist to think I needed root canals. He did unnecessary root canals on 2 teeth to try to stop my unbearable burning jaw pain. Didn't work. This was before my lyme diagnosis.
I also had jaw joint problems of all kinds while I had undiagnosed lyme.
I also had other facial/head problems including facial drooping (a mild bilateral bells palsy), dry eye, dry mouth, sound sensitivity, lots of headaches and neck pain. I even had one scary episode of gaps in my visual field.
That progressed to a major central nervous system event in which I could not think, move, speak, and didn't even care! Couldn't walk for hours.
Lyme is known to attack the optic nerve and cause blindness (usually temporary), the auditory nerve and cause deafness, and on and on.
I had undiagnosed lyme disease for at least 10 years before a doctor thought of lyme. So, I went through a lot of pain, anxiety, doctors, medications, etc. for all of my various problems.
That is a typical lyme patient story.
Now that you know you have lyme, just assume that all of your crazy medical problems are lyme related and you will be right almost all the time.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
So you are better now TF? Thank God. I would love to hear your recovery story. I tried to PM you but your box was full. Did your face also return to normal?
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I returned to normal 100% including my face and everything else--brain, etc.
I went to a doctor who followed the Burrascano lyme treatment protocol, and in 13 months I was finished with treatment.
This was after wasting over 2 years with a lousy lyme doctor.
So, I still hang around this site to let people know that the doc is the key to getting rid of this disease. Can't emphasize that enough.
Your chance of getting rid of lyme is based on your doctor's experience and expertise with this disease. So, it pays to get the very best lyme doctor you can afford.
I checked my box and it isn't full. So, I hope there is no problem there.
Posts: 9931 | From Maryland | Registered: Dec 2007
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