phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
If I could cut my head off and live I think I owuld be ok.
My main problems now are still the off balance and ringing in ears 24/7.. Could this be lyme?
I seem to be able to deal with my other symproms but this off balance, ear ringing and werid head feelings are driving me crazier..
Have had these symptoms from the beginning , there are days worse than others.. The ENT keeps saying sinus infection..
When my head is this way my anxiety is much worse so is my mood..
Can anyone relate?? Tks
Posts: 1058 | From VA | Registered: Oct 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Drop the ENT.
What you describe was my worst symptom pre diagnosis. I was diagnosed with Labyrinthitis, which is an infection/inflammation in the labyrinth in your ear (part of your vestibular (balance) system.)
Guess what can cause it...LYME (per John Hopkins).
In my personal experience this is either Lyme or Babesia or both.
Today, my dizziness / off balance feeling (I never had vertigo btw) is gone 99.9% of the time. But I still have mild tinnitus which I never had before lyme.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
These were my initial symptoms, that were labeled 'Meniere's disease'.
This page is very useful.
I worship the neuro that decided to put me on low sodium diet and gave me teeny dose of valium. Got me off the couch and back to living.
FWIW - I'm better and have been off abx for 7 years now. But, my ears still ring - I no longer get the dizzies and ear fullness though.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Babs for me. Maybe something else too (lyme or bart?).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thanks to each of you... It has helped with my anxiety. The ENT said no Menieres..
BCB, my first dx was Labyrinthiitis too.. You said you are much better.. What treatment did you have?
Through Igenex tested twice I had no Bart or Babs but who knows..
Topic: NATURAL SLEEP & ADRENAL SUPPORT -
Posts: 48021 | From Tree House | Registered: Jul 2007
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Phyl...I've been on many: Here they are (mostly in order)
Each line is a different Combo. Each drug is daily unless otherwise stated.
-Doxy and Flagyl (3 days every other week) -Biaxin, Amatadine and FLagyl (3 days every other week) -Levaquin, Doxy, and Flagyl (3 days..) -Rifampin, Biaxin, Amantadine, Flagyl (3 days....) -Bactrim DS, Biaxin, Amantadine, Rifabutin, Flagyl (3 days..) -Doxy, Omnicef, Flagyl (3 days...) -Factive, Doxy, Flagyl -Zithromax, Malarone, Tindamax, A-Bart -Coartem
and now...
-Bicillin, Biaxin XL, Plaquenil,
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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lymeboy
Unregistered
posted
BCB1200,
Did your inflammation / ear fullness go away? This has been my most nagging symptom. It seems to get worse and worse. The dizziness is not as bad as it once was, but nothing has seemed to help my ear problem. I sometimes feel that if I didn't have ear issues, I might be close to 100% on my good days.
Some say this ear problem does not resolve.
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posted
if you have been on a benzo for your anxiety you might want to know that tolerance withdrawal frow benzos can cause all that do a benzo search here to learn about it and good luck
-------------------- LSG Scott Posts: 513 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Ear fullness, tinnitus and hearing loss along with some loss of balance were all symptoms I had before my DX of Lyme Disease.
My LLMD prescribed Valtrex 1000 mg 2 x day and recommended lysine at least 1000 mg / day before I had the results of IgeneX. Lysine is a nutritional supplement that you can get in many pharmacies. Take it separate from the Valtrex.
Doing this has helped the aural fullness and actually improved my hearing a little bit. I am occasionally bothered by the aural fullness, but there is a drastic improvement since using both meds.
The theory is that the herpes virus can attack your auditory and vestibular system, causing inflammation. Perhaps you could discuss with your LLMD. They have made an incredible difference for me.
Posts: 2386 | From New England | Registered: Aug 2011
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