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» LymeNet Flash » Questions and Discussion » Medical Questions » Parkinsons and Lyme

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Author Topic: Parkinsons and Lyme
jwall
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I am trying to gather some info. on Parkinsons and Lyme disease for my son's preschool teacher. Her husband has Parkinsons, but he does not quite fit the profile for the disease and said he has at least 29 of the other Lyme symptoms. It took the neurologists a while to diagnose Parkinsons b/c they were not sure.

I told her I would give her UOS to watch. What other info. would you recommend I give to her?

Thank you!

Posts: 618 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I'll crank up my other computer so I can post some links on both. I fully believe my father had Lyme and Parkinson's. He was only dxd with P .. died before I found out I had Lyme.

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--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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I thought I had more than this... hope this helps!!

Parkinson's and Lyme
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/44135?#000002
http://www.canlyme.com/lymepark.html

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
t9im
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I like to send vidoes on the controversy and misdiagnosis. Most neuro's stick to the IDSA western blot of 5 bands and miss the diagnosis.

It�s amazing there is a controversy to this insidious disease and I�ve found it easiest to show a couple of u tube video�s on the controversy.

http://www.youtube.com/watch?v=PVPRWiukp_M

http://www.youtube.com/watch?v=8yk0C-uX9cU

If you watch this video you can see some of the miss diagnosis.

http://www.youtube.com/watch?v=3nIuIF6q8FA&feature=related

http://www.youtube.com/watch?v=V-lHDA863TM&feature=related

Dr. B�s Advanced Topics in Lyme disease.

http://researchednutritionals.com/FactSheets/Burrascano's%20Advanced%20Topics%20in%20Lyme%20Disease%20_12_17_08.pdf

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Tim

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jwall
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Thank you for the links!!

Hmm...would I be giving them false hope by even suggesting a diagnosis of Lyme? That 2nd article was too depressing to give to her. I can show her the forum responses though and UOS. Would Parkinson's be permanent damage in response to the Lyme infection?

She said her husband was actually the one to print off the Lyme symptoms list and cirlce the symptoms he has. She said he circled 29 very obvious ones and did not circle the less obvious. These are aside from the Parkinson's symptoms.

He does not remember a tick bite, but she said he would catch the ticks before they latched on and would brush them off. He always works in their yard.

I suppose I should point her in the direction of an LLMD and then hopefully she will watch UOS to get the whole controversy. It is hard to explain to people. I did tell her to not rely on blood tests and that the neurologist will run a bloood test and and then dismiss it altogether.

I also told her the group of neurologists they see will not acknowledge Lyme in our state, so she needs to be aware of that.

Thank you for the links t9im.

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aperture
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There's the baseball player on UOS who was diagnosed with Parkinson's but got better with Lyme treatment.

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aperture

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Lymetoo
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I don't know. The damage could be permanent, but would sure hate to NOT TRY!!

I think my dad and mom got Lymed the same time I did. So.. that was late 50's or early 60's. Dad was dxd with Parkinson's in '83 and died in '93. So that is quite a few years that he had had Lyme.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lauralyme
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It's been my experience that when I gave UOS DVD's to people suspect of having lyme.....after they watch the film they decide they don't have lyme.

Maybe it's when they see all the talking heads saying they spent 75K, etc, they decide that this disease is too expensive to have?

I'm perplexed by this. I've had one person successfully persue a lyme diagnois after watching UOS and three decide they don't have LD

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Fall down seven times, get up eight
~Japanese proverb

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jdp710
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First, I would recommend for them to watch, research and invest in a PEMF or similar device.

Here are some youtube videos

http://www.youtube.com/watch?v=DNqExvp-yLA

http://www.youtube.com/watch?v=ienhFCI8fuw

http://www.youtube.com/watch?v=0QSgQufAKKY

http://www.youtube.com/watch?v=OfA7Gkdas90

Those links came from the maker of this PEMF device whose father passed away from Parkinson's before he could find an answer (PEMF) but his mission is to help others... especially those with Parkinson's http://www.earthpulsetechnologies.com/

Some scientific info and studies on PEMF if they wish to learn more
http://www.pemf.us/docs/ScienStudies_Magnetic64.pdf

http://research.whnlive.com/PEMF/Compiled.php

http://www.braintuner.com/magresearch.htm

http://gordonresearch.com/PEMF/


Second, I would recommend for them to look into mold. Some quotes

"Treating a serious illness such as MS, Parkinson's, rheumatoid arthritis, cancer, Lyme
disease or even less serious conditions like fibromyalgia without reducing mold levels
will have greatly reduced effectiveness"

"It is estimated that around 25 million Americans
have some degree of mold toxin illness though it is called MS, Parkinson's, chronic
fatigue, fibromyalgia, rheumatoid arthritis, cancer and so on."

http://www.royalrife.com/mold_summary.pdf

"Dr. S diagnoses many Alzheimer�s and Parkinson�s patients with a combination of Mold Toxicity and stealth brain infections. Infectious organisms like Lyme, Babesia, Bartonella and Mycoplasma are labeled �intracellular� because they live inside our cells, including our brain cells."

http://floridadetox.com/mold-toxicity

"Trichothecene mold toxins were found in ALS, Parkinson�s and Lupus patients."

http://stevensponauglewordpress.com/?p=1031

Third, it's not just lyme/borrelia that is found in Parkinson's but many other co-infections can also be linked. From my notes, Heliobacter pylori, coronavirus, mycoplasma, chylamydia pneuomonia, HSV-1, lymphocytic choriomeningitis virus, para tuberculosis (common in milk), nocardia

A quote from Dr. L's Rife conference

"A practitioner in Oregon was treating a bedridden lady with Parkinson's. In Dr. Clark's Cure for all Diseases he discovered that Parkinson's could be caused by nocardia asteroides. He took Dr. Clark's frequency and divided it by 2 several times so he could apply it with a radiant device. The patient is now driving again.

Others recover with parasite and brucellosis treatment."

Viruses are easy to treat with devices such as Static Gen II or Pyro Energen.

Fourth, I would recommend for them to look into FL1953 and maybe even get tested for it. I think it's about $500.

A good link http://www.iadvocatehealth.org/protozoal_infection0.aspx

Which I gave my personal protocol for treating FL1953. http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/115372

hope this helps.

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jwall
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Yes, that is all really helpful! I will forward this info. on. Thank you!

My son's preschool teacher said she suffers from numbness in her fingers and tingling...and her son does also. They ruled out MS. I told her Lyme affects entire families.

I really hope I can help them.

Thank you!

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paulieinct
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My mom had Parkinson's, we were told. Preceded by epilepsy, depression with psychosis, and dementia. I know now it was Lyme, and it killed her. My whole family has it, but two siblings are in denial. My brother is developing a Parkinson's-like tremor along with alot of other symptoms. I had a tremor too, which appears to be GONE now, with Lyme treatment.

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Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

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hopingandpraying
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It's a real shame Michael J. Fox doesn't acknowledge he STILL has Lyme disease. If he had been treated properly by a LLMD (Lyme-literate doctor), perhaps he wouldn't have Parkinson's now!

Sad, very sad that people just follow their doctors' orders like sheep, without doing the research themselves. Who knows where our son would be if we had done that!!

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paulieinct
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quote:
Originally posted by hopingandpraying:
It's a real shame Michael J. Fox doesn't acknowledge he STILL has Lyme disease. If he had been treated properly by a LLMD (Lyme-literate doctor), perhaps he wouldn't have Parkinson's now!

Yes. sad about Michael J. Fox, and millions of others. I tell people," Rule number one, get over your love affair with your doctor!!." I just told that to my brother who is in total denial about having Lyme. His PCP is a huge Lyme-denier.

And Rule Number Two: Get over your love affair with your diagnosis!!!!! Yes, it's more dramatic and attention-getting to have MS, but HEY - MS is a hopeless condition, Lyme is potentially curable!

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Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
   

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