LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Flare in Issues - Thoughts

 - UBBFriend: Email this page to someone!    
Author Topic: Flare in Issues - Thoughts
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know I haven't posted much lately. It's not because I'm better by any means. Just frustrated and at a loss how to proceed/what to do anymore.

I have really had problems the last few weeks, but some of the issues have been for the last two months. I feel like I'm battling an unbeatable sinus issue. My ears feel plugged constantly. I have no fever, but my eyes/nose just won't stop draining liquid. My balance is terrible. I had a few episodes were my ears heard a high pitched ringing sound that I don't think was really there.

I continue to have terrible head pressure, brain fog and fatigue. My legs have been super heavy and getting tingling in my legs. My eyesight is very blurry and I can't focus well on things no matter if I use my regular distance or close reading glasses.

I had a terrible episode late last week where my right arm/hand felt very heavy/weak out of nowhere when on the computer. Then out of nowhere, my pulse jumped up to 120-130 (usually 70-80) and my BP was 205/97. I just didn't feel well at all and called an ambulance. [Frown] They took me to the ER.

The ER did a CT scan of my head/sinuses. It was normal except for minor mucus thickening in the sinuses. Blood work was perfect as well along with the EKG. I was fearing stroke type issues. [Frown] A little part of me fears a TIA, because I read it's not detectable on CT-scans/lab work. The ER doc didn't mention that possibility, but the presentation of the symptoms was odd for me. They put me on a daily dose of baby aspirin which I'm continuing to take.

I had a cardiac cath in late May this year which was totally normal. I have been on short courses of Biaxin for the sinus issues and most recently Augmentin when the issue happened. Now, the ER doc put me on a 7-day course of Omnicef. He's not sure if it's an infection or not. No fever, no odd blood work, etc.

I'm two days into the Omnicef and still having weird episodes. My left side of my face felt odd today. Not numb, but a weird sensation. Getting all kinds of odd burning/tingling feeling in my spine. I also had an episode today where I was very short of breath.

Honestly, I'm pretty scared of all the symptoms. It seems like things got worse the last month.

An alternative, integrative doctor I consulted with wants me to start Ivermectin and one other anti-parasitic. I have had no formal Fry testing to confirm FL1953, but she thinks I have it along with Lyme/Babesia. My WA-1 IgG titer from LabCorp a few months ago was 1:1,024.

I just don't know if this stuff is auto-immune of infection or all in my head anymore. I feel like it's playing tricks with my mind. I was so intelligent before so this demoralizes me so much. [Frown]

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Seek,

It really sounds like babesia or some other blood borne parasite is at least partly to blame for your symptoms. Babesia can cause hypercoagulation and what you are describing definitely sounds like at least in part a lack of adequate blood flow to the brain.

The cheapest and easiest thing you can do to improve blood flow to the brain should also help with cardiac issues. I would start taking high dose niacin -- you will have to work up to whatever dose you need. There should be some old threads about this.

It has to be the kind that makes you flush -- some people have more problems with taking it than others. Hubby had to take at least 300 mg to even cause him to flush. But he found it very helpful. He continued that protocol for at least 4 to 6 months -- it gradually became less beneficial over time.

And wobenzyme is cheaper than lumbrokinase and might be better to start with if you have not done systemic enzymes before.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just know that that flushing can be unbearable for some people. My husband took niacin (doesn't have lyme) and yelled that it felt like his face was on fire.

He could not tolerate it.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
LymeSwimmer
LymeNet Contributor
Member # 40540

Icon 1 posted      Profile for LymeSwimmer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Seek - sorry to hear about all of this.

Quoting:
"I have really had problems the last few weeks, but some of the issues have been for the last two months. I feel like I'm battling an unbeatable sinus issue. My ears feel plugged constantly. I have no fever, but my eyes/nose just won't stop draining liquid. My balance is terrible. I had a few episodes were my ears heard a high pitched ringing sound that I don't think was really there."

I have had the similar to the above - horrible sinus issues for well over a year - hadbalance issues, headaches, ringing, etc. as you describe.

I went onto an elimination diet a month or so ago - and have stayed off of wheat and dairy (as well as other grains, legumes, corn) - I feel better - and the sinus issues have gone away , whcih was really surprising - so for me it is something to do with one of those food groups.

Have you considered looking at food as playing a role in this?- maybe try a week or so with an elimination diet (basically rice, lamb and pears) and see how you feel?

Just thinking out of the box

Prayers and thoughts for you.

Posts: 118 | From New England | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
GretaM
Frequent Contributor (1K+ posts)
Member # 40917

Icon 1 posted      Profile for GretaM     Send New Private Message       Edit/Delete Post   Reply With Quote 
I can't tolerate flush niacin either.

The initial flush makes my face chest and back flush for nearly an hour.

It is uncomfortable.

But the worst part is afterwards-something to do with vaso dilation/constriction.

My face and lips went blue, my fingers and toes went blue, I got extremely cold and faint, and my heart beat slows to 40.

Just be careful if you try the flushing niacin.

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
This is going back many, many years, but I believe my husband's doctor who recommended the niacin said that only about 1/3 of all people can tolerate the flush it causes.

The flush lasts a good while and recurrs. It took at least a week after stopping the niacin for my husband to be rid of the horrendous face-on-fire problem.

But, his doctor said that for those who can tolerate it, the niacin works very well.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Bea and others. I will consider the Niacin. I'm on the Omnicef right now and feeling very ill. I'm very concerned as I keep getting burning sensations throughout my body. My feet feel like they are tingling at times and I break out in terrible chills. My muscles tightened up quite a bit too today - moreso than normal.

I called my PCP and told him about the burning feeling. He did not feel this is an allergic reaction and said finish the medication. There also could be a chance I have been attacked by some nasty virus. I just feel way worse than normal, but am not running a fever, see no rash/markings on my body, etc.

The chills I get aren't normal ones. It feels very neurological like it goes right down my spine.

By the way, I was tested by a conventional allergist 4-5 years ago for Penicillin / Cephalosporin allergies and they were not found. Not sure if that applies forever, but....

If this burning continues, I'm scared. [Frown]

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think I'm going to take a Zyrtec tonight too. The baby aspirin is also a new medication I started 2-3 days ago. Wonder if that plays any part in this?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree with your integrative doctor. I think it is proto fl1953 and/or babesia.

I also had a lot of your symptoms constant sinus infection, discharge from eyes, weird feeling on side of face, spine, head pressure, etc.

Anti-malarials help.

Also, ivermectin, albenza (sometimes with a base of zithromax and colonics to help detox).

Biofilm disruptors:
Heparin
lumbrokinase, etc.

wheatgrass juice
oregano oil capsules

Posts: 628 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by LymeSwimmer:

I went onto an elimination diet a month or so ago - and have stayed off of wheat and dairy (as well as other grains, legumes, corn) - I feel better - and the sinus issues have gone away , whcih was really surprising - so for me it is something to do with one of those food groups.

Have you considered looking at food as playing a role in this?- maybe try a week or so with an elimination diet (basically rice, lamb and pears) and see how you feel?

Just thinking out of the box

-
Have you tried this, seek??

PS .. maybe the burning is from yeast that is being stirred up by the abx??

[group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95077 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymetoo, I have been gluten/dairy-free since 2008..no help IMO, but I still do it.

I have not cut out other foods though. I am strongly considering trying a full elimination of hot peppers/capsaicin. I am noticing every time I am around hot pepper fumes, I'm dry heaving/gagging now. That may be my body's way of saying enough is enough? I have read a few interesting blogs about people who have experienced serious intolerance to capsaicin.

mlg, I think I'm going to try the FL1953 treatment at this point. Gotta do something!!

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Worth a try! Do you eat other grains?

If you are eating a lot of GF breads, cookies, etc you can still have issues with it being a processed food.

Just a thought.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95077 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.