ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I was reading another posts and the topic of pulsing tindamax came up. All the treatments were different.
If you take tindamax, how are you pulsing it?
We take 2 days on and 5 off. We've been doing this for 1.5 years. We are getting better so I'm not complaining. I do wonder though if more would be better.
We no longer herx on tindamax.
Thanks for your help.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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bcb1200
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Member # 25745
posted
I was doing 2 weeks on / off. But I stated with 3 days on every other week.
Dr B says you need to take it for at least 2 weeks straight to have an effect.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
We have never done 2 weeks straight. Will discuss with doc.
Anyone else?
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I pulse 3x a week at 500mg twice a day...did a month at 250 didn't notice much...not sure when the 500 is going to hit...
Posts: 183 | From ... | Registered: Oct 2011
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posted
Kari- Why not try Flagyl, just to mix things up? I find that Flagyl is pretty strong.
Posts: 323 | From Michigan | Registered: Sep 2006
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lymeboy
Unregistered
posted
Tindamax really made me feel well. Only did one 10 day pulse, but am now approved for 14 days on and 14 off. I believe in this drug.
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ktkdommer
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Member # 29020
posted
I think flagyl is in the plans for the summer when I am off from teaching and can afford to herx more. Part of it was my choice.
14 on 14 off is so different.
I wonder what some of the theories are for the differences.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I started pulsing the Tindamax the beginning of the year. My LLMD had me start out 1000mg a day, 2 days a week. Then go up to 3 days, 4 days, etc. Depending on how I feel. The herx while on is certainly noticeable. I'm up to 4 days on and probably will go to 5 next week. I feel its making a difference. By the 3rd of 4th day on the herx affect diminishes. Taking it along with Doxy and Azithromycin every day.
Bit 15+ years ago Diagnosed 10/11 Lyme Anaplasmosis Bertonella
Posts: 10 | From Taunton, MA | Registered: Sep 2011
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ktkdommer
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Member # 29020
posted
Thanks spinsyco for sharing. That is way different than us.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I find it to be working very well this way. The only side effects from the Tindamax specifically is a real strong bitter taste in my mouth making everything taste weird and an overly sensitive sense of smell. Also my joints seem to "pop" or "crack" really easily. Strange. Anybody else get this? It doesn't hurt and it's all tolerable. Of course a herx effect I get while taking it tells me it's working. Especially the first day or so I pulse when the fatigue in my legs and knees, ankles and achilles are really sore. More so then usual.
Posts: 10 | From Taunton, MA | Registered: Sep 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Are you saying spinsyco that you are really 4-5 days on and 2-3 off and repeat this every week? That is so much more than my 4 pills total a week.
I pop and creak a lot, but now that you mention it, it was really loud this week on the 2 days I took tindamax. Sometimes it can be embarrasing to make so much joint noise when I am with others, especially if they don't know I am sick. Mine doesn't hurt either.
I can pop so loud down my spine in the middle of the night that it actually wakes me up as I turn over.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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quote:Originally posted by spinsyco: I find it to be working very well this way. The only side effects from the Tindamax specifically is a real strong bitter taste in my mouth making everything taste weird and an overly sensitive sense of smell. Also my joints seem to "pop" or "crack" really easily. Strange. Anybody else get this? It doesn't hurt and it's all tolerable. Of course a herx effect I get while taking it tells me it's working. Especially the first day or so I pulse when the fatigue in my legs and knees, ankles and achilles are really sore. More so then usual.
I used to get that popping quite extreme but as I progressed and got better. With my other die-off symptoms, every time I started that reaction was less and less. Now it is gone completely.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Yeah, Migs! I look forward to that day. I can't imagine a life without noisy bones and joints. It has been 3 decades now.
Did you take tindamax?
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
Yes, KTK it works out to be 8 pills a week. I take 2 pills at once. Each being 500mg. I can't wait til that day either Migs. How long did you take it for? I know I must be patient but I don't want to have to pop pills forever. I see my LLMD again next week, she seems very good to mix things up and my medication may change again. Anybody else cycle through different antibiotics? The idea seems good to attack it from all directions.
Posts: 10 | From Taunton, MA | Registered: Sep 2011
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I have taken Tindamax at standard dosage for over a month and have now noticed my knees popping within the last week.
Funny how I was contemplating this just yesterday and I had attributed the new symptoms to Tindamax. Did a quick search today and viola, this post.
Posts: 2087 | From NY | Registered: Oct 2011
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