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» LymeNet Flash » Questions and Discussion » Medical Questions » URGENT - update

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Author Topic: URGENT - update
RZR
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Never been so sick. Burning center upper stomach, ribs very sore, vomiting. Used 1 phenergan suppository at lunch.

Been trying to get help for symptoms, off and on, for couple of months. All doctors act like my stomach is just messed up from taking abx.

Something is seriously wrong. Could it be spleen, gallbladder, or liver? Also some loose stool today.

They are going to let me die.

CMP and CBC were normal last week.

[ 03-17-2012, 02:10 PM: Message edited by: RZR ]

--------------------
Tick bite May 2009
Diagnosed June 2009

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Jane2904
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You should go to the ER and get checked out.

Best of luck and hope you feel better.

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seibertneurolyme
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You could potentially have an ulcer from the antibiotics or from other causes. Hubby used to have really bad chronic gastritis and did have one episode with small mild duodenal ulcers. For him treatment of bart resolved the vast majority of his G.I. symptoms with the exception of ongoing nausea.

The sore ribs could be costochondritis -- may not spelled correctly. Hubby had this for several months years ago.

I would do some experiments and see if anything helps the stomach burning pain. Try sipping on baking soda in water -- like people use for acid indigestion. Or try sipping on water with 1 teaspoon or more of apple cider vinegar added. If either one helps with the pain then you can pretty much tell if you have actual gastritis or worse with inflammation of the stomach.

I would probably also take 4 - 6 activated charcoal capsules on an empty stomach or a tablespoon of bentonite clay.

You can also try some pepto bismol. It will help if you do have gastritis or ulcers. But remember that it may turn your stools black.

For ulcers herbs such as licorice will help and hubby did some comfrey root as well as some other herbal things.

Bea Seibert

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Jamers
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Did you fully treat H. Pylori? It can cause acid reflux/burning chest, and ulcers. I vomited and my LLMD tested me for H. Pylori. I haven't had a problem since treating for that.

A stool test can tell if blood is in your stool from an ulcer or something else. I think that Flagyl is what helped the nausea/vomiting the most! Flagyl has been a great help!!

This last week I had full body pain including my ribs (which are generally achy) and bad pain in my legs and tendons. Im only treating lyme currently and no longer herx on Rifampin.

--------------------
Diagnosed Pos. Lyme Nov. 17, 2010, Igx.
Pos. Babesia Duncani March 2011, Igx.
Clinical diagnosis for Bartonella

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Lymetoo
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Better get it checked out!!

Sure could be an ulcer!

--------------------
--Lymetutu--
Opinions, not medical advice!

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aperture
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If the Dr's won't listen, keep on until you find one who does. The ER can't just ignore you.

I hope you get to feeling better and find out what's wrong.

--------------------
aperture

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RZR
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quote:
Originally posted by Jamers:
Did you fully treat H. Pylori? It can cause acid reflux/burning chest, and ulcers. I vomited and my LLMD tested me for H. Pylori. I haven't had a problem since treating for that.

A stool test can tell if blood is in your stool from an ulcer or something else. I think that Flagyl is what helped the nausea/vomiting the most! Flagyl has been a great help!!

This last week I had full body pain including my ribs (which are generally achy) and bad pain in my legs and tendons. Im only treating lyme currently and no longer herx on Rifampin.

H. pylori was treated several months because that's the meds LLMD had me taking anyway....Amoxicillin, Biaxin.

LLMD is also a naturopath and doesn't like PPIs, so I used omeprazole for about 10 days total.

--------------------
Tick bite May 2009
Diagnosed June 2009

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glm1111
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I used to get rushed to the hospital via ambulance with severe abdominal pain, projectile vomiting and diarrhea.The docs never figured it out.

Turns out I was full of parasites that went undiagnosed. Have you treated for parasites?

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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lpkayak
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"'All doctors act like my stomach is just messed up from taking abx. "

and so what are thye gonna do about it?????

GRRRRR. above ideas are all good and need to be checked out.

i hate the omneprazole i take...i hate how it makes me susceptible to parasites and other bugs.

but without it i am susceptible to cancer. if you feel the burning...it can lead to cancer. im not saying it will and im not trying to add stress...but it can...and you have to weigh the good and bad with all tx

also...grrrr. "just abx..."

i know of one person who died from severe yeast. so it is not a simple problem and should not be dismissed.

sorry-guess my lyme rage is showing

--------------------
Lyme? Its complicated. Educate yourself.

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Catgirl
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Cabbage juice is good for ulcers. Also fennel is a good digestive aid, as well as aloe juice.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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RZR
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quote:
Originally posted by glm1111:
I used to get rushed to the hospital via ambulance with severe abdominal pain, projectile vomiting and diarrhea.The docs never figured it out.

Turns out I was full of parasites that went undiagnosed. Have you treated for parasites?

Gael

Yes....parasites are still a problem. Been treating them for 1-1/2 years and still see them.

--------------------
Tick bite May 2009
Diagnosed June 2009

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aperture
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RZR to actually see parasites and be so calm...I absolutely admire your strength.

If you need a PPI, I'd take a PPI. It wouldn't be the end of the world, especially if it brought you some relief.

My husband was on Prilosec for several yrs, but our LLMD took him off because long-term use interferes with absorption of nutrients or something like that.

He's only on something called Stomach Comfort and uses an Aloe Vera juice to help soothe.

But....frequent, bad reflux can also end up causing Barrett's Esophagus, so if the Stomach Comfort and Aloe Vera juice weren't helping, we'd rethink the need for Prilosec.

--------------------
aperture

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dbpei
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Did you try Alka Seltzer gold? That might help and is recommended by many of the LLMD's to help with GI herx symptoms. I would go get checked by your MD or go to the ER - though so you can rule out complications with your organs. Please take good care.
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Keebler
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-
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/114859?#000000

Topic: FOOD POISONING ? Links
-

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Tammy N.
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When I am in a pickle like this, for me, it's best to stop EVERYTHING, even things I feel sure are good for me. Everything (except maybe some electrolytes). My body regains its balance once I give it a break with everything.

Hope you feel better quickly. I know how scary this can be. Been there many times. God bless.

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RZR
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quote:
Originally posted by aperture:
RZR to actually see parasites and be so calm...I absolutely admire your strength.

If you need a PPI, I'd take a PPI. It wouldn't be the end of the world, especially if it brought you some relief.

My husband was on Prilosec for several yrs, but our LLMD took him off because long-term use interferes with absorption of nutrients or something like that.

He's only on something called Stomach Comfort and uses an Aloe Vera juice to help soothe.

But....frequent, bad reflux can also end up causing Barrett's Esophagus, so if the Stomach Comfort and Aloe Vera juice weren't helping, we'd rethink the need for Prilosec.

Calm? No....I am still freaking out from the parasites! LOL! LLMD is treating them, but they won't go away.

--------------------
Tick bite May 2009
Diagnosed June 2009

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glm1111
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It can take several yrs to get rid of parasites. You also have to make sure that what you are taking kills the eggs and larva.

Possible that you might have some dead and dying parasites in your abdomen and a warm water enema or colonic could help get rid of them,

FYI, parasites can cause extreme pain and burning and I speak from experience. I got rid of thousands of eggs by taking fresh cloves. Just some added thoughts.

Hang in there...I know this is not easy.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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RZR
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quote:
Originally posted by glm1111:
It can take several yrs to get rid of parasites. You also have to make sure that what you are taking kills the eggs and larva.

Possible that you might have some dead and dying parasites in your abdomen and a warm water enema or colonic could help get rid of them,

FYI, parasites can cause extreme pain and burning and I speak from experience. I got rid of thousands of eggs by taking fresh cloves. Just some added thoughts.

Hang in there...I know this is not easy.

Gael

Can you please tell me how much cloves I should take daily? I have been taking some clove capsules, but not on a consistent basis.

Thanks for the tip on enemas. I do daily coffee enemas to help kill the parasites and clear the colon.

--------------------
Tick bite May 2009
Diagnosed June 2009

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RZR
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After much googling, I think doxy could be causing the majority of my problems right now.

I've had my fair share of stomach woes, but this is actually the first time food feels like it's stuck directly below my breast bone.

I didn't think of the doxy because I had been on it 3 weeks, but seems like it could be the culprit.

What are my choices? Will anything else get rid of erlichia? I had 3 weeks of doxy in the beginning of lyme treatment...2-1/2 years ago.

--------------------
Tick bite May 2009
Diagnosed June 2009

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randibear
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i've looked all over for akla seltzer gold and can't find it. do you have it order it online?

--------------------
do not look back when the only course is forward

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Sammi
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RZR, are you eating something substantial and non-dairy before taking Doxy?

Are you drinking a full glass of water with Doxy and not laying down for at least an hour after taking it?

I had the food feeling you described when I was on Doxy until I started drinking a lot more water when I took it.

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dbpei
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I ordered the Alka Seltzer Gold from Amazon. It was hard to find. It did not take long to arrive and was not expensive.
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kelmo
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Thanks for the Alka Seltzer gold recommendation. Occasionally, my daughter's stomach hurts. She drinks aloe juice, but I think I might get her this to get her through.
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RZR
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I forgot I have some Alka Seltzer Gold. I will try that....thanks!

--------------------
Tick bite May 2009
Diagnosed June 2009

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RZR
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quote:
Originally posted by Sammi:
RZR, are you eating something substantial and non-dairy before taking Doxy?

Are you drinking a full glass of water with Doxy and not laying down for at least an hour after taking it?

I had the food feeling you described when I was on Doxy until I started drinking a lot more water when I took it.

I have been eating well with Doxy and drinking water, but will try increasing both. Breakfast is hard for me...not enough choices with avoid yeast, milk, etc.

I don't lay down for at least an hour. I was so sick this week, I went to sleep sitting straight up! LOL!

--------------------
Tick bite May 2009
Diagnosed June 2009

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Jamers
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A lot of antibiotics actually give me heartburn or acid reflux. Mepron, Biaxin, and Flagyl to name a few.

--------------------
Diagnosed Pos. Lyme Nov. 17, 2010, Igx.
Pos. Babesia Duncani March 2011, Igx.
Clinical diagnosis for Bartonella

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Lymetoo
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Try taking it in the MIDDLE of a meal. You may also need a PPI to get through treatment. I did. But now I can't get off of them!

--------------------
--Lymetutu--
Opinions, not medical advice!

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ktkdommer
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I bought Alkaseltzer Gold today at Swanson's vitamins. I got free shipping on my order of $50 or more.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

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dbpei
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I make a big breakfast each morning to have the doxy and rifampin with. I make oatmeal and dice half an apple to have with. I add a little honey or small amount of maple syrup and some all spice or cinnamon. I always have a piece of whole wheat toast too. I sprinkle 2 tbs ground flax seed on the oatmeal and pour almond milk over it. This works really well for my stomach to cope with the ABX and it keeps me satisfied for a few hours in the morning until lunch.

Also, Amazon will give you free shipping if you spend $25! A good thing!

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RZR
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I eat oatmeal some, but afraid of yeast issues. Had it today actually, but still severe nausea. Toast would definitely cause yeast for me.

I would love almond milk, but thought I couldn't have that because of the calcium interaction with doxy.

--------------------
Tick bite May 2009
Diagnosed June 2009

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RZR
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quote:
Originally posted by Lymetoo:
Try taking it in the MIDDLE of a meal. You may also need a PPI to get through treatment. I did. But now I can't get off of them!

I broke down and took omeprazole yesterday evening and this am. It did help the reflux feeling, but not the nausea. I am going to take them for a few days.

I have parasites, so hate the thought of taking a PPI.

--------------------
Tick bite May 2009
Diagnosed June 2009

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RZR
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I am on lots of meds....Rifampin, doxy, Ceftin, and plaquenil.

Would it be ok to reduce doxy dose to 100 mg twice daily for a few days to see if doxy is the culprit OR can I eliminate it for a few days while continuing rest of meds?

I would like to figure out what's going on before I call my LLMD.

--------------------
Tick bite May 2009
Diagnosed June 2009

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Sammi
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RZR, it is hard to sleep sitting up! I hope you don't still have to do this.

I didn't know you were taking Rifampin also. I had extreme heartburn/stomach pain with Rifampin unless I took Prevacid. The Prevacid worked for me. I did not take Rifampin with Doxy though.

I wanted to stay on Rifampin because it was a good med for me. Then I found out it interacts with Armour Thyroid. It did affect my thyroid levels, so I had to stop taking it.

If you are eating enough and drinking enough water with the Doxy, Rifampin may be causing the problem.

Below are some Rifampin side effects listed at medicinenet.com at http://www.medicinenet.com/rifampin-oral/article.htm
This drug may cause upset stomach, heartburn, nausea, menstrual changes, headache, drowsiness, or dizziness.

I hope you can figure this out soon.

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dbpei
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I have not gone gluten free because I don't seem to have yeast or inflammation issues (and eating healthy carbs is one of the few pleasures in life that I still enjoy...) I take kefir every day as well as probiotics.

The rifampin and doxy can be really hard on your system. I read that almond, coconut and soy milk are all nondairy so are okay to take near ABX. I hope this info is correct because I've been doing for a while!

Some home remedies for acid reflux include a good quality apple cider vinegar, delicious apples and honey as well as licorice root tea. They don't need to be taken together but all have healing effects on the esophagus lining.

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RZR
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dbpei....

Here is a link to a recent discussion I asked about almond milk and doxy. It's all so confusing! I too thought almond milk would be fine, but mine does have calcium in it.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/115328?#000000

--------------------
Tick bite May 2009
Diagnosed June 2009

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dbpei
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Thanks RZR. I didn't even think about the calcium component. That is a bummer because I also use it in my decaf in the morning. I am going to need to find something else.

I still really enjoy that cup of coffee first thing and cannot drink it black. I don't think my stomach could tolerate either. And I drink green decaf and herbal teas throughout the day but they just don't do it for me first thing in the day.

My sister's pharmacist told her that a little half and half or cream is okay to take near your ABX because it contains so little calcium. I wonder if any of you have checked into this. That would be great if I could have that with my decaf coffee!

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sammy
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You could try a different brand of almond milk. The one I like doesn't have calcium added. It's pacific brand unsweetened vanilla almond milk, check the nutrition label here:

http://www.pacificfoods.com/our-foods/nut-grain-beverages/organic-unsweetened-almond-vanilla-non-dairy-beverage

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jackie51
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Although I didn't stay on rifampin long, my LLMD wanted me on Prilosec while I was on it. I told her I didn't like prilosec but she said it was necessary to help the rifampin. Not sure why. If I remember, I'll ask next visit.
Posts: 1374 | From Crazy Town | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by RZR:
[QB] I am on lots of meds....Rifampin, doxy, Ceftin, and plaquenil.

Would it be ok to reduce doxy dose to 100 mg twice daily for a few days to see if doxy is the culprit OR can I eliminate it for a few days while continuing rest of meds?

I would like to figure out what's going on before I call my LLMD.

-
Boy, just one of those would do me in!! I would personally do what you suggested, but I'm not giving you medical advice.

--------------------
--Lymetutu--
Opinions, not medical advice!

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lyme-o
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Call your LLMD. Better safe than sorry
Posts: 305 | From United States | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
   

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