randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i had my eeg today. it's the one where the put the electrodes all over your head and then you close your eyes and this light flashes on and off for about 10 minutes. it keeps getting faster and faster.
then you just lay there for half an hour.
she scrubbed my head at each electrode site, there were 22, with a small scratchy stick. it really hurt as my head is very sensitive.
my temples hurt especially. now i didn't have any seizures or anything but right now my head hurts. i dread tonite.
has anybody else had one of these?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I've had 8 of them. (5 EEGs, 3 QEEGs).
Just the experience of going there, getting the scalp rubbed raw with the sandpaper & the chemical assault of the cleaner and the glue - getting through the test and coming home.
That's a lot for many of us.
But the EEG itself is unlikely to cause a headache from the electrodes themselves. They just measure what is going on electricity wise. It puts no signal into the head.
Still, your eyes and brain did get a workout and that could trigger a headache.
Drink water, be sure your magnesium & fish oil - and adrenal supports - are on board and rest. I would avoid TV or computer until the headache is gone, though.
It's also a good idea to avoid all fluorescent lights.
I hope you feel better. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i don't know what this dang test is supposed to show anyway.
think i'll go to bed early tonite and crash. for some reason it has totally wiped me out.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I had one before my diagnosis of Lyme when they were still trying to figure out what was going on.
For me, I ended up with a headache but in hindsight, I know now that it was the flashing lights that got to me.
In my case, they told me I was having seizures, back when I felt sure I had NO SIGN of them. It wasn't until I started Lyme Treatment that I found that I did have them.
But I'm sure there are all sorts of things they can tell from these. I hope you feel better soon.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had that test. It didn't show anything in my case.
I think I just felt really tired from having to go there and submit to it. This was before I got to a lyme doc and I wasn't on any meds for my disease.
A neurologist ordered it along with a spinal tap that didn't show anything and a brain scan that showed two UBOs (unidentified bright objects).
So, after the battery of tests, I got yelled at by the neurologist and told that I did not have lyme in my brain. End of appointment. No treatment for anything, no looking for any problem to explain all my terrible symptoms, no need for any more appointments.
I was abandoned. Fine. I didn't want to ever see that guy again anyway. It all drove me to a lyme support group to get a lyme doctor. So, in the end it turned out well.
Posts: 9931 | From Maryland | Registered: Dec 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
well i've learned never to mention lyme at all. only dang reason i'm having this done is the pain of these daily headaches which never stop.
my sister recommended something called "migrelief" which is supposed to help.
that's 3 out of 4 of us that have migraines now.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
TF- I have wondered why, when we mention Lyme - do they not even want to talk to us or diagnose us for anything else possible?
I went to a Rheumy, he fell all over himself after I said I had Lyme. He even went into his office and googled the name of the doc who had originally told me about Lyme.
He came in and said my doctor seemed like a good doc - why was he saying Lyme? I think he even said the dreaded "there are no ticks in California" - like that is true and I never go out of state.
He touched around my shoulders and said "no fibro" and booted up the computer in the exam room and started looking up Lyme.
By the time I scurried out I felt like he was looking at me as if I had dumped a thousand rats carrying bubonic plaque in the exam room.
Why do they become so undone?
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I loved the TV program "Twilight Zone" when I was a youth.
That's very different now, though. Too real. Oddly, my ability to relate to the characters in that program helped me navigate these waters today.
I know what's real, they don't. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Had many of the EEG tests - all showed nothing in my case. I found them pretty easy to endure.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I had an EEG a few years ago.
My head and neck hurt with stabbing pain from the moment they wired me up until the moment they took all the electrodes off. I don't know why. I could not relax when they told me to do that. The pain was there no matter how I positioned my head.
That night, my head was covered with itchy welts.
Then, I had a take-home sleep test that involved some kind of related equipment. The device sat on my forehead. As soon as I put the device on my head, my head started hurting just like it had for the EEG at the hospital.
I could tolerate it barely for about an hour, and then gave up...the pain kept getting worse and worse and worse the longer I had that thing on me. The pain subsided instantly when I took the thing off.
I don't know why these machines cause my head to hurt so severely. But I'm never going to get another test like this done if I don't need to...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Bad night. Major head pain and throbbing in temple. Right side numb dizzy. Just don't feel well. Am going to cancel MRI today and stay home/
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
they didn't say. the doctor is in only tuesdays and thursdays.
they said he would have the results of the tests tuesday, but since i cancelled the mri and am having it on tuesdays, i won't really know anything until friday.
i am not having anymore tests done, bloodwork fine, but no tests, period. i've had it, i mean i've had IT...
finished kaput, kapiece, fini, done, over,...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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