Topic: If u did rocephin, how long till you saw improvement?
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Everyone's different, had good 1st 2 weeks, herx, salt, downhill since then. Started b-12 methylcolbaline shots, feel worse, more energy, but mind more active, depersonalization worse.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
I was on Rocephin in 2007-2008. I noticed improvement within a month. My neuropathy pain was much less and my sleep was great. I was waking up feeling so good. I was on for six months and then had a gallbladder attack. They took me off Rocephin and within 6 months I started going backwards.
I would have stayed on longer as it gave me the most improvement...
Posts: 343 | From North Carolina | Registered: Oct 2008
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I was on IV Rocephin for 4 months. �I saw grand improvement in the first two weeks. �I got 95% better and was ecstatic. �
Symptoms started to increase thereafter, from a list of 3-5 symptoms to 2 pages worth. �
I believe the problem might have been that I was not given a cyst buster. �Through the course of Rocephin administration I could feel an increase of bacteria load in my blood. �It lead to appendage numbness and tingling.
In retrospect I would have taken the IV with Biaxin and Tindamax or Flagyl as well as GSE. �This would break up the biofilm and reduce cysts. �Tindamax and Flagyl are also great for coinfections, Biaxin is also useful for coinfections.
Posts: 2087 | From NY | Registered: Oct 2011
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lymeboy
Unregistered
posted
2nd Lymein DC. Rocephin seemed to stir a bunch of stuff up for me. But I was given the IV as Monotherapy, without a cyst buster, and it really wound up being a waste of time. I think Rocephin would be best paired with a cyst buster, and probably another abx.
I am not a doctor, but this was my experience. I have heard many similar stories to mine.
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lymeboy
Unregistered
posted
Im sorry, I meant to say 2nd that, Lymedin 2010. Where is my brain?
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