nonna05
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Member # 33557
posted
HELP! PLEASE!! Went to a more "natural" type Medical helper,for lack of better word....
Took blood drop and looked at microscope.... Said blood not moving, stuck, fibers of food didn't digest, showed toxic bowel start.
Said so much die-off, body can't handle load.
Also lack of nutrients actually getting in/used.
Oxygen and low enery cause body not clearing ...and wrong foods for blood type..
I'm getting LLMD treatment/ And I've felt this rotten before treatment..
This "DOC" is saying SLOW DOWN..take meds /just not as often ,so body can clear them out.
What in the world do I do with this info??
I know many have been on treatment forever and I've been on LLMD treatment for 8 month's.
But was on med's before ,some right-on for LD . Not so much for co-infections.
Doesn't it mess up thing's if not consistant??or does body need day's off. or how do I get my blood flowing and toxins out....
I do lemon water. Chorella, The C binder sp? take enzymes when remember or can fit in..Probiotics.
WHAT SAY YE ????????????
General opinions. do I go to a blood specialist??
is there such a thing?..Is this LYME and it's problems??/
I just felt so iffy after appt...it took 2 years to see this guy.
HAVE A BLESSED EASTER !!!!!!!!!!!
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
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So, basically, this person said that you need to detoxify your body.
This may be why you are so very, very sick. I know you have seen the posts about people with a genetic inability to detoxify.
If you are one of them (and it seems like you may be), you will need to take products that help you detoxify.
A top notch lyme doctor knows how to deal with such a patient, but one who is not so top notch may not know.
For example, Dr. H is now giving all his patients IV glutathione at their first appointment with him. He says it opens up the detox pathways. Many people have told me how great this IV push has made them feel.
Dr. H has his patients take glutathione to help them detox. It can evidently be taken in many forms--suppository, etc.
Lemon water won't be enough for a person who can't detoxify.
I never had the problem, so I can't speak from experience, but I knew a lyme patient that did have the problem. Her lyme doc didn't know enough to help her, so she had to seek out other practitioners to help her.
When a person can't detox, lyme treatment will make them very sick. So, they really need a doc who knows how to help them detoxify their body to eliminate all the dead germs the lyme treatment is creating.
So, of course, the best solution for you is to find a lyme doc who knows how to help a person like you. You can't start messing with your lyme treatment on your own.
You need a doctor who can detoxify you as he treats you for lyme.
Lyme DOES cause blood to get "thick" for many people. The thick blood can't get to all the tiny blood vessels, so it causes many symptoms such as brain problems, numb extremities, etc.
A good lyme doctor knows how to treat a patient for this also. I never had this problem, so I am not the best to speak to it. But others on this forum have been treated for thick blood.
Again, a top notch lyme doctor can handle a patient like you who has all of these problems. If your doc has not recognized that something is wrong in your case and that you are not progressing for a reason, it seems that your doctor doesn't know enough to help you with these issues.
But, there ARE doctors who know how to handle these things. I believe some give their patients IV treatments in the office that take care of the thick blood. That's about all I know about it.
Here is a segment of notes a person took on Dr. H's talk on this subject at the 2010 Lyme Conference:
Herxheimer reaction (from 2010 Lyme Conference, Dr. H):
Take-home message: DETOXIFY YOUR LYME PATIENTS! It does NOT matter what antibiotic you give people, they will NOT get better without detoxification
For Herxheimer reactions: 2 Alka-Selzer Gold (no aluminum) in 8 ounces of water with lemon or lime followed by 6-8 capsules of glutathione or 1500 mg of oral liposomal glutathione.
70% will feel better in hours
On the topic of water: Dilution is the solution to pollution. This suggests that in order to help our bodies detoxify, we must drink more water
I hope others will come along and provide more guidance to you on the topics of inability to detoxify and hypercoagulation.
nonna, if you have both of these issues, it certainly would explain why you are so very sick and not getting better in spite of lyme treatment.
I had a blessed Easter day today. Wish you a blessing also.
Posts: 9931 | From Maryland | Registered: Dec 2007
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nonna05
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posted
up with the other two
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
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posted
T F ,,Thanks as always...Does glutathione pacth work well?????
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I don't know. I just know that the doc I consider the best in the nation (Dr. H) is giving the IV glut pushes, and a few patients have also mentioned that he put them on liposomal glutathione.
Neither of these is a patch.
One person said the liposomal didn't work on her, so she uses glut suppositories and sleeps like a baby.
Everybody says the IV works great. They are amazed at what it does for them.
Also, see the notes from his talk at 2010 Lyme Conference that I put in my post above. He is giving the amount of glut there. He is not mentioning a patch, as you can see.
I took notes on his talk at the 2011 Lyme Conference (Oct. 2011 in Toronto). Here is a statement he made then:
"Some of his patients get better with glutathione alone. It opens up the detox pathways (is an anti-oxidant)."
Posts: 9931 | From Maryland | Registered: Dec 2007
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Cass A
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posted
For "thick blood," this is a sign that you are likely ALSO infected badly with the parasite Dr. F found, that is similar to Babesia.
A symptomatic handling that works GREAT is Rechts-Reugulat, available from Bio-Pure.com.
This will get the blood flowing within days. Then, you can cut back slowly to a few drops a day or less. One bottle lasts me almost a year.
Of course, if you are detoxing, you'd be wanting to take chlorella 30 minutes or so before every meal you can. This binds to toxins in the gut, so you don't re-absorb them.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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TF
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Member # 14183
posted
nonna, you may want to read this post about peoples' experiences with glutathione.
Reading that information got me interested in hypercoagulation, as I have symptoms of fibromyalgia and fatigue.
Then I read that taking systemic enzymes will reduce fibrin, so I decided to try it.
Chronic infections like Lyme Disease cause the body to make more fibrin in the bloodstream.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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tickled1
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posted
up
Posts: 2541 | From Northeast | Registered: Jan 2008
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Cass A
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posted
Dear Carol,
Yes--fibrin in the blood is a big situation!
I also take systemic enzymes. As far as I understand it, these work best to clean out the plaque on the walls of the blood vessels themselves. My LLND particularly recommended Lumbrokinase to me, as this, he said, works best on the small blood vessels in the brain. I took this for 6 months, then switched to a product that had many different enzymes in it.
For me, the systemic enzymes didn't fix the hypercoagulation of the blood itself. Rechts-Regulat did.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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This is great news, that you may have found the answer to why you feel stuck in treatment and what is making you feel sick. I think you're on the right track with the information from this natural doctor.
First, you need to slow down on the antibiotic treatment and detoxify. You've got to clear out the toxins, as THEY are what is making you feel sick.
Thick blood means you need to take systemic enzymes on an empty stomach, such as bromelain, lumbrokinase, Wobenzyme, Rechts-Regulat, Neprinol, Vitalzyme, nattokinase etc. If you take systemic enzymes with food, it becomes a digestive enzyme, and defeats the purpose of thinning blood and fibrin.
If you're on IV's take additional heparin. Thinning your blood will make your legs feel less tight, will get the antibiotics absorbed better, and reduce inflammation.
Toxic bowel means that you need help move the toxins out of the colon. What are you taking daily to ensure you are cleaning house and getting rid of the toxins in the bowel? My favorite product is Oxy Powder, and take it every night before bed. Any good magnesium based product will work to bowel tolerance. If you don't get the toxins out quickly, they sit in your bowel and get reabsorbed.
If you're overly toxic, I agree with the IV glutathione push. I have heard it works wonders. In fact there was another lyme patient who only got sicker on antibiotic treatment, and went to a naturopath who recommended IV glutathione and a cocktail of different vitamins. She got out of the chair and back to work in a month! All because of toxins and nutrient deficiency.
Did this natural doctor make any recommendations?
Posts: 964 | From san diego | Registered: Oct 2009
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nefferdun
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I have a glutathione patch. I can't say how well it works. It is kind of expensive - about $80 for 30 of them. It is supposed to stimulate your body to produce more glutathione. I just started using it a few days ago. If you can get IV, that seems like a better idea.
If your blood is hypercoagulated, you could ask your doctor for heparin shots which thins the blood the most quickly. I did them for about two weeks. There is a heparin nose spray too but it is not as effective. You do the shots two or three times a day in the belly fat.
Then you can take lumbrokinase or boluoke (more expensive) to keep it thin. You need to take 2 caps 6 times a day on an empty stomach. It you don't start with the heparin, the boluoke will thin your blood 10-20% in a month. You might want quicker results.
You can also take some of the precursors to glutathione like alpha lipoic acid and methylfolate. ALA helps with detox. If you have the CBS mutation though, then you need to hold off on it. Can't remember why.
You can lower your coagulation and need for detox by sticking to a low fat vegan diet. If you have FL1953 it thrives on lipids and arginine. FL1953 is the main culprit for producing biofilm which makes the blood thick. Arginine is in high protein foods like meat, fish, poultry and nuts and seeds.
The problem with going to any doctor and getting pumped full of a recipe that is good for most people, does not mean it is good for you. When you are as sick as we are, we need to get tested to find out what we can tolerate.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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tickled1
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posted
Is there a specific test to determine if hypercoagulation is an issue?
I do IV glutathione and it is wonderful....but expensive!
I read somewhere that alpha lipoic acid is great but enough glutathione already needs to be on board or else it can cause mania. However, I believe that with enough glutathione it is very beneficial for bipolar disorder.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
If you don't have a line, (I did IV glut and it worked great, but highly expensive) you can also get inhaled glut with a prescription from a compounded pharmacy.
It works really well , about 70 dollars for a months worth (using 3-5times a day)
Posts: 298 | From usa | Registered: Aug 2009
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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nonna05
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posted
baileypup..his fist suggestion was to change to the BLOOD TYPE DIET
There's a book on it...and to back off a day or so here and there with "KILLERS MEDS" and only do support supps/vits/etc.
He gave me an enzyme that he actually makes at his main location<calls it a pharmacy>,,had several items ..only suggested two,.
Said body to backed up ,just needs to get flowing.
Then said I need to mantra/pray/repeat...."Slow down".. .Hard to say to someone in bed/ bedroom/or good days downstairs in recliner or on couch .
But I think he meant I was trying so hard and getting stuck...
that I had to get thing's flowing ,get oxygen moving , eat different,,,but not the blanket remark like everybody else
>>NO milk/dairy/wheat/sugar..more to the blood type.
Nef: Let us know how the patches work,,I bought some
Thing is ..I have the liquid Glut.
Have tried ,before diagnoses-- IV.3 times, have had nebulizer kind ...never noticed difference .
The enhaler kind just clogged breathing and chest.. Looking back , who knows ,maybe a reason.
Was art tested for it and came up negative ,but that was 1 1/2 years ago..
This all when knew was sick just didn't know what..ALso remember those steroid shots in 2010 Sring /Summer,, gas on flame.
Also Keebler or Razzle??? mentioned Tylenol interfers with glutathione. I mentioned this to LLMD and he put me on N.A.C.....
After a few months of treatment the numbness and some deep thigh,knee, leg pain, and leg jitters went away,,,for a while,,.fatigue/ body pain /weakness not touched.....
,then tried an ABX, didn't want, but told to give it a try and symptoms came back ,,now several weeks after, still here.
I tried a cardiologist, mentioned sluggish blood, breathing at times, weak , fatigue..pain in legs
blew of any illness that could be blocking blood flow..rolled eye's...
Sorry so long....I need to comply with LLMD...and wasn't sure about these "breaks"
Not sure if there's a test for Hypercoagulation...
Super big problem is how much it takes out of me to write this/get to a doctor appointment/find one etc,
I actually missed one of my LLMD appts. ...to sick to move or call...That day. You just don't do that....
Diagnosed in Aug. ,sick over five years , maybe couple more. Am I just expecting to much????
As my left leg jitters away, darn it, thought that was gone.. Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
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posted
Just grabbed Glutathione bottle.....from LLMD..
Sulfur bearing antioxidant..
good for detox regenerates c and E
I thought E was iffy if you were taking one of the Abx's and
Q-10 if Mepron
Lot's of talk about sulfur on here /sulfite's/nightshades/then med..//////??
I know ever body wants to be well ..I just want to thank those of you who are trying to help....
Here come the tears Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
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Just grabbed Glutathione bottle....
Sulfur bearing antioxidant..
good for detox regenerates c and E
I thought E was iffy if you were taking one of the Abx's and or supps?/
Like Q-10 is good unless if on Mepron, and it probably helps blood
Lot's of talk about sulfur on post's here /sulfite's/nightshades/then med..//////??
I know ever body wants to be well ..I just want to thank those of you who are trying to help....
Here come the tears Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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You will get better....I agree with lymetoo, just slow down and know that good things are coming your way.
I know it's difficult when you want to do whatever you can, learn it all, to get better fast. Unfortunately, sometimes slow and steady wins the race.
This is always my recommendation, but listen to your inner voice, because you intuitively know what is right for you.
With this disease, we get overwhelmed with too much information, and too many options, and too many diet restrictions, and too many supplements.
I think your natural doctor gave you some good advice. Now you determine what is best for you.
Posts: 964 | From san diego | Registered: Oct 2009
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