posted
You can donate, but they will reject it. Before I knew I had lyme, I tried and they sent me a letter saying it was rejected. But in big capital letters, YOU DO NOT HAVE HIV. But no specific reason for rejection.
Posts: 184 | From taking pills | Registered: Oct 2011
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posted
Babesia should be on there. I know it used to be.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- SixGoofyKids, TuTu
Babesia is further down the list: ---------------------
Serious Illness
Those who have had infections with Chagas Disease, babesiosis or leishmaniasis are not eligible to donate blood.
Those with systemic lupus erythematosis, multiple sclerosis or systemic scleroderma are not eligible to donate blood. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
So they actually test donated blood for lyme and babesia? That is surprising. I just got a new license and have always been an organ donor, but I put no this time because I wouldn't want someone getting my infected organs.
-------------------- Treating lyme, bart and babs Posts: 506 | From NE | Registered: Dec 2011
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posted
Keeb.. I think they DO mean to say ACCEPT.. in other words, to "accept" those with this condition or that condition.
--
Allergy, Stuffy Nose, Itchy Eyes, Dry Cough
Accept as long as person feels well, no fever, and no problems breathing through mouth
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- TuTu,
Oh, my. You are correct. I'm the one who saw that all wrong, then. My mind must have been expecting an exception list and did a trick on me.
Deleted my post and I'm resting my eyes and brain - and mouth for a while now. Oy, Vey. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- My eyes missed this the first time around.
In re-reading that, I see - as "treatment" can be dangerously deceptive, at least they want people to wait a year after "resolution"
- and they DO acknowledge CHRONIC lyme:
Excerpt: ---------
Lyme Disease
Accept persons with Lyme disease if they were treated, the disease resolved and at least 1 year has passed.
Those with chronic Lyme disease are not eligible to donate blood. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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I wonder how they test the blood to determine Lyme and Babesia and how many bands have to show up. Yeah, I'm being a little sarcastic.
I also stopped listing myself as an organ donor. I guess I'd rather donate them to Lyme research. Anybody know how to get on that list? Now I'm being serious.
-------------------- Just a catepillar, full of imaginal buds. Posts: 143 | From Philadelphia, PA | Registered: Mar 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Ditto.
I am beginning to believe that the IDSA ID docs have found a cure but it's not yet ready for market so they are keeping it secret. How else to explain that none of them have been touched by lyme (or their beloved family members)?
Do they never interact with nature? (Though that could explain some of their disconnected demeanor.)
And I deeply apologize to anyone who got the blood products I donated before I learned what was going on with me.
All the doctors said "we can find nothing wrong" so I assumed they had actually explored all the possibilities and that I was safe to donate. They had not. I was not. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I think we should ask the IDSA people in a courtroom if they are so confident that chronic lyme exists that they will accepts blood products from a lymie.
One way we could get recognition, and the other way, they would understand what we go through and not be so callous.
They would probably think twice about things...
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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posted
I thought that once you had Babesiosis, you were excluded for life from donating blood! Can anyone clarify this?
Posts: 8981 | From Illinois | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You said that you "thought that once you had Babesiosis, you were excluded for life from donating blood" (end quote)
You are correct.
That site above details those with babesiosis are not allowed to donate (the wording suggests forever but could be stronger language than just "had").
This is in line with the main Red Cross guidelines.
Those who have had infections with Chagas Disease, babesiosis or leishmaniasis are not eligible to donate blood. (end excerpt) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks, Keebler, for the clarification. You are a wonderful resource and I am very grateful for all the information you provide.
God bless you and please know you are in my prayers, as are all those ill with this horrible disease.
Posts: 8981 | From Illinois | Registered: May 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
On the IDSA Guidelines writers: If you think that they don't know the truth about Lyme, you would be sadly mistaken. They absolutely know. Read their own prior research, which is readily available on PubMed. It says the exact opposite of what they state in the Guidelines.
In addition, when one of them had Lyme himself, he availed himself of many weeks of IV abx beyond what they allow in their guidelines.
So, yes, they know well. It's just that it benefits their bottom line to say otherwise. Unfortunately, they probably sleep very well at night, hard as that is to understand.
And the blood donation issue is beyond horrifying. Yes, I gave blood a very long time ago (but long after I had it in retrospect).
What Dr. J said in Under Our Skin applies, someday they will be asked: "What did you know, and when did you know it." (I may not have his wording exactly). I hope I see that day, but I'm not holding my breath.
Posts: 3771 | From around | Registered: Mar 2008
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posted
I do not care what the rules are. Knowing what I know about Lyme and Co., I would never even consider "donating" blood. I think it would be just plain wrong.
-------------------- enjoy the day.
-jmb Posts: 208 | From Maryland | Registered: Dec 2008
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posted
jmb - I completely agree with you. I just would never-ever at this point.
However, during my 3 years of undiagnosed illness, I donated numerous times. I knew I was sick, but docs couldn't find anything wrong with me. Last thing I ever thought was some sort of infectious disease. Once I was diagnosed, I did call the Red Cross and inform them.
Still feel terrible about it. TS
Posts: 566 | From West Coast | Registered: May 2008
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