posted
i have high hhv6 levels, lyme, babesia, yeast, lead, and maybe mold. is there a natural alternative i could take to valcyte to help with the hhv 6 virus? valcyte made me feel soo tired. i dontknow if this was a side effect of the med or if this was my body getting sick fromkilling the virus.
Posts: 723 | From boston,ma | Registered: Jan 2011
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I take SEAGATE Olive Leaf Extract (4 capsules, 4 x day for total of 16). Myrolea-B has also helped in the past. I recommend only either of those two brands for OLE capsules.
I've not been able to have HHV-6 follow up test to check levels but this is just the best I can do with what I have.
I feel better on this and sense it's helping when I take it. I'm still far from successful and there's more I should be doing but, right now, OLE is the only thing I do. And it's some help.
==================
Search Google and PubMed: Olive Leaf Extract, HHV-6
Find here at LymeNet: posts on HHV-6 by TIMACA
Get: the Morton Walker book about OLE (page 119 discusses HHV-6)
Search: his article through Townsend Letter -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- L-Lysine is also a possibility. It has a synergistic effect with OLE, I think I recall reading (in Walker's book, I think). -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
There are some good "natural" anti-virals--monolaurin is one. The other names escape me at the moment.
There was a big study years ago about valcyte. Dr. Montoya somewhere out west was the doc running it. I don't recall what the end result was. I do remember that a lot of people reported severe side effects from the valcyte.
If you have lyme, babesia, etc. you might be better off hitting that stuff first. As for the yeast, ask your doc about diflucan and consider changing your diet. As for the high lead level, I can't advise, but my guess is that your LLMD would recommend that you chelate.
The mold is a biggie too. Remediate or remove. If you own your home, remediation is a must. If you rent, remove yourself from the environment.
Personally, I'd address the lyme, babesia, lead and mold issues first and foremost. That's just my non-medical opinion.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- TIMACA's thread (OTHER INFECTIONS TO CONSIDER where she discusses HHV-6) is listed here, near the end. She also has other threads so once you find the first one, click on her name and search her posting history.
posted
Valcyte made me really tired also so much so that I couldn't function at all so I decided to quit taking it.... I have high HHV6 titers too but my doctor said he couldn't be certain it meant reactivation.
Posts: 343 | From North Carolina | Registered: Oct 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- kim812,
The IgA would be the test to show if a persistent infection is more active -- IF I recall correctly. Details in TIMACA's thread as to the best testing methods.
[editing afterward: I realize that I may be talking about Cpn . . . but that IgA does figure into various infections.]
Still, if it's there there is usually no need to keep testing - and we are ill (for whatever reason) it's just good to cover all the bases as best we can with whatever helps us feel better.
kim812 & katrina: about the fatigue
I never took Valcyte as it reads to be potentially hard on the liver and mine is stressed to begin with so I've explored other options.
But, as it is hard on the liver can cause fatigue to be more profound, for sure. Anytime the liver is stressed, fatigue is right behind it.
If the Rx is desired, different methods of liver and adrenal support may help it be better tolerated. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/