posted
I need to vent! This has been going on for 6-7 years now and I am so exhausted from searching...I JUST WANNA GIVE UP!! I have done so much research over the years and I feel like we are back at square one! First it was hypothyroidsim, then insulin resistance, then CEBV and severe inflammation, then possibly Lyme, maybe Fl1953, seeking Fibro? I dunno what to do anymore. I have spent thousands and thousands of dollars seeing doctors, and nothing good has come out of it. I feel worse then ever, and I know this is bad....but wouldn't be easier to not be here dealing with this pain!? No one believes me, everyone thinks it is in my head! I want to have kids, but I am begining to think this will NEVER happen! I envy everyone that is healthy and they complain they didn't get enough sleep. PLEASE!! All I do is sleep like 10-15 hours and I can barely get out of bed! I just feel so alone sometimes....and I wonder how I can move forward now.... I think I need help...I feel like I am going crazy!
Posts: 148 | From AZ | Registered: Sep 2011
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posted
Can you come to California for Lyme treatment?
PM if you want more info.
Posts: 253 | From CA | Registered: Jun 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Lyme is a tough disease to deal with. I call it the loneliest disease and I get to go through it with 4 others in my family.
It sounds like you would benefit from a new good doctor. Don't give up. Health can be accomplished. I didnt' believe it for a while but it is coming to me. It will to you, too!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
After 4 yrs of abx and still being sick, I started antiparasitic herbs and the salt/c protocol. It saved my life and started me on the road to recovery.
I found that i was loaded with parasites/worms which can be considered a co-infection of lyme and is often overlooked even by LLMDs.
Check lymestrategies for more info on the salt/c protocl and do a search on here for parasites. Check out www.lymephotos.com There is hope.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Have you been to a good Lyme Literate Medical Doctor (LLMD)? That would be good to do. Go to the forum "Seeking a Doctor" and request a doctor in your area. Someone will send you a private message.
Also the website: www.buhnerhealinglyme.com has some good herbal approaches to Lyme and Co-Infections. And Glm1111 is right. Sometimes parasites/worms have to be addressed in order to totally get well.
This is good website for validation. We know your pain is real, not in your head.
Please don't give up.
Posts: 1358 | From Midwest | Registered: Apr 2009
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
All the ailments and diagnoses you mentioned are common in Lymies.....all in the same person!!!
Do you have a LLMD????
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
I really need to find an LLMD....how can I get these things covered through insurance....it seems my insurance won't cover anything...none of the tests etc. UGH!
Posts: 148 | From AZ | Registered: Sep 2011
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posted
I can totally relate. After *seven* years of searching, going in circles, losing hope, I finally found an integrative doc (in NY) who began a thorough investigation and found several problems including Lyme.
Finding a good doctor was the most useful/productive thing I've done in all these years. I'm sure you can find one, too. Unfortunately I don't know of anyone in AZ or around there but I'm sure they exist. Hopefully someone else can help you find one.
Insurance generally doesn't cover many of the tests, but I really think some are good investments.
In addition to tests for Lyme, co-infections, other infections (e.g, Chlamydia Pneumoniae, Mycoplasma, etc), and viruses, I would really recommend the following: -Methylation pathways panel -Stool analysis
Maybe this wasn't very helpful, I'm sorry, but I really think you will get to the bottom of this. Whether it's Lyme, co-infections, parasites, viruses, methylation problems, hormone dysregulation, nutrient deficiencies or heavy metal toxicity. Just make sure your doc is thorough.
Good luck!
Posts: 34 | From NYC | Registered: Mar 2012
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