bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Hi folks:
First..I am knocking on wood here big time.
Anyway..I wanted to update everyone on my progress. I was diagnosed in May 2010 after 5 months of illness. I've been in treatment for almost 2 years. Dx'd with Lyme, Bart, and Babesia Duncani.
I made rapid improvement initially and then was in a plateau more or less for most of 2011.
In January 2012 I switched to a new (very famous) LLMD and started a brand new protocol of Bicillin, Biaxin XL, Plaquenil, Cryptolepis, Mepron, and LDN.
3 weeks after starting the Bicillin I started to feel a bit off / bad. I had a big flare of my usual suspects of problematic symptoms. Namely vision weirdness, TMJ stiffness, fatigue, sweating, muscle twitching, neck pain, etc. This lasted for the entire month of March.
Well, here we are on April 17 and I have to say that I have felt really GREAT the past week.
Today I spent all day working in the yard in the hot sun. No fatigue. No major sweating issues (I have sweated profusely with minimal exertion for the past several years.) I have energy...my mind is clear, etc.
The only symptoms that I am noticing right now is minor tinnitus, minor / very occasional muscle twitching in my calves, and mild night sweats. But otherwise all is good.
I still have some distance to go. But I haven't felt this good in a really long time. And I wanted to report it to the group as I know everyone here appreciates good news.
posted
Sounds very familiar to me. I started bicillin and biaxin in early Feb. after a long plateau ,making great improvements. congratulations!!!!
Posts: 342 | From northern california | Registered: Dec 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
So happy to hear this wonderful news. Keep at it! I hope your treatment brings you all the way back to wellness.
Please keep us posted, especially after you stop meds.
Could you PM me on who your doc is?
Thanks, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
SO glad you hear it! Congrats
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Great news bcb1200!
Let your Lyme doctor know you are feeling well. I am sure he/she would love to hear some good news.
I hope your progress continues!
Posts: 4681 | Registered: Oct 2000
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posted
Terrific news. Keep up the good work.
Posts: 749 | From State full of ticks | Registered: Dec 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is great bcb. We do appreciate good news and we also like to know what is working for others so thanks so much for sharing.
Be on your guard and keep on treating until you are symptom free for two months. I hope that happens very soon.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
That's so great!!! I am happy to hear you are reminded of what 'normal' is again!! It's definitely a sign you are on the right track.
As you continue to improve, these periods of 'normal' will last longer and come more frequently, and bad days will become moments or hours.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Great news, thanks for sharing Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
That's wonderful!
Wishing you complete wellness!!!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Great news that you have noticed such improvement! That's what a great doc will do for ya. If I could see any doc, he would be one that I would choose.
Are you treating lyme and babs? I'm curious as to why this is working so well.
Posts: 964 | From san diego | Registered: Oct 2009
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posted
Such wonderful news!! Very happy for you, I pray you are on your way to a full recovery...
Posts: 143 | From Louisville KY | Registered: May 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
So happy for you bcb !
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Right on!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
would share directly with me name of doc? Shane
Posts: 6 | From Honesdale, Pennsylvania | Registered: Mar 2012
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
So happy for you! You give us all such hope by sharing this great news. Thank you!! Wishing you continued wellness.
Could you PM me with MD's name?
Posts: 2386 | From New England | Registered: Aug 2011
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Great News.
Posts: 1728 | From USA | Registered: May 2011
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Well I seem to have spoken too soon. After a month of feeling wonderful it is as if someone threw a switch yesterday. It started in the AM with a bit of a hoarse voice. THen fatigue set in.
Then flushing, hot flashes, dizziness, nausea.
Sweating more now. Feeling off / foggy.
Hoping it is just a flare. Seems very Babs like. And no, I don't think I have FL1953 as I tested 100% negative on The Dr. F test. And I don't have any other symptoms. Hoarse voice, yes. But I've had this off and on long before lyme. it is a GERD symptom for me.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
No!! Don't worry yet, it could just be an off day. I hope you wake up feeling great again tomorrow.
I thought hoarse voice could also be Bart.
Could you please pm me on who your doc is?
Feel better!
Posts: 2238 | From East Coast | Registered: Jul 2010
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
IMHO you are herxing on the Bicillin.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Low potassium can make you feel terrible and somebody on here said you have to watch potassium when on Bicillin. Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Plaquenil..How long have you been on that??...for some it not a Eye issue..
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
1200 did you get better again????
hope so Posts: 2563 | From Denver,CO | Registered: Aug 2011
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