Topic: Please help: picc out, new one in? Detoxing without drinking much
lyme in Putnam
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Not allowed to drink more than 32 oz cause of salt problem, can't take Epsom salt bath, doc said salt again. Llnd said no clay now. On Iv zithro, ceftin and tindamax 3x a week. Can do some lemon water, have mthfr llnd ordering supplements for detox, what can I do in the meantime to detox? Foods, llnd said to double probiotic, Anything in the house I can do?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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sparkle7
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How about a sauna or steambath?
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lyme in Putnam
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I'm not allowed really to sweat much cause salt is low , i already take 8000 mg salt to retain what i have and its below norm. taking bath later, could I add anything in that?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Keebler
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- If you do a sauna or steambath, you would need more water to rehydrate, though. That's important to keep in mind.
I know there must be reasons that your doctor (?) has you only on 4 glasses of water a day but I would just pass out by day one without at least double that. I do best with 3 x that.
I hope you can space it out for your comfort. Gargle & spit water often to refresh your mouth and help prevent tooth and gum disease. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- We must have been composing at the same time. ANY sweating, even in a warm bath, will need to be considered.
Hot weather, or windy days will change things regarding dehydration.
Exercise, massage . . . keep in mind water is required for that, too.
If you take Ibuprofen (or that in any OTC product) be aware that Ibuprofen can constrict blood flow to the kidneys and be stressful. As your water consumption is being severely cut, it would seem wise to avoid anything that can stress kidneys.
Is this your LLMD who has the water restrictions? If not, be sure to pass it by your LLMD as there may need to be some Rx changes.
If this is about sodium levels in your blood tests, I hope you are taking adrenal support.
ADRENAL dysfunction can really mess up sodium levels.
I just worry with your being so restricted with water. It's so necessary. One quart a day is barely enough -- but I do not have all the details, of course.
I would not want to take any meds with a water restriction as the liver and kidneys usually have to work harder with any infection - and any meds.
Except, of course, with whatever Rx you may be on for this problem - it may help.
Just don't let yourself become dehydrated. It's a very fine line. Dehydration can be deceiving and dangerous. I assume the doctor instructing you has guided you, though. Hope.
Good luck. Stay cool. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sammy
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Since you are on IV antibiotics, can you ask to try IV glutathione? My doctor prescribes this for me to use up to 2-3x per week as needed.
Usually they give the first dose in the doctor's office to make sure that you tolerate it well. Then they can prescribe it for you to take at home.
Posts: 5237 | From here | Registered: Nov 2007
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posted
My LLMD suggested Pekana detoxification and drainage kit. They are drops you put in water and take twice a day for liver, lymphatic and kidney function.
You may want to ask your Doctor about them, they have been wonderful for me.
I bought them at his office so not really sure where you could find them. Maybe try google.
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Tammy N.
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How about dry skin brushing. Also microsilica is great.
On a side note....my sodium kept dropping while I was on Anti-diuretic hormone, so I had to stop. Thought I'd mention this in case you are on it. I have dehydration issues. Didn't notice much benefit while on it. But I am a little drier now that I've stopped.
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lyme in Putnam
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Thanks for suggestions. Just squeezed lemon in water.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lyme in Putnam
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Thanks Tammy. its weird I can't retain the salt unless I have the lasix. As soon as my kidney doc took me off, my salt dropped way below the norm and the mind hasn't been the same since. Everything connected mind/body one, it just sucks every things a experiment.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Keebler
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- Who is tending to adrenal issues? Your LLMD? If the adrenal issues are not addressed, that can affect problems with salt, etc.
Are you on a good adrenal [& HPA-axis] support plan? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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seekhelp
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posted
Maybe would it be worth trying to get help for your sodium issue with a non-LLMD? I feel a lot of LLMDs try to delve into every medical issue when they are far from experts on it. Sometimes it hurts a patient.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lyme in Putnam
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I have a nephrologist for salt and my llnd is giving me isocort (1 pellet) and adrenal drops (5), This whole thing is a catch 22. My llnd said she's looking into salt with Lyme. She has 4 patients this has happened to. Thanks so much for your help. Keebler, if I do more than 32 oz, my salt drops that's why I can't drink too much to detox.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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emla999/Lyme
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Lyme in Putnam said:
quote: its weird I can't retain the salt unless I have the lasix. As soon as my kidney doc took me off, my salt dropped way below the norm and the mind hasn't been the same since.
Hyponatremia is also sometimes caused by and refered to as "water intoxication" and "overhydration". Having excessive body water can dilute the sodium and other minerals in your blood and thus excessive water consumption can cause hyponatremia. And since Lasix causes you to urinate out water from the body then perhaps that is why the Lasix helps you retain sodium/salt better.
So drinking 32 ounces of water per day may possibly still be too much water for you to drink because you can ingest alot of water just from the foods that you eat. Fruits, vegetables, soup, meat and etc. all contain water. And some of the foods that we eat contain a large percentage of water.
Drinking alot of water can also potentially lower the blood levels of other electolytes/minerals in body such as potassium, magnesium and etc. Drinking excessive water can also discrupt your body's production of ADH (antidiuretic hormone).
For some people, drinking more water can be a good thing but for others it can be a bad thing.
lyme in Putnam
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posted
Help. Just got back from llmd. Put me on florinef and took out my picc line that got infected. I know my salt has been low
tthe last day or two. My mind is so messed up,. I'm taking a few days off everything to give my body a break. He wants me to get picc in other arm and continue. He mentioned I'm bicillin
shots. The only break mentally I had was rocephin in the beginning before the salt dropped. I'm barely drinking. He's calling my kidney doc tomorrow and talked to my llnd. I'm so
stuck. If antibiotics are making my salt drop, I don't know what to do. He thinks I'm not making cortisol. Saliva test a few mos. ago showed I started at normal ortisol level and dropped down during the day to 1. On isocort and adrenal drops from
llnd. I'm tired of not knowing. I don't want another picc in other arm, but rocephin helped. On samento and smilax. Sorry if I said this already.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
Shame on your doc -- epsom salts has NO SALT. It is a combination of magnesium and sulphur.
This may be a stupid question, but why can't they do saline IV's if you have a PICC line. You might absorb or retain the salt better if given IV rather than orally? And I would think it would be a lot easier on your stomach.
I also agree with Keebler -- it does not sound to me like they are doing enough to support the adrenals. Are you taking vitamin C or B5 or B complex vitamins? There are many other supplements that could help of course, but C and B5 are the very minimum.
And many lyme patients do ok on low dose cortef -- hubby takes 5 mg daily but has been at higher doses during symptom crashes. As long as you are treating the infections then low dose cortef should be ok.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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I had no idea Epsom Salts has no salt! I knew it consisted of magnesium, but by virtue of the name, I just assumed salt was an ingredient.
I'm wondering if fluids like gatorade and/or tomato/V8 juice would be acceptable alternatives to water due to their high sodium content.
And yes, Bea it's a reasonable question to ask: why can't they do saline IVs to help the low sodium levels?
Best of luck to you LIP. I hope and pray that you soon find answers.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Keebler
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- Gatorade or canned tomato juices are not good for anybody. Details:
posted
Keebler, I have heard the gatorade is not ideal. I would guess the same holds true for pedialyte.
But gatorade as you know is often recommended to replace electrolytes. Too bad they don't have a product without the additives.
Also wondering if it would make a difference if the tomato/V8 juices were organic or not in a can?
And in thinking about saline IVs, I am wondering if it's possible to obtain solutions that are higher in sodium than typical. The usual solutions are pretty diluted.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Other than water and tea, most beverages are actually quite high in sodium. Milk and juice are among the healthier options for high-sodium drinks. Because milk can also be quite high in fat and cholesterol, opt for low-fat or skim milk.
According to MayoClinic.com, one cup of low-fat milk contains about 107 mg of sodium. Adding a few spoonfuls of malted powder to that milk adds even more sodium to the drink.
Check the nutrition label of various juices to find one high in sodium and relatively low in sugar.
Typically, vegetable juices tend to be higher in sodium than fruit juices -- although fruit juices are still quite high in sodium.
Sports drinks and soft drinks are another high-sodium beverage option.
And if you are looking for a beverage to warm you up on a chilly day, consider enjoying a cup of high-sodium soup broth.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Keebler
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- AlanaSuzanne,
I have trouble forming sentences often so just blurt out - this, not that. Rereading my prior note, it seems curt. It's not my manners but my brain.
As in the good article you just posted, so many processed juices just have so many additives and the nutritional content really can be terrible.
Their high salt content is of great concern. And they often use the wrong kind of salt. The sodium content in many beverages is just sky high.
My thinking is that is never good to consume any food with added salt but prepare fresh whole foods and then add the exact amount of sea salt that we want.
With "natural flavors" that can be additive and trigger anxiety when they add to the exicito-toxic state.
MSG is very often in those drinks - under hidden names.
Organic juices in glass are better choice, yes, diluted. But the WHOLE food is even better. Google can find foods with a good electrolyte balance.
There is a powder by the same folks who make Emergen-C, it's called
Alacer Electromix.
Still, nothing really beats real food. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sammy
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Regular normal saline IV's will not help LIP, they will only hydrate and possibly make the problem worse.
Special IV's might help but LIP would probably need to be in the hospital to recieve these infusions.
Check out this article to explain the difference between isotonic, hypotonic, and hypertonic fluids. It is really interesting.
LIP may benefit from a hypertonic infusion, if the doctor wanted to prescribe IV fluids to see if that may help.
Hugs friend, hope you are feeling better with your new PICC. Are you back on Rocephin now? Hopefully?
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lyme in Putnam
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Thanks all. Salt number in range yesterday, added florinef. I hate it. I'm completely nuts on it. Have to take it every other night to keep the salt level in check. I'll take it close to bed so try to sleep through it. Of course I have every side effect from it, mood changes, anxiety. Took it night 1st time, day 2nd time and wanted to go for inpatient. My husband calmed me out of it. I hate the stuff,I'd rather the lasix, but the salt drops on different antibiotics, not rocephin, but Iv zithro, rifampin, to me it's antibiotics that target Bart, which is the root of a lot of this. If I could get the balance i ihad back in February,that's my life, I'd be eternally grateful. Thanks.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lyme in Putnam
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New picc in on Monday, clearing infection on right arm new picc on left. Alcoholism looks better everyday. With tindamax, Iv zithro, rocephin,samento, smilax, I barely remember April. We all need a break, PLEASE GOD.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
Keebler, seriously? You underestimate yourself! You rock! And your post was not curt whatsoever! Your manners are perfectly fine. Give yourself some credit! I just hope that for all your hard work on behalf of everyone else that you are at least rewarded with the gift of health sooner than later.
Wow, Sammy, I never heard of isotonic/hypotonic/hypertonic fluids. I learn something new every day. This is very interesting. Hope you are doing well yourself.
LIP, hoping and praying that you find answers. There�s a lot of good info here � food for thought, like the different types of infusions Sammy mentioned. What a long road it has been for you to say the least.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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sammy
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I'm so sorry! I just realized I forgot to post the link to the article explaining the different types of IV fluids. No wonder you all probably thought my post was vague.
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