posted
If you have white spots on your brain MRI does that mean you should probably do IV treatment?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
No. I had them and they are gone. high dose doxy and Mino did the trick.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Nope. I had them, took orals only, and got well after being undiagnosed for a decade.
Treatment is very individual, but IMHO IV is last resort.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
These decisions need to be made on an individual, case by case basis.
Oral abx do not cross the blood-brain barrier nearly as readily as IV abx. However, there are some oral abx that can penetrate the BBB in high enough doses--doxy is a good example.
Posts: 962 | From Charleston | Registered: Jan 2002
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posted
Do the white spots necessarily mean Lyme? I haven't been diagnosed yet, but it was one of the "symptoms" that made me suspicious.
Posts: 118 | From Northern Virginia | Registered: Apr 2012
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posted
I have white spots after treatment
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
My Mom had white spots on the frontal lobe - which indicates a deterioration of the myelin sheath due to neuro borrelia, but commonly misdiagnosed as possible MS.
Her neuro recommended IV Rocephin (ceftraxione, which is a high potency penicillan), and this is exactly what all the ILADS researchers use when trying to treat neuro Lyme.
IV has advantages for crossing the blood brain barrier and is less likely to cause intestinal yeast or C-diff. It doesn't prevent yeast or C-diff, but it is not as likely to start it, because IV bypasses the digestive system and goes right into the bloodstream.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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