Im in a horrific amount of pain in my feet. The throbbing started months ago in the left foot it is now in both feet.
They are swelling because Im trying to tend to 2 children and do day to day tasks. The pain is all the time. No one will give me a decent pain meds so Im using my own tens unit and pain relief from a personal family member but the meds are gone.
The dr. was going to give me more but forget or something he never called me back. I cant go on like this.
Im begging the dr.s to take my foot pain away. It is in the tops of both feet into a couple toes and in the top of the ankle joint were it bends at the top.
I have made a appointment in Poughepsi but mean while I can walk but from the bathroom and to bed.
Every dr. has sent me packing after my so called being cured.
Im so sorry for they broken post but what started out as acute lyme in oct has moved on to something much more aggressive.
I have gotten a ruhmatoid dr to only prescribe more doxy. 100 mg 2x daily.
Guys Im in so much pain. Child birth is equivalent to this kind of pain and at least they give you pain meds for that.
My Kingston dr. refuses IV antibiotics unless it goes back to a nerve issue.
I would like to self treat. Any help from you guys would be great.
I do apologize for the choppiness of this any history you need is in my previous posts.
I want to order meds and cysts busters over the internet if I can.
Any help would be greatly appreciated. My appoint. is not till june.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sorry for your pain and suffering. I have been there and the only thing that turned things around for me was using antiparasitic herbs and salt/c.
Parasites can be a MAJOR part of this disease and can cause horrific pain. You might want to visit lymestrategies for insight on the salt/c protocol and other ideas. Do a search on here for parasites and google parasite symptoms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
So sorry for all your pain! I can relate. I have been battling debilitating muslce pain in my hips that at times makes it difficult to walk. Are you taking any magnesium? Other members suggested I up my magnesium and it did seem to help. Also are you trying any epsom salt foot soaks? Perhaps that could provide some relief? I know how hard it can bwe to be in so much pain and have a family to care for as well.
Posts: 1748 | From United States | Registered: Dec 2011
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posted
I think I need to do a parasite cleanse and try a detox. Any recommendations? Can I buy cyst busters online?
I do have some flagyl here but not sure how to take it.
I apologize for the continued questions but my energy level is good for only a couple hours in the am then Im exhausted the rest of the day.
Posts: 38 | From kingston,ny | Registered: Jan 2012
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Definitely try the magnesium. Especially if you feel it is in the muscles. You may see a huge difference!
Posts: 1748 | From United States | Registered: Dec 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
u are very close to some excellent llmds
do u have money to go to them?
my bartonella presented that way...regular docs did a neuroma surgery that was horrible painfula dn did not help
the "air" hurting makes it sound like possible nerve-but nerve pain goes along with tick infections
at one point i couldnt tolerate a sheet on me so i know that pain
pm me if you want phone numbers...there is also anexcellent doc near you who does not advertise as llmd but he is very lyme literate
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
a lot of us seem to be dealing with foot/ankle problems
im doing what regular docs say with xray and mri but in the back of my head i am wondering if it is infection...defininte tendon involvement
hurts on top
ankle swells and has a black spot onit
i dont rememb3r injurying it
my mri is tomorrow-i think xray was neg
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Yes I can not even tolerate a blanket on my feet. I can not even elevate them at this time.
They are doing a bone scan on the feet on the 14th. I think it is nerve because the headaches are back and so is the back pain something has gone terribly wrong here.
Posts: 38 | From kingston,ny | Registered: Jan 2012
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posted
That's why I mentioned my sciatica. You must be having some amount of nerve pain going to your feet from your back since you mentioned back pain as well.
If you are not treating the lyme (no S), this will not get any better. Taking steroids can make the lyme flare horribly.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Try Parastroy to begin with and look into the salt/c protocol by going to lymestrategies. I had all the symptoms you describe before treating for parasites. They can cause horrific pain and migrate to the tissues and joints.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
catina-i raised mykids where you are
my oldest had the type of pain u are describing as his main sx-he is 45 now
in his early 30s he got good tx from an llmd a little south of you and he is fine now-working full time as programmer-racing cars...honest!!!
i am older and had it longer b4 good tx. i think that is why i am still struggling
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
DOXY AND abx : 4 CORNERS Pharmacy Thomas Labs VET MEDS Check amazon for pet doxy edrugnet magic pharma Thomas Labs VET meds excellent quality and can get through pet med sites and amazon Many have used doxy called "bird biotic "
Also , consider that VIT B 12 , folic acid , niacin, and B 6 deficiencies can cause nerve loss and pain and neuropathy . My mom got better with B supplements and B 12 shots . She had a great neurologist who said her VIT B issues were her biggest problem. May not be the case for you ,but should consider possibility .
Also consider herbs that increase microcirculation . Search "herbs microcirculation " on google. I am saying a prayer for you , as this is distressing and scary I am sure . Blessings to you , ann
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
What is it about feet? I found a topical product that is actually working as long as I don't overdo it. (which must be hard for you with two children).
It's called Neuragen. It comes in a cream, a gel and an oil. I got it at cvs but it is cheaper on amazon. I have to say I thought it was a fluke. But it continues to help. It smells very strong though. (lavender, geranium, tea tree). I find the oil less objecttionable. It also has homeopathic medicine, but from what I have read, it is the geranium oil that has some science behind helping nerve pain.
Did you ever try it tutu?
Posts: 1728 | From USA | Registered: May 2011
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interesting what annzyz said about the B vitamins . My podiatist gave me a shot in my foot that had B vitamins in it. I think it helped. That foot is better and now my right one is the worst one.
I see him again tomorrow.
PS.. there's also a product called Tramuheel or something like that. My Dr's nurse put it on my neck for neck pain a few wks ago.. wasn't sure it really helped. Might work on my feet though.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
"Also , consider that VIT B 12 , folic acid , niacin, and B 6 deficiencies can cause nerve loss and pain and neuropathy . My mom got better with B supplements and B 12 shots . She had a great neurologist who said her VIT B issues were her biggest problem. May not be the case for you ,but should consider possibility ."
i dont want to confuse things...and it could be my neuro that is wrong-you have me wondering now-but my neuro said my B (esp 6) and magnesium supps could be givng me neuropathy...and some can be irreversible
again...all i know is what he said. he insisted on testing my Bs and mag---no answers yet.
so confusing. but he is a doc who believes in elisa and 3 wks of abx = a cure.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Assuming that other medical causes or conditions have been ruled out and that you most likely have LD, then it is possible that your foot pain is due to co-infection of bartonella, especially since sore feet is a hallmark of bart.
I had foot pain for years (along with other aches and pains all over) which finally got better after treatment for LD and bart. 6 months of cipro and tindamax worked great for me. Cipro does double duty because it fights the bart and also helps to shuttle other abxs into the cells where they can attack the TBDs.
Recent studies have shown that Tindamax is by far the best abx for all forms of LD.
posted
Yup, crazy foot pain was one of my first symptoms. It was my soles, they were so tender, sometimes I could barely walk, especially in the morning.
Posts: 21 | From Charlottesville, VA | Registered: May 2012
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It show abnormal uptake flow and they now need to do a MRI to rule out Osteonecrosis.
I know in my heart this is a wasted test because it truly feels like one of the co-infections.
The Dr. now are giving me pain med to cope with the pain and it is better.
It still hurts like the dickens to walk on my feet though, but its double for now.
The Rhumatoid Dr. has agreed if this MRi show negative to Osteonecrosis then he is going to have me meet with him and the other origanal infections disease Dr. to start some form of IV antibiotics.
Im truly ready for this.
I do not believe the other Dr. is going to treat me properly for the co- infections so my origal appointment with the LLMD in Poughepsi will stay as is. I just need some form of relief before I loose my mind.
Thank you all for your continued support. It truly helps.
I have continued to go over symptoms of Bart and Babs and because they overlap Im not sure which one is the cause Im thnking because of the pain it is Bart.
But this week i started to shake in chills but no fever. Not sure why though.
Im getting alot of leg cramps also cramps in my feet where it is sore. My headaches seem to have dissipated also.
Posts: 38 | From kingston,ny | Registered: Jan 2012
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posted
bcb1200 could you PM me this Dr. info please. Thank you
Posts: 38 | From kingston,ny | Registered: Jan 2012
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
my foot and ankle mri gave a lot of info i wasnt expecting...large cysts, spurs, and old fracture...
i am also struggling with how to deal with ducks who read and tx as if lyme isnt an issue...my radiologist said mri of brain suggested lyme but neurologist said he KNEW the whit matter changes were not lyme...he just didnt know what they were
he KNEW it wasnt lyme cuz he had just been at an idsa workshop...
good luck. i am stuck not knowing how to respond to such ignorence
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Im sure come next week Im going to be even more angry at the way these Dr. treat patients like us.
these drs here also believe lyme isn't an issue.
My Dr. says im cured and if I had Bart I would be dead because it is a Malaria.
I even tried to go to Hyde park to see a LLMD who doesn't take insurance anymore and my Rheumatoid Dr. says go ahead and go he doesn't take insurance because the insurance companies got wind of treatment and false treatment of Lyme and cut him off.
So insurance companies like MVP left first then others followed.
That was very encouraging.
today's is a bad day emotionally for me. Im enrage, crying angry.
I hate life and Im angry that I cant play with my children the they need me to.
A part of me just wishes I wasnt around.
I want my old life back.
Posts: 38 | From kingston,ny | Registered: Jan 2012
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
You might benefit from MTHFR testing . If you are deficient in folic acid it can cause pain disorders and mood issues . Just a possibility . There are many people like my MOM who have BIZARRE symptoms from deficiencies of : B vitamins, niacin, folic acid ESP B 12 . Also , I have known people who had BAD pain that dissipated after addressing the fact that they were deficient in VIT D . This ALSO affects immune function and moods as well . A test to measure folate and VIT D might be helpful. If you are not taking fish oil, I would start and take generous amount of apure variety. Your pain probably involves inflammation, and fish oil can help . It can help with moods at the right dose.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
"My Dr. says im cured and if I had Bart I would be dead because it is a Malaria"
what an A$$...mine wrote lime in a report today
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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