posted
Has been awhile since I've been here. My son is now 9 years old, almost 10. Have been dealing with lyme since he was 4.
In the past year, he's has been having problems with protein. At this point, he's vegetarian. Since he's stopped eating protein, he doesn't vomit anymore...(that's a plus) He used to vomit almost daily.
Wonder if anyone else has problems processing protein? He has dropped about 10 lbs, but is still very active and is otherwise pretty healthy. The pedi has been monitoring him & is very supportive.
Considering milk thistle.
(Son has had 2 more tick exposures in the past year, last one was 1 month ago, found a deer tick embedded in his neck. Was treated with short term antibiotics to hopefully stop new infection.)
Has lingering symptoms... occasional joint pain & learning disabilities. Believe these issues will be life long.
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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Razzle
Frequent Contributor (1K+ posts)
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posted
Is he intolerant to all protein, or just meat?
Has he been tested for methylation issues beyond MTHFR?
I have the CBS mutation and it causes me to be intolerant to meat & eggs, but I'm ok with small amounts of dairy. Vegetable proteins are easiest for those with the CBS mutation to digest.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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tickled1
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posted
Digestive enzymes?
Celiac?
Parasites?
Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Yeast?
Leaky Gut?
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
He cannot eat meat/fish/eggs at all. Has developed almost an aversion to them. The only protein he can tolerate (in small amounts) is dairy/beans.
He hasn't had methylation testing, Dr. only tested for allergies, but considering my son's history, ped is open to testing what I request.
Never heard of CBS mutation, but from what you describe, could be a real possibility. Going to goggle now.
Think milk thistle will help?
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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I'm getting to where I don't want protein either. At least I don't want red meat, pork or chicken. Got sick on fish a few weeks ago, so I won't eat that again for quite awhile!
I'll eat chicken if it's in a soup .. or small amounts at a restaurant. Usually tastes better than I can cook...
Did the doctor tell you how much protein he needs each day?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
I have problems digesting protein. this only started recently (past month or so)
i throw up from it or anything its just after I eat it , it feels like its just SITTING in my stomach
i have this problem because I have LOW LOW STOMACH ACID. and stomach acid is VERY important for digesting proteins. without adequate stomach acid, digesting proteins is very hard!
Posts: 995 | From somewhere out there | Registered: Oct 2010
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Keebler
Honored Contributor (25K+ posts)
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posted
- Those with issues of porphyria can have a very hard time with protein and (mostly) red meats can trigger a porphyria attack.
First see the "secondary porphyria" thread - although the dietary solutions there would need some refinement for those with candida.
Many good links here, including HPU / KPU -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- It could also be the source of the protein.
Some fish and meats are chemically treated and it can be hard to find out what has and has not.
If possible, try organically raised meat and eggs (free range, too). WILD fish is safest and you can check which are okay regarding mercury.
Only certain brands of tuna are okay regarding mercury.
As he's not likely to eat very much, the higher cost can be well worth it.
In the meantime, I hope the kinds of beans he eats can be rotated so it's not the same kind every day.
HEMP PROTEIN POWDER may be excellent for him, too.
I've not tried or researched CHIA SEEDS but that may also be a good avenue.
================
CELIAC ? as LymeToo wonders, so do I. If celiac is involved, he may take a disliking to protein because of the pain it can cause a stomach messed up with gluten.
I had that experience before I found out I had celiac. Meat would just make me so ill. I thought it was the porphryia but - in my case -
it turned out that when I went gluten-free and then got small portions or organically raised, grass fed beef or lamb - or WILD salmom - and eggs from similar sources, I did well with those. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nefferdun
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posted
I would first check out the methyl cycle mutations like Razzel suggested. I have it too. When you eat animal protein it produces a lot of ammonia in your body. It takes 2 BH4 molecules to detox every molecule of ammonia which depletes the BH4. BH4 is needed for other things like generating seratonin and dopamine so you tend to also be anxious. Here are a couple of links:
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Keebler
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posted
- He is likely clear of all additive but to be sure:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Milk thistle may be too much for him to handle initially. Might try artichoke or dandelion instead...much more gentle and no sulfur to cause trouble with the CBS mutation.
Also, Vitamin B12 deficiency can cause aversion to animal proteins (especially meats/eggs).
And tick bites are known to lead to the development of allergy to beef (and possibly other meats). A case report of this was posted here on LymeNet recently...perhaps it could be found with a search of the archives...
For ammonia issues, he should be getting yucca root powder sprinkled on any food containing proteins (beans/legumes, peanuts, nuts, seeds, dairy, meat/seafood, eggs). Yucca binds to the ammonia generated during the digestion of protein, thus enabling it to be eliminated instead of absorbed by the body.
Also, he should avoid artificial additives and preservatives as much as possible, as these chemicals stress methylation more.
If possible, he should be taking a comprehensive coenzyme B Complex, with extra Vitamin B12. Start with small amounts (slivers of pills, partial drops of liquid (a drop in a glass of water; drink a portion of the water), or partial capsule contents) and slowly work up to the full amount recommended for his age (check labels or call the company).
And he needs mineral support - molybdenum, magnesium & zinc are the most important, (iron, if deficient).
Allergy testing for food allergies is very inaccurate, even the ALCAT and IgG is inaccurate. I have many allergies that do not show up on the tests, but they do show up on muscle testing/dowsing/electrodermal screening (energy testing methods).
Be sure to discuss all of this with his physician also.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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