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» LymeNet Flash » Questions and Discussion » Medical Questions » Photosensitivity

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Author Topic: Photosensitivity
Rene
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Member # 4870

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Hi All,

I'm trying to help a lyme patient with severe photosensitivity. We need hints and help on just getting this woman to the Dr. Could someone please pm me if you have this problem.

Thanks

Posts: 366 | From Louisville KY. | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
Rene
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Member # 4870

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Up, anyone on here who can help me??
Posts: 366 | From Louisville KY. | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
Razzle
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Is this referring to sensitivity to bright light (eyes) or easily sunburned (skin photosensitivity)?

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4166 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Rene
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Sunlight, this person has "electric shock' feelings just walking to her car. She is now complaining of eye issues, mainly just skin.
Posts: 366 | From Louisville KY. | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
OtterJ
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If she has an eye doctor, get those ridiculous "shades" they give you free when they dilate your eyes, and put those on. They are the best to block light and better than sunglasses(Big and Dark.) I guess you could try a blindfold and walk her into the docs office.
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Razzle
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Make sure they wear:

Dark, dark sunglasses
Sun hat (hat with a wide brim)
Long sleeves
Gloves
Long pants or a long skirt
Socks & shoes

Maybe if they could sit in the back seat of a vehicle that has darkly tinted windows in the back and sides, or no windows at all in the back (some vans have no windows except the front windshield and driver/passenger side windows and no windows in the rear of the vehicle)...?

Bring a blanket or umbrella they can put over their head when they walk outside from the house to the car and from the car into the doctor's office.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Brussels
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for me, what caused most photo sensitivity was babesia infection. I could even throw up if I felt too much light was in my eyes.

If my memory is good, bartonella also caused me some of that. I know that other infections can cause that too.

Once babesia was treated successfully, I could go out without problems. Good luck.

Posts: 6196 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

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