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» LymeNet Flash » Questions and Discussion » Medical Questions » Bizarre - my family are testing positive for Lyme!

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Author Topic: Bizarre - my family are testing positive for Lyme!
JBS
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I live in Texas - not Lyme country.

My son was tested positive a month ago. I just heard today that I have Lyme and my niece tested positive and was told today as well.

All Western Blot - CDC based criteria for positive.

We all have symptoms of Lyme, so I don't think it's a mistake. But how could we all get it if it's not contagious. My son is 35, I'm 60 and my niece is 33. We all started showing symptoms in our early 20's.

Posts: 132 | From Texas | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
Keebler
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I don't see this as bizarre at all. Lyme is very common, actually, but goes unrecognized & undiagnosed most of the time.

It is NOT contagious but can be infectious and can be passed from mother to baby, perhaps passed in intimate relationships.

Not throught the air, by coughing, etc

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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For some reason, unable to edit or even delete my previous post.

What I wanted to say is that the same way one person gets it, usually that is also the way others get it: vector bites.

It's not passed through the air so it is not contagious. It may be contracted other ways but, mostly, bites from ticks, mosquitoes, fleas, and perhaps other vectors like sand flies, horse flies, etc.

After a bite from an infected vector, a person may not even get joint pain or "flu" symptoms for months or years - or, if so, they may just brush it off and then it can get worse at time goes on.

There are many people in ill health. I would venture a guess that many have undiagnosed vector-borne disease.

Sadly, it's not bizarre at all. It's criminal & medical neglect. It's lack of education of citizens and doctors.

As for Texas not being "lyme country" -- EVERY place on earth can be "lyme country" if birds fly or mice scamper.

Even penguins in the S. Africa have been found to have one strain of borrelia . . . and in the southern Indian Ocean & the Antartic, lyme itself:

http://www.springerlink.com/content/c7dwr8reg0l63pxq/

Prevalence of Borrelia burgdorferi (the Lyme disease agent) antibodies in king penguin Aptenodytes patagonicus in Crozet Archipelago

&

[link too long to post. Google: Borrelia+burgdorferi, Antartic] one search result:

. . . birds carrying B. burgdorferi via the Antarctic . . . .
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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This author's entire family also faced lyme. She wrote about it four years ago.

http://tinyurl.com/5crsjv (Amazon)

CURE UNKNOWN: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

Author�s website with this book: www.cureunknown.com/

Author�s other website options: www.astralgia.com/
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
lpkayak
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i know lots of ppl in texas with lyme

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Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Doctors there don't even think to test for it. It's everywhere there except the very dry areas of TX. You're a little less likely to get it there.. but it's possible.

Was this thru Igenex?

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
JBS
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Lymetoo - no, the test was LabCorp.
Posts: 132 | From Texas | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
Keebler
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Besides where lyme can reside, people do travel.

Still, many different critters live even in the desert sands of many continents. But here's just ONE hint of lyme in your own state of Texas - documented 28 years ago but that was likely not the first of it:

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http://www.ncbi.nlm.nih.gov/pubmed/2644452

J Wildl Dis. 1989 Jan;25(1):47-51.

Borrelia sp. infection in coyotes, black-tailed jack rabbits and desert cottontails in southern Texas.

Burgess EC, Windberg LA.

Department of Medical Sciences, School of Veterinary Medicine, University of Wisconsin, Madison

Excerpt:

. . . Borrelia burgdorferi was isolated from one of five coyote fetuses, three of 31 adult coyote kidneys, and two of 10 black-tailed jack rabbit kidneys in 1986.

These results indicate that B. burgdorferi infection has been present in coyotes in Texas, at least since 1984 and that transplacental transmission occurs.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by JBS:
Lymetoo - no, the test was LabCorp.

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Amazing!

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by Keebler:
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Besides where lyme can reside, people do travel.

Still, many different critters live even in the desert sands of many continents. But here's just ONE hint of lyme in your own state of Texas - 28 years ago:

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I was Lymed there in the late 50's.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
JBS
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I remember when I was little, (late 50's) we went deer hunting all the time in West Texas.

Back in Houston, I don't remember the specifics, but it seems like we were always trying to get tics off. Dad would heat up the tweezers to get them off. But there has never been much of a mention of Lyme here, so I just assumed I wasn't in the right part of the country.

Perhaps my sister (deceased) and I got it and passed it on to our kids?

Posts: 132 | From Texas | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
JBS
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Reading Cure Unknown. VERY helpful! Between that and watching Under Our Skin, I'm starting to get a beginners knowledge of Lyme. It's amazing how complex it is. Seems more complex than any other disease I know. I guess it's the politics.
Posts: 132 | From Texas | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by JBS:
I remember when I was little, (late 50's) we went deer hunting all the time in West Texas.

Back in Houston, I don't remember the specifics, but it seems like we were always trying to get tics off. Dad would heat up the tweezers to get them off. But there has never been much of a mention of Lyme here, so I just assumed I wasn't in the right part of the country.

Perhaps my sister (deceased) and I got it and passed it on to our kids?

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Many ticks carry Lyme and ETC .. so if you got lots of bites, then guess what?

Yes, you probably both got it as youngsters.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
JBS
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Lymetoo- What is so crazy is when I was diagnosed with CFS they asked me if I had been to Colorado or wherever they thought Lyme was (it's been 18 years, forgive the brain fog) and I said no. They never tested me.

I went to another specialist and I already had a diagnosis so she didn't test either.

Posts: 132 | From Texas | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
My2B
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Both my sons have tested positive for Lyme. I know that my oldest was bitten. We live in Texas. Doctors don't even consider it. My son woke up one morning and was unable to walk. He was five. It went away in a couple of weeks and the doctor diagnosed him with hip synovitus. This was a few months after he was bitten. I am convinced this was a result of the Lyme. I wish the doctor has considered it then. He is now 10 and has been on abx for almost a year. How much suffering he could have avoided if Lyme was recognized in Texas. Very frustrated. I should probably be tested but I am focused on my kids now.
Posts: 55 | From Kingwood, TX | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Larae30
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Pretty sure I got lyme and babs/bart on a trip to Austin last summer.

I also tested positive through labcorp, even on the ELISA. I had to ask my dr. here in Nebraska to test after I didn't believe it was just mono after a few months...

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Treating lyme, bart and babs

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kidsgotlyme
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SO sad to hear of so many suffering!!

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symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

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jlf2012
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My son, my sister, my niece and myself have all tested postive within the past four months...none of us remember a tic bite.
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012  |  IP: Logged | Report this post to a Moderator
   

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