nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
it gets better??
On 4th protocol.Mepron , omni 300, zith 250,shots 3..mag/b/ samento, banderol, crypyto. a-bart,dim, progest, test, thyroid, gluta, trans factor, nac, milk t, burbur, parsley, hh cap, probiotics /tons, Cms,GSE and more.... I don't eat often,,,drops on empty, along with three tabs,,, wait .start to eat , then abx's wait a bit then other supplements.
now probiotics with a bite and CMS on empty.
Point is anytime I think I gained a bit of ground I just slam backwards.. Like today...heard the phone ring, couldn't roll over and answer,,when I did try to get up after 10 plus hours to go to bathroom ,my legs didn;t want to works right,.
there is pain, muscle ,joint, bone, deep,,,High thigh ,wraps around to calf and touches ankle..
I actully needed help to stand and use them...
I've noticed something more often with movement being harder
This should not be happening ,,if I'm treating, right?
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Don't see antiparasitics on the list?
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
GSE is supposed to help, I take an Parasite KILL on empty stomach every other day.and there was one other drop that is supposed to work on that..
I've also done Aliana sp?
twice I've not muscle tested for it..
I also did a major detox /cleanse
I don't go looking around for crawly thing's with a flashlight ,,,but in better light ,kinda double check..
I did see a film or mucus recently.
Oh and I take the green,pills that are supposed to pull bad things through..
My list above is short by about 20 plus items..Those were the main things.
When I did the full out detox/cleanse. that included the supplements for it ..I was supposed to feel "at least 50% better" got 5% if anything,,,for a couple day's.
It was the full deal..coffee enema's etc
I have two different, 2 week cleanses here that I didn't want to interfer with LLMD.. I also brought it up to him..no reply..
So Is that not working on them?
Lot's of well LD survivor's say hormones and adrenals are the base of getting better.
I've worked on those with at least 7 plus MD's , I still think it's off.....a bit, and I have to be careful...already had one lump removed and don't want anything else going..
I still feel timing and maybe doses are needing tweeked, but how to do that ,when you never know when I'll be flat or not,
how many other people are in same spot????
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I don't know that I have any solid adivce or words of wisdom for you but I can most certainly relate to what you are experiencing.
I had acheived about 75% health on a new LLMD protocol. Was back to working a bit, running, hiking, doing normal human things and feeling like maybe, just maybe this was it.
Hit a plat.. so we switched meds and now I feel like I am back to square one. Everything back in full force plus some old symptoms coming up that I have not felt in years. Body pain, bone pain, skin sensitivity, worsening of head issues, eye pain, lt. sen., - just everything back...
In life one minute and out the next..
Sometimes it seems like a cruel joke - but no one is laughing...
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Guys, try energy test, really.
When you reach a point there is mostly guess and you go backwards, not forwards, it's not good.
Moral gets affected, and you need good mood to fight this disease!
Without lyme, I would NEVER have tried energy test. BECAUSE of lyme and desperation, and the SIZE of the problem, I tried it and never regreted.
it is not 100% right, you need a good practioner, good method, but it at least gave me directions. I learned how to tune my cleansers, my killers, homeopathics, teas, etc... It is not 100% on the spot, but it is about 70% or more right (at least, pointing me a direction).
At least, I knew if I was herxing or if an infection was responsible for my symptoms.
If a herx, I could find the EXACT plants or substances to help me feel better.
If an infection, I could find the EXACT killers I needed, and measure the amount I needed, how many times a day, etc. When to stop them too. How to shift herbs and treatment to finish with specific infections. Like babesia or bartonella.
Because of long term trial and error with my tests, I swear to you, they really were the torch in the dark for me.
I could see when the treatment, supplement was reaching the affected area. And most important, if it was NOT reaching the area.
And it usually DIDN'T reach the sickest areas, that were blocked. I could then find out what to do to unblock it (some yoga position or tapping, or other stuff).
I was someone that could go backwards square 1 if I stopped treatment or if I got bitten again. Very fast, very fast, and vertiginously down. I had no choice to wait and see. I had a toddler at that time to care, no family around.
Now I got years, literally, of experience on myself and daughter (and other people) with energy tests. The thing continues to amaze me.
The bad side of it, says my daughter, is that I catch any of her lies!!! She can't lie saying, 'I brushed my teeth mom', or anything stupid like that when she didn't.
If I am in doubt I test. Today, I don't even need to test, I just say: 'Did you really brush your teeth?'. Before I test, she would go brush them because she knows I will know, if I test.
In respect to her privacy, I don't use this energy test too often or for other things than minor matters like the example above. But that is how much it works!!
Posts: 6199 | From Brussels | Registered: Oct 2007
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Energy testing?? What is it??
Posts: 1748 | From United States | Registered: Dec 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96220 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
nonna, it may be time to get another brain (doctor) to look at your case.
A new doc may see something that the current doc is missing, or know something the current doc doesn't know, or be willing to try something the current doc isn't willing to do, etc.
You may need IV medications. Since you have a history of steroid injections and then a downhill plunge, I really think that you need to try IV to try to make some progress.
My friend with a history of steroid use didn't make progress until she went on IV.
Your doc recently switched you to the bicillin injections. Perhaps that should have been tried long ago. It seems to me that you have been on only oral meds until the recent addition of bicillin. This may just be too conservative an approach in your case since you are so very, very ill.
Plus, you may need someone to make proper meals for you so that you get proper nutrition.
Putting vitamin drops on a cracker like you do is far, far from ideal.
Posts: 9931 | From Maryland | Registered: Dec 2007
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Thank you...I'll Pm when I get brain to ask right, T
Anybody else going through this?????
Along with advice above, I've read others say timing of protocol and haow taken.... Sixgoofy said something about ImF?? not EMF.. Personal work
That could be a part but not this base issue...
Now ,I'm having to defend myself to Son=in- Law that I'm not contagious ,if triplets visit..
He's worried I will make /or could make them sick// So my heart is hurt, and They want proof...
Lord I could have gotten it from his country and have a weird strain ..
What ever,,,Anybody else....some history similar, did you get well.?
What worked,,,,6 plus years sick, steroid shot's, and or worse........different but worked.
I know I'm motivated.........even though I've been knocked around hard lately....
Thank you, again N
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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