LymeNet Flash: Doxy speeds up ALS?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Doxy speeds up ALS?

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Author

Topic: Doxy speeds up ALS?

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

Why have I read on here that Doxycycline can speed up the ALS degeneration process?

Is there any validity to this?

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742

posted

I know that a poster here...Tooyoungtodiemom...I think is her name. She has an ALS diagnosis and deteriorated after starting doxy.

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"The only way out is through"

Posts: 1434 | From mississippi | Registered: Nov 2007 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

So is there any science behind it ?

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

2young2dieMom
LymeNet Contributor
Member # 25434

posted

I was warned by CaliforniaLyme that all of her ALS friends (except one) had died very quickly while using doxy.

For that reason, I stayed away from it until recently. My legs are getting weaker so i thought I'd try it. Initially, I felt stronger and could climb stairs and walk farther. Over a month's time, however, I started having trouble breathing.

My diaphram has shown a 30% decrease in function so I stopped doxy. CaliforniaLyme said all the other ALS patients she knew had died of diaphram failure as well.

My breathing has gotten better since stopping the doxy but isn't as good as it was previously.

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Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

Posts: 417 | From central ct | Registered: Apr 2010 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

2YoungMom,
Did you take doxy ALONE?

Do you have Bart symptoms?

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

bump for 2young2diemom

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

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