posted
Okay, this may sound "out there," but I have a strange problem with water since I caught Lyme disease. I'm really worried it sounds a lot like the MS heat intolerance, but it has a slight twist.
Being immersed in water for a prolonged period exacerbates my Lyme muscular/neuro/fatigue symptoms. It doesn't matter what the temperature of the water is. It has happened in hot and cold and lukewarm temperatures. It could be the ocean or a swimming pool or the bathtub. And it only affects the part immersed. So, if I take a bath and only immerse my legs, they are in pain afterwards. Similarly, I went for a pedicure, and had my feet immersed for about 10 minutes, and they had neuro symptoms once removed from the water.
The other strange part is that it does not happen while I am IN the water. It happens once I am removed from it. Showers do not bother me at all, nor do saunas or just regular heat or cold, so I am assuming it has something to do with the process of immersion.
Lyme must be at the root of this, but I have no idea why it is occurring. Last night at 11pm, I went in a pool for an hour, fully immersed, no wild swimming or activity, and I suffered from a flare of symptoms I did not recover from until 6 pm this evening. It is becoming increasingly problematic, but sounds so bizarre that I don't know who to ask.
Has anyone else had this happen?
Posts: 36 | From Connecticut | Registered: Jun 2012
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Buried on page two.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
can't say i have ever read about that here....but as we all like to guess/help each other is there any chance that becasue of lyme you might now be more sensitive to chlorine?
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Many lyme patients cannot tolerate chlorine pools, but not those pools where the owner uses bags of salt (poured into the pool) to generate chlorine (my pool) and a FL lyme patient's pool.
"Chlorine in tap water destroys many disease-causing bacteria that threaten human health, but it may lead to other health problems."
posted
Interesting about the chlorine pool. I got really sick after being in a public pool a couple of years back. I have stayed out since.
Posts: 620 | From Ks | Registered: Oct 2011
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posted
Before my kids were diagnosed, my daughter was an irritable mess after swimming. I thought at the time it was just too much pool time, too sensory. Well that sure could be but now that we are in treatment, she does not react that way at all.
Posts: 101 | From USA | Registered: Jul 2011
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Wow so bizarre....but with this disease nothing surprises me anymore
Do you have a chlorine filter on your showerhead? How about filling your bathtub with that filtered showerhead to rule out chlorine?
But then again you did say it happens in the ocean too.
Lyme seems to have left me with a life long allergy to sugar yet I see lyme sufferers eating sugar with no devastating consequence like I experience.
Strange how it affects us all differently
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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