posted
Cefdinir/omnicef is one of only two antibiotics I can tolerate with porphyria (the other is low dose doxy). It had the least side effects/reactions for me... I love it . I can't take amoxicillin or zithromax at all (the only other two I have tried)
TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Herbs15... thanks for replying. I was hoping someone with porphyria would respond. That is interesting that you cannot tolerate amoxicillin which is listed as a safe drug. Zithromax is listed as unsafe for sure.
I am glad the omnicef is working out for you. Lyme and coinfections are bad enough without having other complications to deal with!
thanks
And thanks again, Keebler. I forget the obvious things sometimes.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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posted
I was also very surprised about the amoxicillin... Just an eight of a pill three days in a row gave me all my usual porphyria symptoms (stomach pains, weakness, that anxious head intensity, palipitations, dark brown urine) - the same symptoms that anesthesia gives me.
I didn't have any trouble with ceftin or Rocephin either - so i am thinking most of the cephalosporins are safe for me. I also don't have any trouble with very small doses of Loloestrin birth control pill- and I know I should - but if I try to decrease my carbs/sugar then I do get pretty bad porphyria symptoms.
I hope you have lots of success with omnicef! I do have to take daily nystatin with it or I get stomach cramps... Otherwise it has been a great antibiotic for me . You could try ceftin first since you can cut that one up.
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