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» LymeNet Flash » Questions and Discussion » Medical Questions » Auditory Symptoms and Lyme

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Author Topic: Auditory Symptoms and Lyme
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

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I believe that Lyme Disease has damaged my cranial nerve and has invaded my nervous system. Recently, I started babesia meds (mepron, zithromax, and cefdinir). For almost a month, I felt great. But over the past week, I have continued to worsen.

My daughter was married last weekend (a beautiful event for me and my family!) but in all the excitement, I forgot my earplugs to protect my already fragile ears.

I left the reception early, but the damage was already done. I lost more hearing and my tinnitus was off the charts for a few days.

Over the past week, my hearing may have improved a bit and the tinnitus has gotten slightly better, but I now have lots of head pressure and brain fog and the fatigue and pain are setting in. I assume I am herxing.

I am so discouraged by this setback in my auditory symptoms. Can anyone tell me if sometimes these symptoms get worse before they get better?

I am afraid that the babesia meds might not be crossing the blood brain barrier and are allowing all the bacteria and neurotoxins to settle in the place that I am the weakest.

Posts: 2386 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Keebler
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Member # 12673

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-
First (as ears are much more sensitive now):

avoid in-the-ear pods and even headphones right now;

use ear plugs when around a hair dryer, certified decibel attenuation with ear MUFFS when around kitchen appliances that make noise, lawn equipment, vacuum, traffic, etc.


Anytime there is any degree of hearing loss, it's vital to contact your LLMD regarding changing Rx &/or maybe seeing a LL neurotologist for further assessment.

There may be certain Rx that might need to be stopped immediately (such as azithromycin).

Be sure to check ALL meds and OTC products against the Ototoxicity list in the thread below.

I'm sorry that such a joyous occasion jeopardized your hearing and caused misery.

I've been through many similar experiences and, while not so much hearing loss, there has been clear damage. REST of the ears is vital; so is adrenal support.

Time has helped even it out but there are several extremely important supplements that, IMO, are simply required at such times. More detail here:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS & SCD - Superior canal dehiscence

& WHAT HELPS
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
AuntyLynn
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Congratulations, "Mother of the Bride"!

Best wishes to the happy couple!

I would try some anti-inflammatories to see if that helps, as it should be obvious that the noise likely irritated an already sensitive organ.

Are you taking Tumeric/Curcumin? Or could you take a little Advil maybe?

Posts: 1432 | From New Jersey | Registered: Jan 2012  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
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Thanks AuntyLynn! I use turmeric and ginger in my cooking, but should probably try these as supplements again.

Tomorrow, I am going to a kinesiologist who is going to do some muscle testing. Maybe she can offer me some advice.

Posts: 2386 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

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Thanks for your advice, Keebler. I use ear plugs whenever I use machinery at home but it was unfortunate that I forgot at the wedding.

It is so confusing because I started 3 new ABX within the last month and my LLNP also reduced my dose of Valtrex because she didn't feel comfortable keeping it at the dose my previous LLMD had given me (It had helped!)

So all of these things together make it hard to do good detective work.

I was nervous about the zithromax when I started it, but I did not notice a difference in my auditory symptoms until recently. I guess it could be connected.

My ears feel very 'full' and my own voice sounds like I am in water or amplified. This is now on both sides - not just the side with hearing loss. I pray that it means the ABX are stirring things up in there and I will have some normalcy again.

The tinnitus is some of the worst I have ever had. Thank God it has been fluctuating.

I have posted in my local MA support forum for a LL ENT or neurotologist and have had no luck. The best I could do was a lyme friendly ENT. I live in MA near RI. If anyone on this forum knows of anyone, I would be so grateful.

Posts: 2386 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
   

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