posted
I was on oral abx for 10 months, then IM for 6 months. IM was much better than orals so we switched to IV. IV has been the best. I too have a long way to go but it has helped, yes.
posted
First of all, everyone who has Lyme has neuro symptoms. It just happens sometimes that you may pass the doctor's neuro test in the office but be a zero in brain function at home.
I passed my LLNP's neuro test, but I didn't pass any other doctor's neuro test. Are you seeing GS in DC?
I would love a pm as to who you are seeing. Might be we see the same LLNP. Mine did not want to put me on IV. I was going downhill fast, a major pain person with muscle burning and bone pain.
I am disabled on SSDI. I couldn't remember names of people I knew for years and my mind was disappearing. I am also close to 60 years old (don't tell anyone!) have had Lyme over 10 years, and also had multiple courses of steroids, injected and orals while I was trying to find out what the heck was wrong with me.
I couldn't sleep, had rib and profound bone pain, major muscle burning in legs and arms. Muscle twitching that made me look like I had Parkinson's sometimes. Twitching, tremors, buzzing, hearing loss, and the list is endless. I am a pain person personified and IV helped with most of my pain. Orals didn't touch it.
I did not want to start out on Rocephin. Even though it is the "guidelines", I have heard of too many relapsing on that drug. Needless to say, that is what I had to start on. Felt great by the third month and then had a relapse.
I am now starting Clindamycin IV this week. I also take orals, but they are killing my gut in spite of all the probiotics I take. I have lots of trouble eating foods, (gastroparesis) and keeping weight off is a big issue. I work overtime to keep my weight the same. If I don't eat enough, up goes the scale!!!
As far as orals go, I am on Mepron, Rifampin, Flagyl (pulsed two weeks on and two weeks off), and now taking arteminisin. Had to get off the Zith because of horrible diarrhea and starting Ceftin at the end of the coming week to replace that. So far, the arteminisin is causing lots of diarrhea and I am on the starting dose.
I am getting better with little set backs but am also just starting to rife. I am also going to add some Buhner herbals to the mix in the next week or so.
You must be your own advocate.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic