LymeNet Flash: Bactrim!! Holy Shin Pain, Foot Pain, and Achilles Pain...is this normal??

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Bactrim!! Holy Shin Pain, Foot Pain, and Achilles Pain...is this normal??

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Topic: Bactrim!! Holy Shin Pain, Foot Pain, and Achilles Pain...is this normal??

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

MY pain has been increasing since starting bactrim. I am weak all over arms very heavy everything is stiff.

But my shins are killing me along we my feet. And my achiles. Everything feels inflammed. I had to wrap my legs and feet in ace badages today annd I am at work with a heating pad on them.

Its pretty bad, I just wanted to make sure this was a herx. And not some tendon damage caused from Bactrim like Levaquin. If its a herx I wanted to stick with it bc its beating the crap out of something.

Thanks for the help.

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

Bartonella die off. What dose did you start at?
What macrolide or tetra are you taking with it?

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

I am taking

Malarone
Plaq
Zith
Bactrim
GSE
Bicillan Injections

I started Septra June 25th at 1/2 a pill
Then one week later upped it to 1 pill
This week upped it to 1 pill and 1/2 pill at night so I have been on this dose for 4 days.

I just want to make sure I am not doing damage.
Anything I can do for pain.

Hits really hitting all my problem areas

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

I don't think it is a side effect and agree it is a flare due to die off. (mind you I am not a doctor...DISCLAIMER.)

FYI..I had achillees pain a few weeks back when I started going after Bart again as well.

Got me wondering if the whole tendon issue was really a side effect of Levaquin or a herx due to Bart.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

Thanks everyone for your help. I am erily calm. I am usually very very anxious cant rest. All I have is pain. Not a lot of neuro, knock on wood. I can do pain.

I cant believe how effective Bactrim is. I wish I went on it sooner.

Is there anything I can do for pain.

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

manybites swears that the levaquin phenomenon is a Bart herx. It's very possible in my experience.

My knees were in so much pain and then a few days later my LEFT foot/achilles (Bart has always been left side dominant for me)

Nevertheless it was too painful and way too risky.

manybites recommends lowering the load first with something like Bactrim or Rifampin, etc before hitting with levaquin.

And I think even then she only did 1 1/2 months on it (don't quote me though)

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

I tried Levaquin and 3 days all my tendoms were inflammed my LLMD got nervous and said rather be safe than sorry.

I just hope its a herx and I come out better.

I am always worried I am getting worse. or its a new infection emerging.

I am so tired of dealing with this. I am very sad today

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

It very much sounds like a herx tricia.

Get some Arnica gel and use it every 3-4 hours.
Amazing stuff. Rub it on shins, tendons, muscles.

Take some extra magnesium (I use MagTabs SR)

And consider putting your ankles/knees in a brace if you have to walk around for next few weeks or months. I was wearing an annkle brace to work and limping. But arnica gel and magnesium had me "fixed up" in 3-4 days.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

Thanks Canefan

I work down the road from a Co-Op I will see if they have some instock.

Again thank you both so much,its nice to talk to people when your going through this.

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

The other thing you can do is as much detox as possible.

See this thread to see what Dr. H. recommends for detox:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/117269#000006

Detox is the key to making herxes as mild as possible.

I got rid of babs and bart on Bactrim. That was over 7 years ago. Wish you the best.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

Thanks TF-

Do you think this sounds like a herx.

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

Yes. Just like everyone else is telling you. That's why I am advising you to detoxify yourself.

As soon as I started on Bactrim, I got horrendous babs flares every 7 days like clockwork.

These flares were unbelievable. That's what happens when you have an effective antibiotic.

Bactrim hits bart and babs, per my lyme doctor. It worked for me.

Bactrim does not have the side effect of damaging tendons, so as long as you have given us a complete list of your meds, you are not taking anything that will damage tendons. So, your symptoms have to be flares/herxes.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

Yup thats all my meds besides Thyroid, Nystatin and Supplements!!

Well I guess this is good then maybe this is what needed to get me over the hump. I have been hovering around 65-75%..

Ill keep my fingers crossed.

Thanks again everyone. Dont know what I would do without this board

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

Jane2904
Frequent Contributor (1K+ posts)
Member # 15917

posted

Good luck Tricia, it does sound like a herx.

Hope it passes quickly.

Posts: 1357 | From Massachusetts | Registered: Jun 2008 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

Thanks Jane. I hope it passes quickly too.

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

nonna05
Frequent Contributor (1K+ posts)
Member # 33557

posted

Wow ! I thought that type of reaction was from the non=sulfa drug in Bactrim ..

.I had the leg ,foot, low back pain 9 days after starting the Abx that is only the "T" word ingredient of Bactrim. Very long name..That was in 09 while traveling. Googled it and found a kinda chat page on it giving same effects. Some didn't reverse for a while. I was only on it a few days and stopped it..

Replaced it with Zith..That was all for a " bladder infection".
Way before diagnosed with this.

.So when LLMD had me try it again I was hesitant , but this time was Bactrim, both, ABx's in it. Didn't take but 4 days to get the same pain.....so I stopped..
Now I wonder....

I had always been warned about sulfa,,That's how I ended up trying both ways..

So is it a reaction or were they Herx's..

So many people had good results with Bactrim, some not. Is it TuTu that did well on it?

This can be such a crazy hard puzzle... [dizzy]

Posts: 2563 | From Denver,CO | Registered: Aug 2011 | IP: Logged |

WendyK
LymeNet Contributor
Member # 18918

posted

So does this mean Bactrim has a sulfa component in it? I was starting to think I should ask about that, but I can't do sulfa...

--------------------
Wendy

Posts: 253 | From Near Albany, NY | Registered: Jan 2009 | IP: Logged |

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