posted
Oh, things just keep coming for my son. He has recently been diagnosed with Lyme. He started Doxy for a few months. Second month on Doxy, no Lyme. Third month, shows back up. Some of them different. Dr put him on new antibiotic.
But they ran a Lipid Panel and his Cholesterol was 305 and his Triglycderides were 778. Some good news - his HDL was 59. But they couldn't give VLDL or LDL because of how high the Triglycerides were - they would skew the test.
His serum is a bit high - 101.
Can this be related to Lyme? His blood pressure is high and he has had high heart rates (178), but it seems to be controlled with a couple of medicines now. This all seems so crazy.
Posts: 132 | From Texas | Registered: Apr 2012
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Keebler
Honored Contributor (25K+ posts)
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posted
- Is he a child? If so, age range may help those who reply.
Regardless, absolutely it ALL can be related to lyme and the liver stress from lyme and treatment.
Stealth INFECTIONS CAUSE these changes (such as lyme and all that go with it).
His LLMD should be made aware of the test results and asked for guidance. It's very important to get guidance for this matter from someone who truly knows the science of lyme.
As for what he can do for himself:
I assume he's on a healthful diet - a MEDITERRANEAN DIET (minus the wine and the wheat)? Avoiding all simple sugars? Avoid all diet products, too?
If not, that is the first step but don't go to ANY fake foods at all. No additives. No fake foods.
LIVER SUPPORT is also key here. ADRENAL SUPPORT, too. Explained in the PotBelly Book below.
As for medications he may be taking to control the fats, they may not be a good idea, actually.
Essential source -- Search: STEPHEN SINATRA, MD for his site and books. -
[ 07-14-2012, 02:22 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- All about how lyme and Cpn:
THE POTBELLY SYNDROME: How Common Germs Cause Obesity, Diabetes, and Heart Disease.
The authors above show HOW that can happen but - other than the obvious "treat the infections" advice which is vital - don't detail the range of support techniques for the adrenals along the way.
While not a LL doctor and not discussing lyme (but does acknowledge infections as stress), THIS author offers great advice that can benefit those with lyme.
While it's a great resource for herbal and nutritional supplements, it's not just about what supplements can help, or about low dose Cortef (hydrocortisone), but also about some self-care, habits, and such that some of us may never think about as being so important:
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Backing up, it sounds like he is not at all being treated by an ILADS-educated lyme literate doctor.
You say:
"He started Doxy for a few months.
Second month on Doxy, no Lyme.
Third month, shows back up. . . ." (end quote)
This is NOT standard ILADS treatment (even accounting for the differences among LLMDs). Not at all.
Which ever doctor is doing that ridiculous follow up testing after one month does not understand lyme. There is no point at all of re-testing one month into treatment. Lyme cannot be tested like that.
And lyme is not going to just "leave" after a month. It does not work that way.
Single abx also is not the best approach. What is the dosage?
Do you have Burrascano's guidelines? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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�� Nutritional Supplements in Disseminated Lyme Disease ��
J.J. Burrascano, Jr., MD (2008) - Four pages
==============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
posted
My son is 35. We don't have an LLMD (I also have Lyme). It's not going to happen any time soon. I am disabled and not working - no disability. My mother has helped me and my son by paying the insurance premium. (High Risk Pool) But she has Alzheimer's and is now stopping payment on our insurance.
My son besides being in and out of the hospital every month or two, has other situations that affect his ability to get a good job. He and his wife are scraping by. They just don't have the money for his prescriptions, so I pay them. I pay for his IV treatment each month. I have helped them to the point where I can't afford any treatment for myself.
So, we have to make do. We still have our insurance at the moment, so we go to our dr who is far better than any other regular dr. At least she is giving us antibiotics.
I'm not sure what the medication she put him on now is. He was getting two 10 mg Doxy per day.
He had a grand mal seizure several years back. He's been having severe abdominal pains and nausea and vomiting that lasts for days for the last couple of years. He was in ICU last year for a week with severe pancreatitis. His BP has been slowly rising, heart rate off the charts, now cholesterol and triglyceride off the charts. Very low immune levels. High inflammation levels. I just can't imagine what's next.
Posts: 132 | From Texas | Registered: Apr 2012
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posted
JBS If your son has no money and is in dire needs for meds, if you haven't done so look into PPARX and get your meds free! You get up to 1 yr meds after forms are filled out. His doc must sign off on the forms. After 1 yr if meds are still needed just renew. Here is website:
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Keebler
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posted
- I fully understand about the not being able to afford a LLMD. Sorry it's that way for the both of you.
Can his stomach manage a clove of raw garlic a day, perhaps? Two would be better but it's best to start with just one small one in the middle of lunch. It can burn so it's not one to push but many can tolerate it well.
That will help with the blood fat levels (in addition to good eating plan) and low-impact consistent movement methods. (Aerobics should be avoided when dealing with systemic infections.)
The SINATRA book may be available through your library. Beyond that, if garlic can be tolerated, he can read up on the benefits (and cautions) of that.
Suggestions for When You Need Treatment and Funds Are Low -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Sammi
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posted
Has he had his thyroid function checked? I had extreme numbers like this when I was hypothyroid and not getting properly treated for it.
If he has not been tested, it is good to have the Free T3, Free T4 (besides T3 and T4) and thyroid antibodies checked in addition to the normal panel. These are all blood tests.
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posted
His thyroid is good, at least the normal panel. I'll have to look up his lab work to check if they tested for the Free T3 & T4 and antibodies. Sort through all the papers I have. (just moved and everything is in chaos.!)
Keebler, thatnks for the support! He can take garlic, he actually uses a lot of it when he cooks. He has had no problem with Doxy like I have - he's much better at tolerating things than I am.
He doesn't like sweets that much. Very moderate in sweets. He will eat a bite or two and say how good it is, but then he leaves it. He exercises several times a week. (I have CFS and can't exercise, but he has no problem). He's probably average in weight, although he has put on a few pounds in the last year - but he still looks good.
I'm not sure why his doctor tests him each month. I'm wondering if it's for the CDC. To support continued antibiotics.
Thanks bigstan for the tip. He still has insurance at the moment, so if he does loose it, I will pass that on to him. He's met his deductible and co-pay for the year, so at this point, everything is paid for (except meds) until the end of the year. Would really like to keep it!
Posts: 132 | From Texas | Registered: Apr 2012
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- Maybe.. but also so she can stop treating him if it shows negative. [/QUOTE]
Yes, I was worried about that. But she didn't stop the second month when he tested negative - so it's hard to say. I'm sure if he tests negative for several months, she will try to take him off. I'm just praying that somehow she will see that he needs the antibiotics. He's pretty sick in an unconventional way (the Lipid panel, the immune levels, the inflammation, the pancreatitis, the seizures, etc) that I hope she will keep him on them.
I'm a bit concerned. I have major brain fog. He has not had that. But this last time he was down here, he seemed to have a touch. Really is scary.
Posts: 132 | From Texas | Registered: Apr 2012
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Keebler
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posted
- Even if this is the only doctor he can find, he has to go beyond this on his own, somehow with specific supplements, etc.
You say: " . . .I'm not sure what the medication she put him on now is. He was getting two 10 mg Doxy per day." (end quote)
20 mg of doxy a day is not enough. But, I wonder if you meant to write two 100 mg.? Even if so, that is not enough. 400 mg a day is required - WITH other Rx, too.
And it can cause lyme to go into chronic form by ignoring the cyst form. Doxy causes lyme to go into cyst form. A different medicine is required.
So, even if no LLMD is available (I know all that as it's been my experience, too). Still, it's important to not just say, well, that's the only doctor he can see and to then take matters into his own hands with whatever specific supplements might stand a chance.
There are a couple different ways to go with that.
====================
Thanks to BigStan who just this in another thread:
Bacteriostatic vs. Bacteriocidal levels of certain antibiotics. Each different Rx would have to be considered regarding this issue, too. This paragraph is just about the Tetracyclines.
Infect Drug Resist. 2011;4:97-113. Epub 2011 May 3.
Evaluation of in-vitro antibiotic susceptibility of different morphological forms of Borrelia burgdorferi.
Excerpt:
. . . Conclusion
Antibiotics have varying effects on the different morphological forms of B. burgdorferi.
Persistence of viable organisms in round body forms and biofilm-like colonies may explain treatment failure and persistent symptoms following antibiotic therapy of Lyme disease. -
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Keebler
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