susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I finally was able to get tested for Cpn. Unfortunately it was done a week after an IVIG infusion. So I wonder if the donated antibodies could have skewed the results. GammaGard of course is mostly IGG with trace amounts of IGA and maybe even some IGM. I feel certain I have read that IVIG contains Cpn and MycoP antibodies.
Results: IGG 1:256 High .... neg less than 1:16 IGM 1:10 ............ neg less than 1:10 IGA 1:256 High .... neg less than 1:16
If the results are not skewed - the elevated IGA means active Cpn? I have read about crossreactions/false positives. To what? LD/co-infections? I thought I would ask here first before heading over to Cpn help. Ugh.
I have been tested three times this past year for MycoP under different scenarios.
Sept 2011 On 10g IVIG and two weeks off 100mg/day Doxy Result: 449
Dec 2011 No IVIG or Abx for three months Result: 698
July 2012 On 20g IVIG no Abx Result: 919
Again wonder about the IVIG. Does it "treat" MycoP? The donated MycoP antibodies go after the infection? Lowering the load/test result values?
Or the 919 from last week are mine? Meaning MycoP for me is a bit out of control?
Or the 919 reflects that I just was infused with donated antibodies? Enough of it with MycoP to be that high?
I know is complicated. TIA any thoughts.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up for input.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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