So glad to be posting here; this forum has been a huge help over the past year for me.
I've searched the forums, but haven't found an answer; apologies if this has been given already!
Here's my question: how do you know when you're "cured"?
Funny question, I know: surely the answer is "when you feel good again," right? But I Lyme is so tricky and I've had it so often over the years that I wonder.
I had my most serious bout of Lyme yet earlier this year�exhaustion, fatigue, headaches, brain fog, you all know how it goes. It took several months and two different antibiotic courses (doxy and cefuroxime) but now I'm feeling totally back to normal again.
But I just wonder... can I trust this? Can it possibly be that easy? I read so many stories of people who have had such a hard time with Lyme for so many years, and I just wonder�am I just one of the lucky few, or am I missing something?
posted
when you C4a and C3a is down when your CD57 is clearly over 120, when your WBC is at least 6 to 7, when your circulating immune complexes are within the range.
Posts: 185 | From Germany | Registered: May 2012
| IP: Logged |
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I like Jupiter's list. I'd add low-enough nagalase, neuropeptides in proper ranges for MSH, ADH, MMP9 (feel like there's a couple more I'm forgetting), thyroid/adrenal blood/saliva tests show good results, blood pressure in normal range, pulse at 60 or below.
Posts: 1927 | From se usa | Registered: Mar 2010
| IP: Logged |
posted
If you can get thru high doses (no herxing) of flagyl or tindamax, you are good to go!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
If you are symptom-free for a number of months, that's a good sign. My doc made me stay on meds for 5 months past the symptom-free point.
It worked for me. I completed my lyme treatment over 7 years ago and I am still symptom free and enjoying my life.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I'm wondering the same thing..
I'm off abx, no worse, but still tired. Wondering how you tell the difference between menopause, yeast and Lyme!
Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
posted
beths... Definitely do the diet and treat as if you have yeast. See if your remaining symptoms leave.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Good post, thanks.
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Riverlight- how many months have you been symtpom free?
My doctor thinks that some of my symptoms are actually that of a middle aged woman. How do you really know?
My oldest son is symptom free, showing babesia in labs and CD57 is 102. All other labs are normal. He hasn't done the C4a or C3a.
I ponder this same question as how do you know when you are ready.
Many tests listed above are unknown to me like MSH, ADH, MMP9. What is a circulating immune complex test?
He leaves for college in one week so I am throwing extra tindamax at him and also more OLE and GSE on top of his regular Lyme and babesia treatment. I am looking for any herxing.
He will soon go to one week a month on abx. This is a way to check I guess if one is ready. If it is too soon, the one week should bring on a herx, maybe not the first month but down the road. Once he is successful at that for 6 months, he will try going off abx. He was in this process when he herxed in June on the 5th month of one week a month of abx. Bummer!
Our doctor thought his CD57 could hang out in the 100's for quite some time before climbing.
I would love to have an updated ILADS statement on the topic of ending treatment. I would also like a document on what people are doing post treatment to stay healthy as far as supplements. What is needed right after ending treatment and what is needed life long?
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic