Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I have been trating since January and my LLNP has not had me on any cyst busters. My first protocol was bacrim, zith, mepron and augmentin. Next I was on rifampin and mino. Now I am on bicillin, mepron and zithromax. I am allergic to cephalosporins.
Should I have already been on cyst busters? I made great progress on the first protocol after several months. My severe muscle pain was greatly reduced. Once I went on rifiampin and mino my pain returned and due to the severity of the pain as well as stomach issues I was switched to the current protocol.
I am doing pretty good on this one, but it has only been about 6-7wks.
Posts: 1748 | From United States | Registered: Dec 2011
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
My third LLMD adds in Flagyl towards the end of treatment. I started Flagyl about 9 months into intense treatment. I was feeling better, but pulsing Flagyl can kick butt.
Posts: 1954 | From Illinois | Registered: Aug 2007
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
any one else??
Posts: 1748 | From United States | Registered: Dec 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I also started a cyst buster (Tindamax 2 weeks on/ 2 weeks off)
About 9 months into treatment, which was 4 months ago, when I started Bicillin injections.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
I think I started them about 3-4 months into treatment.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I think I posted the very same question about 6 months ago!
I wasn't started on a cyst buster (Flagyl) until nearly a year into treatment, although I did start Diflucan earlier for yeast and I understand that it may have some cyst-busting properties.
We started talking about the possibility of adding Flagyl in after 9 mos or so but I had too much else going on at the time. Ask your doc what the plan is - he/she may be waiting until your body can handle it.
Posts: 1737 | From Virginia | Registered: Aug 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
We all started tindamax, two days a week, right at the start of treatment. It has been over 2 years.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I forgot, I was on Plaquinel and diflucan for some time periods before Tindamax.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
If you really want to start one, you can ask to try GSE (grapefruit seed extract). It is a supplement that works as a cyst buster. My LLMD recommends 3 capsules twice daily with food. This is what I'm taking right now.
I can't take flagyl or tindamax because of the neuropathy side effects. Your doc may be hesitant to start one of these meds too if you have neuro symptoms.
Posts: 5237 | From here | Registered: Nov 2007
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